UNO and Car Wash and Swimming and The Guest House

August 5 2018:

UNO time with Lillian!

August 5 2018:

Sunday’s fun adventure!! The car wash!! We came. We saw. We laughed. We went through the worlds largest blow dryer. What an experience! Seriously. Who takes 14 pictures going through the car wash??!! Hahaha!! 😂😜

Rosey is incredibly clean now. I’m so blessed we still have fun doing this after all these years. She’s so clean, we could live in her!

August 6 2018:

Homeschool swimming fun at Historic Bowers Mansion. Plus one accidental photo. Thought it was cool as it shows Thomas’ haphazard flip flops, and the fact that he got more sunscreen on the concrete than himself, plus my wet leg and a refreshed me!! That water is cold, yet felt so darn good!!

August 8 2018:

Am I the only one in the Twilight Zone the past 2 months?

My brain is tired, my body aches, and the rug keeps being pulled out from under me.

And, I’m sure I’m the one pulling the rug. I’m the tormentor and I’m the holder of the key to freedom.

I keep getting the two confused! I’ve been trying to fit into the box and the Universe keeps squishing it flat and sending it back to me!

Holding on by my fingernails … Come August 21st I best have grown those damn wings cause that’s when the last fingernail breaks loose …

I think I’ll go with Rumi on this on …. This Rumi quote hangs on our fridge to remind me when I need it. Oceans of thanks Rumi …. xoxo

It’s time to be grateful for and honorably treat these guests of sorrows who are sweeping the house empty ….

Tomorrow, that is. I shall treat them honorably and be grateful tomorrow. Tonight, I rest …. and perhaps they will rest too … xoxo …. Oceans of love to any and all who be hosting a house of sorrows lately …. YOU are not alone! xoxo

 

Touring the TESLA Gigafactory – FUN

August 8 2018:

Thomas and I got to tour the Tesla Gigafactory this morning with a homeschool group. No photos allowed so here’s a lovely photo of my badge.

So incredibly interesting and our tour guide, Adam, was amazing!!!! Just WOW!!!! Adults sign an NDA before entering. So …. 🤐🤐

Thomas asked great questions and made some great jokes!! Thomas loved it!!

The Depths of My Love

August 7 2018:

This child knows not the depths of my love. And, that is okay. For I do not have and hold that love for it to be known or reciprocated.

Although there are times when our eyes meet and I Know that Thomas Knows and we Know that the other Knows.

At times, I may fall short of it being clear by way of my words and actions. Yet, it is there, within, where my soul holds it for an eternity, in all times and all dimensions.

It’s been a journey this past 20 years or so of remembering the True meaning of the word Love. I am blessed I get to do it with Thomas and Lillian by my side.

At times, I don’t feel strong enough or capable enough to continue. Yet, in the next moment I know that is simply a trick of the mind. It is only the stories I attach to what I’m experiencing that cause me to feel this way.

This afternoon was for Thomas. May the Love and support I hold for Thomas, and my desire to always make choices that are in Thomas’ highest and best interest, travel far and wide for any and all who feel in need of Love and support.

I’m feeling mushy and woo woo and the Love floweth over … xoxo (photo from July 2018 at Audrey Harris Park)

Yummy Good Thoughts and Jackfruit and Tummy Full of Love

July 8 2018:

I have a pivotal meeting tomorrow morning at 11:00 PST.

Would you please send yummy good thoughts, prayers, and energy that all aligns for Team TLC’s highest and best interest, that I am overcome with clarity and knowing, and that the path I am to take is clear beyond a doubt. Thank you!

I’ll be wearing this dreamy moonstone necklace that was waiting in the mail for me when we got back from Baltimore.

Thank you Tania Marie for this amazingly beautiful gift. Please thank Astrid too for her help! I know that having this around my neck and close to my heart will deepen the knowing and clarity. Love you!!!

Moonstone Necklace Gift from Tania 7.8.18 #1 Moonstone Necklace Gift from Tania 7.8.18 #2

July 9 2018:

Such a yum lunch. Jackfruit tacos with baby kale, baby chard, baby spinach, tomatillo and roasted yellow chili salsa, topped with a sweet and hot jalapeño and daiya cheese. Ahhhhh ….

Jackfruit Tacos 7.9.18

July 13 2018:

Divinely yummy lunch today. Oceans of thanks for treating me to lunch Michaela Koenig! I have been wanting to eat here for months. Yay!!!!

I had the Kuzhi Paniyaram and Michaela had the Masala Dosa. Washed down with an oh so refreshing Panakam!! I floated out with a tummy full of love!

The restaurant is Maya’s for lunch and Thali for dinner. Now I just need to try Thali!!!

Calm and Smooth and Peace and Incredible Stillness and Refreshing Breeze

July 9 2018:

Today’s morning walk brought the message of calm, smooth, peace, and just BEing with what is.

Camilla Walk Vintage Lake 7.9.18 #1 Camilla Walk Vintage Lake 7.9.18 #2 Camilla Walk Vintage Lake 7.9.18 #3 Camilla Walk Vintage Lake 7.9.18 #4

July 10 2018:

Sunset walk with a Thomas last night. Incredible stillness. Incredible clouds. Incredible Nature.

July 12 2018:

Sunset walk with Lillian last night. A refreshing breeze invited us to linger just a bit longer. I love you Mother Nature.

The Alchemy of Writing by Camilla Downs

July 14 2018:

Why do you write? And what happens when you write? xoxo

The Alchemy of Writing

“I learn by going where I have to go.” -Theodore Roethke

Why

I Know that I am supposed to share that which I experience, that which I live. I know that I am supposed to share it by way of writing, so I do. I release it to fly free …

I feel it is my purpose to openly share my own life experiences with others. I freely explain and share lessons I’ve learned and practices I use that work for me and my family. If needed, I listen with love and compassion and intuitively share thoughts and ….

The Alchemy of Writing

The 2018 Chromosome 18 Conference – Baltimore, Maryland

The 2018 Chromosome 18 Conference was enjoyed by all three Team TLC members!

We shout a huge and hearty THANK YOU to The For Kids Foundation who paid for my and Lillian’s registration fee and airfare … AND … to friends who supported Lillian’s fundraiser and purchased her book, my book, and Thomas’ book! That covered our food and a wee bit of the hotel stay!! ….. AND … The Nevada Governor’s Council on Developmental Disabilities’ Consumer Leadership fund which covered the remainder of the hotel stay!

We are deeply and incredibly grateful for everyone’s support and loving kindness in making sure that we got to the conference this year! The conference is always packed with tons of useful and informative sessions and is a once per year chance for Lillian to see her friends face to face. Friends who get her, who are like her, who laugh at her jokes, and just giggle with her for no reason! Attending the conference every summer inspires and encourages Lillian to face fears and accomplish goals … As you will read about below.

Oceans of love to all! xoxo

June 29 2018:

We made it! Almost all of us anyway. One suitcase was a flight behind us. One piece of luggage made the flight and one missed it. Hmmmm.

Beautiful Sue Rose Bentivenga met us with a smile and gave us these gorgeous flowers to brighten our room while here.

I’ve been up since 3:00 am PST. I may just pass out after we actually eat. We’ve not had a meal since our cereal at 3:30 this morning.

Yet. Yay we’re here. And. Oh my gosh. My seat mate from Vegas to Baltimore. Just wait. I’ve got to process it all. Then, I’ll share.

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June 30 2018:

Thomas and I toured the USS Constellation this morning. Had to come back to the room to cool off. I was dripping more sweat than I have since moving from Mississippi! Holy heck!! I love our dry heat in Nevada!

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After coming back to the the room and cooling down, Thomas and I went to see the USCGC Taney. I’d rather be touring a forest or arboretum, yet, this brings joy to Thomas. So, two more ships tomorrow.

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One more shout out to Sue Rose Bentivenga!!! She and her daughter drove to the airport yesterday evening to pick up the piece of luggage that missed our flight. And then they delivered it to us.

And, a side note … If I had been in charge of driving us in that traffic and the style of driving here, I would have crawled under my seat and cried. We needed a Jersey native driving us through that craziness! Sue was a pro!!

Loving kindness is in the air! Thank you sweet Sue!!! Oceans of gratitude for supporting Lillian too!!! We’re so happy to hear y’all are enjoying it!!

Chromosome 18 Conference 2018 Baltimore Maryland 6.30.18 #36

July 1 2018:

Last tour for Thomas and I yesterday. Seven Foot Knoll Lighthouse. I’ve always dreamed of living or staying for a while in a lighthouse. The work of it sounds difficult yet the beauty is amazing. Now. That’s tiny house living!

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July 1 2018:

Today with Thomas was the Lightship Chesapeake. I think I’m done stepping out into the million degree sauna. 😜😂

We toured one more after this one. So glad I did this with Thomas! Even though I almost suffocated! 🙃😜

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July 1 2018:

Lillian signing books! We are super grateful!!

Chromosome 18 Conference 2018 Baltimore Maryland 7.1.18 #60 Lillian signing books

July 1 2018:

Today with Thomas was the USS Torsk. Last one! I think I’m done stepping out into the million degree sauna. 😜😂

This one tested the ole claustrophobia. I did good. Came close to a panic attack due to the heat, confined space, and so many people ahead of us blocking the way out! This was good for me as I was able to confront it, breathe, drink water, and know that I was okay, and not suffocating! So glad I did this with Thomas! 🙃😜

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July 1 2018:

Best friends! Together again! Macy Miller and Lillian. Someone asked if they are twins! They both love to laugh and giggle!

Chromosome 18 Conference 2018 Baltimore Maryland 7.1.18 #71 Macy and Lillian

Chromosome 18 Conference 2018 Baltimore Maryland 7.1.18 #81 Macy and Lillian

We had dinner with The Miller’s and just look at these two lovelies! The Giggle Duo, indeed! Look how happy they are! Lillian and Macy = Happy to see one another after a year apart!

July 2 2018:

First conference for Jaclyn. She is very excited to meet other people who have an 18p- diagnosis. And! Excited to have one of Lillian’s books!! Thank you to Jaclyn and to Mike Fudala for supporting Lillian. Much gratitude!!!!

Chromosome 18 Conference 2018 Baltimore Maryland 7.2.18 #82 Jaclyn and Lillian with Where Would You Fly Book

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Horrible lighting! Great and wonderful people!Love these Miller folks! Always so kind! And their Macy and my Lillian are The Giggling Duo.

Chromosome 18 Conference 2018 Baltimore Maryland 7.2.18 #83

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Lillian just went out to eat with a group of friends. Alone. Like. Without me. FIRST TIME she has joined the self advocates doing anything! YES!!! Hallelujah!!

She typed her order in her phone before leaving so she can show it to the host. I put money in her name badge and texted her instructions for paying her bill after explaining verbally how to pay.

She’s worried. And keeps texting me. Yet, at least she finally took that first step! The hardest one! Wahoo!!

Lillian and Camilla May 2018 Date Day 5.22.18 #9

(This post received 242 likes/loves/wows and 142 comments on facebook. Deep gratitude for everyone cheering for Lillian!)

And the below post announcing the success received 121 likes/loves and 31 comments! Thank you everyone!

Chromosome 18 Conference 2018 Baltimore Maryland 7.2.18 #84

July 3 2018:

Here’s another first!! Lillian has never participated in the self advocate panel!!! Listening. A first step!! Wahooo!!!!

Chromosome 18 Conference 2018 Baltimore Maryland 7.3.18 #85 Lillian text about self advocate panel

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Thomas and his buddy Kellan at lunch today. Thomas loves chatting with Kellan.

I’ve had two different people reply to my response of “Thank You” with: “Ah, no worries. We’re family.” Loving kindness is a beautiful thing.

Chromosome 18 Conference 2018 Baltimore Maryland 7.3.18 #86 Thomas & Kellan

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I’m a wimp. This is how I spent ladies night. A nearly scalding hot soak in the tub followed by a cold water cool down; while Thomas had dinner with his friend. Then, hanging with The Giggling Duo. They think I’m funny.

Chromosome 18 Conference 2018 Baltimore Maryland 7.3.18 #87 Camilla Ladies Night

Chromosome 18 Conference 2018 Baltimore Maryland 7.3.18 #88 Camilla Ladies Night and Macy and Lillian

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18p- Friends

Chromosome 18 Conference 2018 Baltimore Maryland 7.3.18 #89 18p- group Chromosome 18 Conference 2018 Baltimore Maryland 7.3.18 #90 18p- group

July 4 2018:

Thomas and Alex on the sibling panel. There were about 20 siblings ranging in age from 10 – 35 years old.

Chromosome 18 Conference 2018 Baltimore Maryland 7.4.18 #91

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More friends …… After group photos.

Chromosome 18 Conference 2018 Baltimore Maryland 7.4.18 #92

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Dinner and Farewell Dance!! What an incredible blessing all of these people are …. to one another ….. and the World!!!!

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July 4 2018:

Group photo. Clearly not everyone. Yet, a whole heck of a lot of us!!!! Lillian and I are definitely in there. Hopefully, Thomas is too!

I think the total was around 350. I’m sure The Registry will post official numbers soon. Love these wonderful people! (This is not my photo. I think it was taken by Rick of Positive Exposure or Stacey Gallardo.)

Chromosome 18 Conference 2018 Baltimore Maryland 7.4.18 #127 Group Photo

July 5 2018:

One last visit to The Inner Harbor. We didn’t even last an hour out there. Whew!!! 🔥🔥🔥

But. We got to walk down the opposite side this time. And found a wee bit of nature to photograph.

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July 5 2018:

Nearly home! YaY!!!

Chromosome 18 Conference 2018 Baltimore Maryland 7.5.18 #143

July 6 2018:

Fear of escalators: We’ve always had to use the stairs or elevator when Lillian was with us in the past.

No longer! Lillian rode the escalator on Friday, the 29th, at the Reno-Tahoe Airport! She held tight to me and was worried. Yet, she did it! The ultimate goal is to ride the escalator without me beside her. Wahoooooo!!!!xoxo

Lillian Rode the Escalator Post 7.6.18

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During the Chromosome 18 Conference there’s always an ongoing silent auction and all money stays with The Registry. I usually bid on a couple of items; yet, they quickly surpass my wee budget.

Not this time! I won this clutch bag and tote hand made in Guatemala using recycled materials. I can still feel the excitement in my chest for having won something so full of love, color, and beautiful energy!

The clutch bag can be used alone or thrown in the tote bag so to have handles. It’s just my size purse. Thank you so much Ivette Ruiz for donating this treasure to the auction and for supporting native people in Guatemala!

I also bid on a pair of boldly colored and beautiful oven mitts handmade in Kenya. We were blessed with attendees from Kenya and they donated some beautiful items. Missed out on those beauties, yet all for a good cause!!!

Clutch & Tote Bag Won at C18 Conference 7.6.18 #1 Clutch & Tote Bag Won at C18 Conference 7.6.18 #2 Clutch & Tote Bag Won at C18 Conference 7.6.18 #3

July 7 2018:

Another fear bites the dust. In the past Lillian has chosen to walk throughout the airport attached to my arm. Not the easiest for me while pulling a carry on bag plus her bag.

When we got to the airport in Baltimore readying to leave, I explained I needed her not to hold onto my arm and to just walk beside me.

After sighing, she said “Okay”. And did just that. Throughout the entire Baltimore, Vegas, and Reno airport!

PLUS! This included the HUGEST fear at the airport ….. The PBB. She walked through the passenger boarding bridge NOT attached to me!!! She stepped from the PBB into the airplane NOT attached to me AND walked the aisle of the airplane NOT attached to me!

Hallelujah!! Ahhhhhhh …. Freedom for both of us!!! (Picture from 2016 – Another first! First time catching air for a photo!)

Damonte Ranch Walk 9.13.16 #4

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Do you have a game plan? On the four hour flight from Vegas to Baltimore I sat next to Mark Everest.

For nearly the entire flight we shared about his family – wife, daughter, son, grand daughter -, books he’s written, his company, his workshops and speaking, his hippie friend who lives above Santa Monica. And I shared about the conference, Chromosome 18, my family, Thomas and Lillian, our books, my path.

Then we talked about Stephen Covey, Zig Ziglar, Earl Nightingale, Charlie Tremendous Jones, Wayne Dyer, Deepak Chopra, and some I’m forgetting.

I just read the first 50 pages of his first book which he gifted to me. Quote from the book, “Strength does not come from physical capacity. It comes from an indomitable will.” -Mahatma Gandhi

I shared with him I am most likely the most Woo Woo person at the conference; he said, “You are needed there.” This same comment was repeated to me by someone dear to me on the last night of the conference. Messages it did my heart good to hear!

It’s a wonderful feeling to truly connect with others. I feel we bless one another and are sharing a gift with one another when we do this. Now. That’s what I call a Gameplan!! And, that’s my GamePlan!

Game Plane Book Mark Everest Airplane to C18 Conference 7.7.18

July 8 2018:

Okay. Here’s the last one …. For this time around … Thank you to everyone for celebrating in our joy of laying to rest some fears and for having many firsts!!

While in the airports on the way back home, Lillian went into the airport restrooms without me!! We went from the first traveling experiences all those years ago of having to travel with post it notes to cover up the automatic flush sensor, to going in alone!! Yes, Yes, Yes!!!

Much gratitude to our friends and family for celebrating these seemingly small, yet HUGE, accomplishments at 16 years old for Lillian!! Wahoooo!!!

 Lillian South Valleys Library 9.13.17

 

A Haunting Memory by Camilla Downs

June 10 2018:

A Haunting Memory

Why does this memory haunt her? Why does it keep returning? She does not remember the exact age of when this happened. She would have been 5, 6 or 7 years old. The past couple of years when this memory surfaced she has taken the time to feel emotions she buried from that time …. sadness and anger. Even though she remembers not who was involved, she has forgiven whoever it was.

She used to ignore it. Telling herself either she imagined it or if it happened …

Alchemy: A Haunting Memory Reveals the Truth

Beautiful and Fun and Silly and Love and Beauties and Small World

June 11 2018:

Team TLC sunset walk tonight with The Romano Duo and Robert. Beautiful night. And fun being silly with pictures. They head back to Surprise, Arizona tomorrow morning. A few more pictures to follow. xoxo

Team TLC and Romano Duo and Robert Sunset Walk Vintage Lake 6.11.18 #1 Team TLC and Romano Duo and Robert Sunset Walk Vintage Lake 6.11.18 #2 Team TLC and Romano Duo and Robert Sunset Walk Vintage Lake 6.11.18 #3 Team TLC and Romano Duo and Robert Sunset Walk Vintage Lake 6.11.18 #4 Team TLC and Romano Duo and Robert Sunset Walk Vintage Lake 6.11.18 #5 Team TLC and Romano Duo and Robert Sunset Walk Vintage Lake 6.11.18 #6 Team TLC and Romano Duo and Robert Sunset Walk Vintage Lake 6.11.18 #7 Team TLC and Romano Duo and Robert Sunset Walk Vintage Lake 6.11.18 #8 Team TLC and Romano Duo and Robert Sunset Walk Vintage Lake 6.11.18 #9 Team TLC and Romano Duo and Robert Sunset Walk Vintage Lake 6.11.18 #10

June 12 2018:

I’m in love with the leaves of this tree. The little veins, the color, the blue shimmery speckles, and the shadows. I have probably taken about 15 pictures of them.

Leaf 6.12.18

June 12 2018:

Such beauties …. xoxo

Pink Tree Blossoms Vintage Lake 6.12.18

June 13 2018:

It’s like a small miniature world in there.

Leaf Up Close 6.13.18

June 14 2018:

Sunset walk with Lillian last night. It was a beautiful night and just what we both needed as we’re both experiencing “re-entry pains” from our respite from one another.

We followed this with a swim in the pool and a soak in the hot tub. Ahhhhhhh …. Just what we needed. xoxo

Sunset Walk with Lillian Vintage Lake 6.14.18 #1 Sunset Walk with Lillian Vintage Lake 6.14.18 #2

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Another sunset walk tonight with Lillian and I just had to give this one its own post. There’s just something about this one that pulls me In. Ahhhhhhh ….. xoxo ….

Sunset Walk with Lillian Vintage Lake Own Post 6.14.18

Sunset walk with Lillian tonight. I could not stop making pictures. So incredibly gorgeous and dreamy.

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Ok. So, I had to give this one its own post too. Because I don’t think I’ve ever seen the sun make an arrow pointing directly back at me. Just WOW!! Thank you Sun. Thank you Nature.

Sunset Walk with Lillian Vintage Lake Sunshine Creates an Arrow Pointing Back at Me 6.14.18