Another Fear Walked Into – The Shower

November 17 2018:

She took a shower last night! At 17 years old, she finally leaned into her worries and fears of taking a shower. Yes! A wonderful and new first for Lillian with a bit of help from grandma Patty!


(Photo from September 2016 – Another first of “getting air” for a photo)

Thank goodness that in The Romano Duo’s new place, they’ve got one of those extra large walk in showers. Lots of room to stay away from the wrath of the shower head! HA! YAY Lillian!!

Shared with Lillian’s permission. 🎉🤩😍🎉

Fairy Dust is in the Air – Get All Three Team TLC Books

November 5 2018:

Fairies and Photography and Acceptance to Zig Zag!!! Sounds like a great trio to me! Lillian’s waving the sparkly, mystic filled wand over them!!

There’s fairy dust in the air for the months of November and December as you can get all three for a magical amount! Let me know …

All three books for $40 + $5 shipping for a total of $45 (regularly $55 for all three).

or

10% off any one book + $3 shipping

$13.50 for D iz for Different – One Woman’s Journey to Acceptance – $16.50 total with shipping

$18.00 for Biggest Little Photographer – $21 total with shipping

$13.50 for Where Would You Fly and Other Magical Stories – $16.50 total with shipping

You can use this PayPal link. Just enter your amount and note which book(s) you would like and your mailing address.

Or

You can also comment here with your email address if you’d like a different payment method.

Decisions As We Approach Lillian Darnell Reaching 18 Years of Age – Nevada

September 30 2018:

Friends with special needs adult children … Lillian is 17 years old now and it’s time to decide about guardianship. I’ll need to decide whether to do a full guardianship, or just financial, or just medical or both or alternatives.

**Nevada friends have shared about Supported Decision making – About to educate myself on that!!** So … input on any and all routes friends have gone is welcome! Lillian is capable of making decisions. Although, she has a difficult time with some decisions; with much anxiety.

Would you mind sharing your thoughts and experiences with this? I’m interested in hearing from all, especially friends in the state of Nevada since state laws can be different.

Did you have your local Regional Center (state organization that provides services for special needs kids) to assist with this by giving you information and/or conducting a psychological evaluation?

Thank you so very much for your input!! xoxo

Lillian is not medically fragile and we hardly ever go to the doctor. She hasn’t been in years. Her difficulties are her ability to articulate her speech, and emotional and mental issues. She does have difficulty making some decisions. She almost always ask for my input; which I give to her. She still has some difficulties after that, yet, I usually will try a bit more to get her to make the decision. If she’s not able to do it, I’ll make the decision for her (which, sometimes will snap her into being firm with her own decision)!

Where Would You Fly at Reno Barnes & Noble

October 19 2018:

On Saturday, Nov 10th, Lillian and I will be at the Reno Barnes & Noble for a “Where Would You Fly” book signing from 11-5. We’d love to see you there!! xoxo

Lillian and Independent Time

September 7 2018:

Lillian is still going to the lodge once a week for independent time. It’s been a year now. Yay!!! She stays anywhere from 1-3 hours.

I stay with her for 10 minutes while she walks on the treadmill working on that heal toe movement. Then she reads, does artwork, and uses her phone.

During the summer she incorporated going to the pool while she’s there. Had the pool all to her self yesterday! Except I crashed her solo pool party for a quick swim too! 💦💙💦

Dream and See and Write and Live and Pool and Birthday Gift

August 26 2018:

Not normally my style of music. yet, Lillian shared this with me as she finds it deeply inspiring. Once I listened to the words; I, too, find it deeply inspiring. Dream, See, Write, Live Your Story … These are the etchings of my heart and listening to this song has awakened those etchings even more … May you enjoy …. xoxo

August 29 2018:

Lillian got to spend the night with The Romano Duo last at GSR!! What a Diva!!! She loved the pool!! Now she’s off shopping for a birthday gift.

Updated Pin Map – Where Would You Fly

July 17 2018:

Oceans of gratitude to the 14 blessings that were bestowed upon us at the Chromosome 18 conference … By way of getting their hands on a copy of “Where Would You Fly”!

I’ve just updated the map and added more pins to the east coast and Canada! Just showing the rest of the map for those who didn’t get to see it yet! xoxo

Ringoes, NJ; Evans City, PA; Halifax, NS, Canada; Toronto, ON, Canada (2); Jim Thorpe, PA; Newport News, VA; Warrington, PA; Elliot City, MD; Oakville, ON, Canada; Lanham, MD; and Plainfield, IL

Most Fun Day Dreams Come True

July 8 2018:

“I have been trying to make some of my most fun day dreams come true. Some of my daydreams slowly are coming true on their own. 😉

Have you tried making some of your daydreams come true?” -Lillian Darnell, July 6, 2018

(Photo from Lillian’s segment discussing her book on KOLO 8 with Sarah Johns in February 2018)

Lillian and Camilla Kolo 8 Where Would You Fly Book 2.27.18 #5

To learn more about Lillian’s book, go here http:///www.WhereWouldYouFly.com … xoxo

Lillian Signing Books – Where Would You Fly in Baltimore

July 1 2018:

Lillian signing books at the 2018 Chromosome 18 Conference in Baltimore last month! We took 15 books with us and came home with one! We also took a handful of mine and Thomas’ books and only came back with two of those! We are super grateful!!

Chromosome 18 Conference 2018 Baltimore Maryland 7.1.18 #60 Lillian signing books

Go here to learn more about each of our books:

Where Would You Fly and Other Magical Stories

Biggest Little Photographer

D iz for Different – One Woman’s Journey to Acceptance

Rainbow of Emotions by Lillian Darnell – Fundraising

May 30 2018:

Rainbow of Emotions … Another from Lillian … She is fundraising to help attend the Chromosome 18 Conference next month. This is the 2nd piece she’s offering as a print. The first was The Egyptian Eye.

I’ve decided to sell prints or copies of Rainbow of Emotions once again to fundraise and help my family attend the annual Chromosome 18 conference. The print will be about an 8 X 10 size and mounted on foam board or similar ready to hang.

The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: Last year in July when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.

The really fun part is that YOU get to choose your own price! The base price is $25 to cover cost of printing, mounting, and shipping (US Only – Our overseas friends can email my mom at Camilla Downs @ gmail.com if you’re interested in purchasing a print).

Use this Paypal link and enter your own amount over the $25 base price. For example, if you want to donate $50 towards my fundraiser, then you would enter $75. Go here.

OR …. If you simply want a photo quality print, the base price is $15 to cover cost of printing and shipping. For example, if you wish to donate $25 to my fundraiser, then you would enter $40. Use this Paypal link. (Please note whether you want “Just the Print” or “Mounted Print”)

Here’s a story inspired by the Rainbow of Emotions:

Rainbow of Emotions Lillian Absract Art

A Flower’s Curious Emotions

Once long ago, there lived a flower named Rainbow who was always emotional. One day, the flower was very curious about why she was so emotional.

So the flower went to a wise flower named Emotions but liked to be called Lavender instead. When Rainbow got to Lavender’s home, Rainbow asked, “Why am I so emotional, Lavender?”.

Lavender laughed and said, “You are emotional because you are always inside any living thing but I can give you some wisdom if you think it will help”.

“Yes, I think it will help me better understand. I trust you and your wisdom.”, said Rainbow in excitement. So Lavender said, “The princess who owns the sky is sometimes called Rainbow of Emotions and she watches over you. Your emotions are actually inherited from the princess. I hope that wisdom helps.”

Rainbow said, “Thank you! That helps. Now I am very grateful for the princess’ emotions.” So Rainbow walked off happily. So if you ever see a rainbow or feel any emotion, chances are you could be experiencing either Rainbow’s emotions or the princess’ emotions.

That’s the end of the story.

Visit the link below to read further …

Fundraising for the 2018 Chromosome 18 Family Conference – Rainbow of Emotions