Nature is Always Amazing

“Nature always wears the colors of the spirit.” – Ralph Waldo Emerson … Quote from the book, Where Would You Fly by Lillian Darnell

Want one of these lovely books of your own? Go here … WhereWouldYouFly.com … Thank you! xoxo

I Felt Much Braver and Not Scared

December 23 2018:

Lillian is at The Romano Duo’s House again this weekend. Yes!!!!

For anyone who doesn’t know: Lillian has a fear of taking showers. She’s always had baths.

About a month ago, she spent a couple of days at The Romano Duo’s place (my Mom and step-father, Frank).

They have a big, walk-in shower and it was perfect for Lillian to “walk” into that fear!! Yay!!! At 17 years old, she’s conquered that one!! 🧚🏼‍♂️🎉🎉🎉🧚🏼‍♂️

The Most Miraculous Things – Dodgeball for a Cause

December 18 2018:

The most miraculous things happen when we embrace and love it all …

At about 8:00 last night, I received an email that Lillian’s attendance at next year’s Chromosome 18 Conference will be partially funded by a local Reno nonprofit … Hallelujah … Dodgeball for a Cause

I will soon be sharing information about this wonderful, local, nonprofit and their upcoming once per year fundraiser. They help several families each year.

My heart is bursting and dripping with ooey gooey gratitude from all of the blessings being delivered in this past week.

(Picture from the 2018 Baltimore conference … The Giggling Duo … Macy and Lillian … The Best of Friends … )

Not That It Need Be Long

December 15 2018:

“Not that the story need be long, but it will take a while to make it short.” – Henry David Thoreau … from the book, “Where Would You Fly and Other Magical Stories” by Lillian Darnell …

Would you like a book for yourself or as a gift for someone? Go here … Where Would You Fly Book ….

Another Fear Walked Into – The Shower

November 17 2018:

She took a shower last night! At 17 years old, she finally leaned into her worries and fears of taking a shower. Yes! A wonderful and new first for Lillian with a bit of help from grandma Patty!


(Photo from September 2016 – Another first of “getting air” for a photo)

Thank goodness that in The Romano Duo’s new place, they’ve got one of those extra large walk in showers. Lots of room to stay away from the wrath of the shower head! HA! YAY Lillian!!

Shared with Lillian’s permission. 🎉🤩😍🎉

Fairy Dust is in the Air – Get All Three Team TLC Books

November 5 2018:

Fairies and Photography and Acceptance to Zig Zag!!! Sounds like a great trio to me! Lillian’s waving the sparkly, mystic filled wand over them!!

There’s fairy dust in the air for the months of November and December as you can get all three for a magical amount! Let me know …

All three books for $40 + $5 shipping for a total of $45 (regularly $55 for all three).

or

10% off any one book + $3 shipping

$13.50 for D iz for Different – One Woman’s Journey to Acceptance – $16.50 total with shipping

$18.00 for Biggest Little Photographer – $21 total with shipping

$13.50 for Where Would You Fly and Other Magical Stories – $16.50 total with shipping

You can use this PayPal link. Just enter your amount and note which book(s) you would like and your mailing address.

Or

You can also comment here with your email address if you’d like a different payment method.

Decisions As We Approach Lillian Darnell Reaching 18 Years of Age – Nevada

September 30 2018:

Friends with special needs adult children … Lillian is 17 years old now and it’s time to decide about guardianship. I’ll need to decide whether to do a full guardianship, or just financial, or just medical or both or alternatives.

**Nevada friends have shared about Supported Decision making – About to educate myself on that!!** So … input on any and all routes friends have gone is welcome! Lillian is capable of making decisions. Although, she has a difficult time with some decisions; with much anxiety.

Would you mind sharing your thoughts and experiences with this? I’m interested in hearing from all, especially friends in the state of Nevada since state laws can be different.

Did you have your local Regional Center (state organization that provides services for special needs kids) to assist with this by giving you information and/or conducting a psychological evaluation?

Thank you so very much for your input!! xoxo

Lillian is not medically fragile and we hardly ever go to the doctor. She hasn’t been in years. Her difficulties are her ability to articulate her speech, and emotional and mental issues. She does have difficulty making some decisions. She almost always ask for my input; which I give to her. She still has some difficulties after that, yet, I usually will try a bit more to get her to make the decision. If she’s not able to do it, I’ll make the decision for her (which, sometimes will snap her into being firm with her own decision)!

Where Would You Fly at Reno Barnes & Noble

October 19 2018:

On Saturday, Nov 10th, Lillian and I will be at the Reno Barnes & Noble for a “Where Would You Fly” book signing from 11-5. We’d love to see you there!! xoxo

Lillian and Independent Time

September 7 2018:

Lillian is still going to the lodge once a week for independent time. It’s been a year now. Yay!!! She stays anywhere from 1-3 hours.

I stay with her for 10 minutes while she walks on the treadmill working on that heal toe movement. Then she reads, does artwork, and uses her phone.

During the summer she incorporated going to the pool while she’s there. Had the pool all to her self yesterday! Except I crashed her solo pool party for a quick swim too! 💦💙💦

Dream and See and Write and Live and Pool and Birthday Gift

August 26 2018:

Not normally my style of music. yet, Lillian shared this with me as she finds it deeply inspiring. Once I listened to the words; I, too, find it deeply inspiring. Dream, See, Write, Live Your Story … These are the etchings of my heart and listening to this song has awakened those etchings even more … May you enjoy …. xoxo

August 29 2018:

Lillian got to spend the night with The Romano Duo last at GSR!! What a Diva!!! She loved the pool!! Now she’s off shopping for a birthday gift.