“Biggest Little Photographer” and “D in for Different” left for Silver Springs Nevada yesterday afternoon. That’s a whole lotta love in that package!! May everyone who touches it on the way, feel the love!! xoxo
January 27 2017:
WOW!!! What a great SibShop this afternoon! Thomas got to tour the lab, the roof (where the helicopter lands), the children’s ER, and the main ER at Renown. He also got to see a brain!
He says the energy there is very sad. Yet, the energy of his group was joyful and he had a good time.
Thank you Diana Beeghly Rovetti, Down Syndrome Network of Northern Nevada (DSNNN), and JUSTin HOPE Foundation for facilitating and hosting these amazing Sibshops!!
It’s one of those “Lillian miracle” posts again ….
Last night Lillian ran her own bathwater, turning the faucet on and off by herself (BIG deal!), readied the bathroom, pulling the heater out and plugging it in, and had a bath without calling me in to help with anything (BIG deal!!).
She did send a text in the beginning saying she couldn’t get the water to turn on …. yet, she figured it out before I even responded! At FIFTEEN years old! Hallelujah!! I was only needed for ONE task … getting her hair up. One day I will post that she is able to take care of that hair of hers!
When you take your shower or bath today, perhaps you may want to release all other thoughts and focus on the miracle happening in that moment. xoxo
from the article … “The anticipation of and the attendance at the conference encourage Lillian to set goals and accomplishing them. At last year’s conference she got in the elevator, went downstairs, and waited in the lobby for friends .. all without my assistance or presence.
She used the hand dryer and automatic toilet also. About a week ago she walked across the foot bridge alone, without holding onto my arm. Two days ago she climbed two stairs with holding onto my arm and plans to reach the top of the stairwell before we leave for the conference. All of these are huge accomplishments for her … “