The 2019 Annual Chromosome 18 Conference by Lillian Darnell

August 6 2019:

Lillian is writing her own posts regarding The 2019 Chromosome 18 Conference. Here’s Part 1:

The Annual Chromosome Conference 2019: Part 1

August 11 2019:

Oh my gosh! You have GOT to read this! Had me laughing out loud! And, I didn’t know she had researched the elevators!! HA! She cracks me up!

The Annual Chromosome 18 Conference 2019: Part 2

August 15 2019:

Part 3 of Lillian’s blog post about the conference. She is incredibly dedicated to writing these posts! And, they are very thorough! Hope y’all are enjoying them!

The Annual Chromosome 18 Conference 2019: Part 3

August 18 2019:

Lillian’s recap of the C18 Conference – Part 4!!

The Annual Chromosome 18 Conference 2019: Part 4

August 21 2019:

Lillian is working so hard on these y’all! Thank you to those who are following …. Much love!

The Annual Chromosome 18 Conference 2019: Part 5

September 8 2019:

Part 6 of Lillian’s play by play of the 2019 C18 Conference … Another that made me laugh out loud, more than once … Give yourself the gift of laughter today, go read it!

The Annual Chromosome 18 Conference 2019: Part 6

October 2 2019:

She’s still at it! Always lots of details. Yet, this one is heartwarming and ends HaPpY!! Many photos from the farewell dance party as part of this post! Check it out!

The Annual Chromosome 18 Conference 2019: Part 7

October 10 2019:

She’s winding down! One more after this one. This girl’s got dedication! Part 8 of Lillian’s Conference posts …

The Annual Chromosome 18 Conference 2019: Part 8

October 16 2019:

Last one! She stuck with it and wrote about every single day of the journey to and from the Chromosome 18 Conference!

The Annual Chromosome 18 Conference 2019: Part 9 & Part 10

 

 

 

 

 

 

 

Lillian and Camilla October 2019 Date Day

October 15 2019:

Lillian and Camilla October 2019 Date Day

First: A swim. Ahhhhh …. That was refreshing!!

Second stop: Her favorite place for fries and a one eyed spooky cookie for her. A giant vegan pomegranate gum drop for me.

Third stop: Reading in the car with an amazing view at Audrey Harris Park and then a short walk at Bartley Ranch Park.

Ended the date day with shopping for a few long sleeve shirts for Lillian. Found some! Yay!

It Is Done – Lillian Darnell Gets an Identification Card

October 14 2019:

She survived getting an ID! Extreme anxiety and pissed offness having to go do this (on Lillian’s part). You can tell she was nervous in the second photo and had calmed down by the 1st photo. She does not like these new rules that come with turning 18. We were only there about an hour. Plus, she registered to vote too! Whew! It is done now. 🎉🎉🎉🎉 Next up. Getting fingerprinted for her library volunteering …. More extreme anxiety over that one!

Thank you to the lovely DMV worker who graciously overlooked that I had made the appointment for the 15th. (And did not make me get in the “no appointment” line!) Today is not the 15th! I’m losing my mind!!

Lillian Wants to Know – Who Made This Rule

October 4 2019:

She’s a bit overwhelmed with having to sign documents so soon after turning 18. She would like to know who made this rule!!!

It’s taking so long for construction to be finished on the new apartments, she turned 18 while waiting. So …. had to sign the application! Anyone know of a short term place we could rent for the month of November? Our lease here ended the end of August, management let us stay at our old lease rate for September. Had to pay a month to month rate for this month and can’t do that again! 😱 I’m serious if any of my Reno friends have thoughts. Move in just got bumped again to early November at the new place. With their record, I doubt it will be ready.

One Step at a Time

September 23 2019:

During the last week of August this was finally resolved. After having to reach out to the supervisor of the supervisors.

Now I’m working on the cover reveal for my book, happening this coming Saturday, finishing my research on Supported Decision Making and preparing documents for this (moving on to research ABLE Accounts – anyone have thoughts on these), working with Thomas to loosely lay out schooling for the next four years, and then back around to Lillian to help her set up her creations in an online store.

The Flame of Advocacy – Camilla Downs

Throwback Post: Rocks as Gifts and Picture Day and Weather Station

**THROWBACK POST**

May 21 2013:

Thomas went on a quick bike ride this morning before school … and brought home gifts for me and Lillian …. ROCKS. This kid totally Rocks! Perhaps he was inspired by the gift Lillian and I brought him from our date Sunday. We brought him a sticker from Squeeze In and a weed eater string we found at the park. He liked the weed eater string best!! Maybe y’all will be inspired to show some gratitude/kindness to someone you love today by giving them a home made or nature made gift! Have FUN!!

Thomas Rocks as Gifts May 21 2013

Picture Day at HDMS Adventures for Thomas and Lillian … April 2013.

Thomas and Lillian May 21 2013

After going outside to check the homemade weather station and the wind this morning, Lillian came to me and said she had a nature chant to share … “Go wind Go. Someday, I know, you’ll be the pro.” The wind must have really liked it. I nearly got blown over during my walk!! So inspired by that young lady!

Respite for All of Us

September 18 2019:

It’s been 3 months since I had respite. Lillian just left to spend 3 days with The Romano Duo. I’m always torn as to whether I should take a 3 day nap, madly work through the massive to do list, or do absolutely nothing (but read). Ha!!! It usually ends up being a combination of all of these. Thank you to The Romano Duo!!! …. Love you Lillian!! Enjoy your respite from Thomas and I!