November 8 2019:
Another marked off the list. Fingerprinting done. She was so anxious and worried, they had a heck of a time getting her prints because her hands were sweating like crazy. They were incredibly kind and understanding.
She must really like volunteering at the library as that’s the only way I could get her here, by reminding her it’s required once one is 18 years old. She’s heading into her third year volunteering. Hopefully, one day soon she’ll go without me as her sidekick. That’s the plan anyway!
**Update – January 20 2020: It turns out they were so sweaty, that the fingerprints weren’t acceptable. However, they did not request she re-do them, due to her situation and that she’s been volunteering at the library since age 16. She completed a few additional pieces of paperwork and we’re done with this one!
November 6 2019:
A lovely new story from Lillian Darnell .. based on her two best friends …
An Incredible Day
November 2 2019:
Yesterday we survived visiting the downtown library so that Lillian could sign volunteer paperwork and get the fingerprinting form. That’s the one library we cannot visit due to Lillian’s depth perception, balance issues, and an uncooperative proprioceptive system. It’s a 4 level building with huge open spaces and staircases. Makes her head spin and legs shaky. It’s beautiful and I love this location. Just not a good fit for her!
There was a huge amount of anxiety over having ….
Survival of the Reno Downtown Library
October 25 2019:
Look what Lillian got in the mail today! Wahoo!! Next step, fingerprinting for the library volunteering she’s been doing for over 2 years now. Hope to check that off the list next week.
October 19 2019:
Finished researching this for the most part. Just need to circle back to creating the SDM paperwork with Lillian and paperwork for a Power of Attorney. Hope to do that in between waiting for the book proof. Then on to researching ABLE accounts.
More Research on Supported Decision Making
August 6 2019:
Lillian is writing her own posts regarding The 2019 Chromosome 18 Conference. Here’s Part 1:
The Annual Chromosome Conference 2019: Part 1
August 11 2019:
Oh my gosh! You have GOT to read this! Had me laughing out loud! And, I didn’t know she had researched the elevators!! HA! She cracks me up!
The Annual Chromosome 18 Conference 2019: Part 2
August 15 2019:
Part 3 of Lillian’s blog post about the conference. She is incredibly dedicated to writing these posts! And, they are very thorough! Hope y’all are enjoying them!
The Annual Chromosome 18 Conference 2019: Part 3
August 18 2019:
Lillian’s recap of the C18 Conference – Part 4!!
The Annual Chromosome 18 Conference 2019: Part 4
August 21 2019:
Lillian is working so hard on these y’all! Thank you to those who are following …. Much love!
The Annual Chromosome 18 Conference 2019: Part 5
September 8 2019:
Part 6 of Lillian’s play by play of the 2019 C18 Conference … Another that made me laugh out loud, more than once … Give yourself the gift of laughter today, go read it!
The Annual Chromosome 18 Conference 2019: Part 6
October 2 2019:
She’s still at it! Always lots of details. Yet, this one is heartwarming and ends HaPpY!! Many photos from the farewell dance party as part of this post! Check it out!
The Annual Chromosome 18 Conference 2019: Part 7
October 10 2019:
She’s winding down! One more after this one. This girl’s got dedication! Part 8 of Lillian’s Conference posts …
The Annual Chromosome 18 Conference 2019: Part 8
October 16 2019:
Last one! She stuck with it and wrote about every single day of the journey to and from the Chromosome 18 Conference!
The Annual Chromosome 18 Conference 2019: Part 9 & Part 10
October 14 2019:
She survived getting an ID! Extreme anxiety and pissed offness having to go do this (on Lillian’s part). You can tell she was nervous in the second photo and had calmed down by the 1st photo. She does not like these new rules that come with turning 18. We were only there about an hour. Plus, she registered to vote too! Whew! It is done now. 🎉🎉🎉🎉 Next up. Getting fingerprinted for her library volunteering …. More extreme anxiety over that one!
Thank you to the lovely DMV worker who graciously overlooked that I had made the appointment for the 15th. (And did not make me get in the “no appointment” line!) Today is not the 15th! I’m losing my mind!!
September 25 2019:
It’s time she take over some tasks, well …. mostly, anyway! So here’s a “first”!!
Lillian addressed the envelopes, rode to the post office with me last night, used the self-service kiosk to get stamps, put the stamps on, and pushed the envelopes through the slot! Wahooo!!
September 18 2019:
It’s been 3 months since I had respite. Lillian just left to spend 3 days with The Romano Duo. I’m always torn as to whether I should take a 3 day nap, madly work through the massive to do list, or do absolutely nothing (but read). Ha!!! It usually ends up being a combination of all of these. Thank you to The Romano Duo!!! …. Love you Lillian!! Enjoy your respite from Thomas and I!
September 16 2019:
A huge first for Lillian Darnell. Who woulda thought it would happen so soon after turning 18. Her Service Coordinator from SRC came for a visit to have her sign the basic documents I had signed in the past along with one giving him permission to share and discuss with me. Here we go …