Fundraising for the 2019 Chromosome 18 Conference – Lillian

Sharing for Lillian Darnell (my daughter for those who don’t know) …. She is one determined being with this every year. She will continue to ask me for ideas every other day with a determination and steadfastness that rivals a future Olympian in training …

“Hey, everyone! For this year’s fundraising efforts for my family to attend the Chromosome 18 Conference in Colorado Springs, I decided to make customized poems. Here’s some information on the poems:

The poems will be nature themed, fairy themed, mermaid themed, or unicorn themed. Every poem created will be different and uniquely yours! You can get a decorative border around the poem, incorporating recycled materials; or simply the poem emailed to you.

Now, here’s some information on what the Chromosome 18 annual conference means to me:

The Chromosome 18 conference means a lot to me because I get to meet new friends and spend time with old friends. It also means a lot to me because I get to travel to a new city with my family.

The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: In July 2017, when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.

Here’s a poem as an example:

Butterflies dash and play
Within the golden sunbeams
Dancing in the afternoon sky.

Butterflies fly in the sky like a colorful moving rainbow
Glimmering in the sky.
The sky sparkling like water.

Butterflies dance freely along
the water.
Water sways as it’s greeting the butterflies.

©2019 Lillian Darnell

You can still purchase prints of my abstract artwork also.”

from me: Lillian has a condition called 18p- which means she is missing the short arm of chromosome #18. The ways in which this manifest for her are: difficulties with articulation, balance and depth perception issues, chronic pain, difficulties with handling strong emotions, and irrational fears and worries.

Her only friends are through the Chromosome 18 group. She always chooses one fear to conquer leading up to the conference. This year it is her fear of taking a shower (she’s always taken baths). She’s nearly conquered it already! The conference is like one long therapy session for the entire family as there is a track for parents/caregivers, a sibling track, and a self advocate track.

Feel free to share this with any you know who enjoy supporting artists and fundraisers.

(Photo of Lillian on one of our date days; and a message from Lillian, table centerpiece and a group photo … All from the 2018 conference in Baltimore)

Go here to learn more ….

Fundraising for the 2019 Chromosome 18 Family Conference – Poem Creativity

 

Camilla and Lillian Update for Chromosome 18 Conference in Baltimore and the Fundraiser

June 23 2018:

Lillian and I share that Lillian would like to have a birthday party in Baltimore so that she can actually celebrate in person with her best friends.

And we talk about Lillian selling her artwork as a fundraiser … http://lilliandarnell.com/…/fundraising-for-the-2018-chrom…/

Thanks so much everyone! xoxo

 

Mounted Happy World Delivered at the Library

June 27 2018:

Taking care of three tasks at once! It was volunteer day for Lillian and I at the library. Plus, we delivered “Happy World” to Theresa Garcia Grant! (You know she’s a seasoned special needs parent when she asks if it’s okay to give Lillian a hug … For those that don’t know, Lillian prefers no hugs so she’s grateful that people ask.)

Sorry we were rushed Theresa and biggest gratitude to you for supporting Lillian and her fundraiser! Plus! Thomas went with us to choose magazines for the trip. We were a Team TLC whirlwind at the library this afternoon!!

Happy World Mounted Print to Theresa 6.27.18

The Egyptian Eye Looking Good

June 5 2018:

Thank you to Hunter at Pixels & Ink! Just back from picking up mounted prints of Lillian’s artwork. They are beautiful and ready to go to their new homes!!! Much gratitude to the beautiful souls supporting Lillian’s fundraising efforts. xoxo

Egyptian Eye Mounted 6.5.18 #1 Egyptian Eye Mounted 6.5.18 #2 Egyptian Eye Mounted 6.5.18 #3

If interested in reading about Lillian’s fundraiser, go here …

Fundraising for the 2018 Chromosome 18 Family Conference – In Summary

The Egyptian Eye to Da Bayou

May 29 2018:

The Egyptian Eye is on her way to Metairie Louisiana!!! Goin’ down da bayou! Oceans of gratitude to Stephanie for supporting Lillian’s fundraising efforts! xoxo .

Mailing Egyptian Eye 5.29.18

Want an Egyptian Eye for yourself? Go here to learn more … http://lilliandarnell.com/2018/06/06/fundraising-for-the-2018-chromosome-18-family-conference-in-summary/

A Flower’s Curious Emotions by Lillian Darnell

June 2 2018:

A story inspired by the Chromosome 18 Conference. ….. from Lillian …  xoxo

Once many years, a little girl named Rainbow loved traveling to new places. One day, Rainbow decided to write a story. “Hello! My name is Rainbow. My family and I have been going to a conference called Party Dancers for many years”, wrote Rainbow.

One day at the Party Dancers, she faced many fears in just 1 day. Rainbow was very determined to conquer more fears. A couple of years later at the Party Dancers, Rainbow met a friend she connected with through Bookworm the previous year and had so much fun. Rainbow knew many friends and people that year.

Rainbow even tried to get in the cold pool. This year, Rainbow was pumped to go …..

Fundraising for the 2018 Chromosome 18 Family Conference – Rainbow of Emotions

Rainbow of Emotions by Lillian Darnell – Fundraising

May 30 2018:

Rainbow of Emotions … Another from Lillian … She is fundraising to help attend the Chromosome 18 Conference next month. This is the 2nd piece she’s offering as a print. The first was The Egyptian Eye.

I’ve decided to sell prints or copies of Rainbow of Emotions once again to fundraise and help my family attend the annual Chromosome 18 conference. The print will be about an 8 X 10 size and mounted on foam board or similar ready to hang.

The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: Last year in July when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.

The really fun part is that YOU get to choose your own price! The base price is $25 to cover cost of printing, mounting, and shipping (US Only – Our overseas friends can email my mom at Camilla Downs @ gmail.com if you’re interested in purchasing a print).

Use this Paypal link and enter your own amount over the $25 base price. For example, if you want to donate $50 towards my fundraiser, then you would enter $75. Go here.

OR …. If you simply want a photo quality print, the base price is $15 to cover cost of printing and shipping. For example, if you wish to donate $25 to my fundraiser, then you would enter $40. Use this Paypal link. (Please note whether you want “Just the Print” or “Mounted Print”)

Here’s a story inspired by the Rainbow of Emotions:

Rainbow of Emotions Lillian Absract Art

A Flower’s Curious Emotions

Once long ago, there lived a flower named Rainbow who was always emotional. One day, the flower was very curious about why she was so emotional.

So the flower went to a wise flower named Emotions but liked to be called Lavender instead. When Rainbow got to Lavender’s home, Rainbow asked, “Why am I so emotional, Lavender?”.

Lavender laughed and said, “You are emotional because you are always inside any living thing but I can give you some wisdom if you think it will help”.

“Yes, I think it will help me better understand. I trust you and your wisdom.”, said Rainbow in excitement. So Lavender said, “The princess who owns the sky is sometimes called Rainbow of Emotions and she watches over you. Your emotions are actually inherited from the princess. I hope that wisdom helps.”

Rainbow said, “Thank you! That helps. Now I am very grateful for the princess’ emotions.” So Rainbow walked off happily. So if you ever see a rainbow or feel any emotion, chances are you could be experiencing either Rainbow’s emotions or the princess’ emotions.

That’s the end of the story.

Visit the link below to read further …

Fundraising for the 2018 Chromosome 18 Family Conference – Rainbow of Emotions

The Wise Sultan and the Camel by Lillian Darnell – Family Fundraiser

May 25 2018:

from Lillian ….. to fundraise … xoxo …. “I’ve decided to sell prints or copies of the Egyptian Eye once again to fundraise and help my family attend the annual Chromosome 18 conference. The print will be about an 8 X 10 and mounted on foam board or similar ready to hang.

The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: Last year in July when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.

Here’s a story inspired by The Egyptian Eye:

Egyptian Eye 8.2012

The Wise Sultan and The Camel

Once many years ago, a camel walked in the Egyptian desert. The camel wondered if it had an Egyptian eye. So the camel passed a wise sultan who was on his way to a faraway land named Butterfly Land.

The camel asked, “Do you know if I have an Egyptian eye? I’ve been wondering for years now.” The wise sultan chuckled and said, “Certainly seems like you have an Egyptian eye but it is up to you to decide.”

The camel said …..

Fundraising for the 2018 Chromosome 18 Family Conference – The Egyptian Eye