The 2019 Annual Chromosome 18 Conference by Lillian Darnell

August 6 2019:

Lillian is writing her own posts regarding The 2019 Chromosome 18 Conference. Here’s Part 1:

The Annual Chromosome Conference 2019: Part 1

August 11 2019:

Oh my gosh! You have GOT to read this! Had me laughing out loud! And, I didn’t know she had researched the elevators!! HA! She cracks me up!

The Annual Chromosome 18 Conference 2019: Part 2

August 15 2019:

Part 3 of Lillian’s blog post about the conference. She is incredibly dedicated to writing these posts! And, they are very thorough! Hope y’all are enjoying them!

The Annual Chromosome 18 Conference 2019: Part 3

August 18 2019:

Lillian’s recap of the C18 Conference – Part 4!!

The Annual Chromosome 18 Conference 2019: Part 4

August 21 2019:

Lillian is working so hard on these y’all! Thank you to those who are following …. Much love!

The Annual Chromosome 18 Conference 2019: Part 5

September 8 2019:

Part 6 of Lillian’s play by play of the 2019 C18 Conference … Another that made me laugh out loud, more than once … Give yourself the gift of laughter today, go read it!

The Annual Chromosome 18 Conference 2019: Part 6

October 2 2019:

She’s still at it! Always lots of details. Yet, this one is heartwarming and ends HaPpY!! Many photos from the farewell dance party as part of this post! Check it out!

The Annual Chromosome 18 Conference 2019: Part 7

October 10 2019:

She’s winding down! One more after this one. This girl’s got dedication! Part 8 of Lillian’s Conference posts …

The Annual Chromosome 18 Conference 2019: Part 8

October 16 2019:

Last one! She stuck with it and wrote about every single day of the journey to and from the Chromosome 18 Conference!

The Annual Chromosome 18 Conference 2019: Part 9 & Part 10

 

 

 

 

 

 

 

Life Adventures: An Update from Camilla Downs

August 3 2019:

Written mostly to update blog subscribers. However, thought I’d share here too …

It’s been over a month since I’ve written or published anything on my blog, with my postings being much less frequent on facebook and instagram. I felt moved to share an update.

I have been busy with finishing tasks to get my upcoming book released by the end of Summer. Here’s a peek at the cover. Almost there with the cover!

I was wrapped in details of …..

Life Adventures – An Update from Camilla

 

Operation Colorado Springs – Haircut with a Thank YOU Evening Swim

July 15 2019:

Step 2 of Operation Colorado Springs or bust! Haircut for Lillian today, registered Thomas for siblings night out and the zoo outing, searching for a hotel room or Airbnb near Sandy, Utah or Spanish Fork, Utah (making my head spin), one grocery store run, and Lillian asking 55 times if I’ve started packing …. Onward!! Thank you Kathy for cutting Lillian’s hair! She loves it!!

Tomorrow is more packing, another grocery store run, and nailing down the details of the route I’m driving. Just reserved a room for us near Provo. A little less than halfway to Colorado Springs. Thank you to everyone who has supported the efforts and to those who are sharing. Deeply appreciated!

https://www.gofundme.com/f/help-lillian-spread-her-wings?utm_source=customer&utm_medium=copy_link&utm_campaign=p_cp+share-sheet

*Updated*

Thank you to everyone who has donated and shared! We have surpassed the goal set and can now comfortably enjoy the conference!! When we return to Reno, we’ll begin packing to move into a new and more affordable place. I’ve increased the goal amount for those who wish to continue supporting us. Any further donations will used to pay for the deposit in our new place, movers, and moving truck. I have been waiting for construction to finish on this new place for around 2 years now. It keeps getting bumped due to delays, but, I think it’s finally nearing completion and we are set to move in September 9th. It is a unique/hybrid high end apartment community with 20 percent of the units set aside for working income families. Meaning the rent will be much more affordable (about half of what it is now). Plus!! We get to move from a one bedroom, one bath into a two bedroom, two bath. This will be such a relief for all of us!

July 17 2019:

Halfway done with packing. Lovey, our sweet Guinea pig, has been checked into Hotel Perez. Library visit to return books and to check out goodies for the trip. One last grocery store run. Full tank of gas. One very short night swim for Lillian. Painting of the Lillian toenails compete. Hopefully, I’ll get to bed soon! It begins early tomorrow morning!

Colorado Springs – What Places Should We Visit

What should we do and see? The Chromosome 18 conference is in Colorado Springs this July. I’m so excited for this one as I’ve longed to visit there!

Any suggestions for places we should visit? And, also suggestions for any place that I should visit for some me time? Thank you!! 💜🙏