Slow But Sure – Rainbow of Emotions Quilt Update

February 2 2019:

…. from Gerry … “Progress…slow but sure.”

February 4 2019:

Gerry update!! “This is what I’ve been working on this snowy afternoon: So many little shapes to sew around!”

Are you interested in having a 3X3 Quilt of this or one of Lillian’s other abstract art pieces? Let us know in the comments. xoxo

Lillian and Camilla January 2019 Date Day

February 1 2019:

Lillian and Camilla January 2019 date day.

First stop: Fries for Lillian, bright red shortbread cookie for Lillian and vegan chocolate blackout cupcake for me. 😋😋😋

Next up, shopping for lip balm for Lillian. She chose Mongo Kiss Peppermint and she let me try it last night. Good choice!! 💙💙💙

Ended the date with a long walk where we used to walk in 2014 and 2015. I am deeply blessed and grateful that she still loves to go walking with me. 🙏💖💖💖🙏

Most of you know that Lillian has a deep, irrational fear of dogs (and all animals). You can see in this picture of her, that’s she’s not wearing her usual glowing smile. This was about 10 minutes after she was “attacked” by a dog. I say attack because that’s what it feels like for her.

It was an incredibly jolly and happy dog. I tried to hide Lillian behind me and tried to get the dogs attention; but that didn’t work. The happy dogs seem to be attracted to her!

It was very traumatic and took her hours to recover. When the dogs young girl human caught up to the dog and us, she was nearly in tears as she felt so bad this had happened.

Lillian has been reading about dogs to help with this fear. Yet, it is not getting her there. Hopefully soon she will be ready to visit with a friendly, very mellow dog. Perhaps that will help. We go for so many walks, and encounter so many unleashed dogs, she really wants to get past this. 💝💝💝

Light Bulb Moment and Squishy Things

**THROWBACK POST**

April 27 2015:

On the way to Lillian’s Craniosacral therapy appointment we were discussing music. She mentioned that Hawaiian music is relaxing. Then she had a lightbulb moment. We have been discussing relaxing techniques for Lillian with therapists.

In that moment she realized that she could listen to beautiful Hawaiian music when in need of some calming! YAY Lillian for making that connection. My eyes almost sweated in joy for her. Beautiful and inspiring moment.

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One for each of us. Thank you Christine McBride, CT and OT, for taking all I shared about Lillian and asking if anyone had mentioned SPD (Sensory Processing Disorder). So many things are making sense now. Plus the realization that Thomas has some of this going on big time! YAY for squishy things!

Squishy Things 4.27.15

Colorado Springs – What Places Should We Visit

What should we do and see? The Chromosome 18 conference is in Colorado Springs this July. I’m so excited for this one as I’ve longed to visit there!

Any suggestions for places we should visit? And, also suggestions for any place that I should visit for some me time? Thank you!! 💜🙏

Big Rigs and Sprinklers

**THROWBACK POST**

April 27 2013:

We’re here!! Thomas’ favorite so far is the Kolo 8 mobile newsroom!! He has already done his first news report …

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What an indescribable feeling … Watching kids play in sprinklers … makes my heart sing and dance .. Perfect and wonderful. This is how it’s supposed to be!!

Thomas & Lillian Playing in Sprinkler 4.27.13

 

Delicious and Yummy and Physical Healing and Gratitude and Independence and Micro Greens and Eye Sweatin

December 31 2019:

Finally had one of these yesterday. After brewing a cup of Peruvian extra dark roast coffee; I placed one of these beautiful wafers atop the cup for a few minutes as Jessica and Marten had explained.

And then … As I bit into this piece of pure heaven, I was saturated with the ooey gooey good feelings one has when savoring a delicious food!! Oh my yum!! Thank you again Jessica and Marten!! 💖💝💖💝💖💝

January 1 2019:

The tree makes for fabulous background for picture taking …. Heehee!

Had to take a picture of this glorious yummy frozen dessert that I treated Thomas and I too yesterday. Vegan Double Chocolate Delight made with cashew milk. Good grief! That’s good stuff! And I just noticed it’s between the snowman and the snowflake … Perfect!!

January 3 2019:

As I wait for the feeling to come back on the left side of my face … Another shout out to those that helped make this procedure possible. Oceans and oceans of gratitude …. 🙏

Hard to believe that little hole was causing so much discomfort. Turns out there was a deep cavity there. New crown being made that fully covers the area so this doesn’t happen again.

Whenever it’s doable, next up is a few gum line cavities and the only other crown I’ve got needs to be replaced as it’s got a pretty big hole. That one doesn’t hurt as I have no roots in that tooth.

2019 seems to be beginning with the theme of physical healing. I’ll take that!!! 🎉🎉🎉💖💖💖

January 5 2019:

Still at it. Almost once per week, 10 minute walk on the treadmill followed by independent time at the lodge. 💞💞💞

January 5 2019:

I feel it’s no coincidence that micro greens are heart shaped. They’re incredibly good for us. Yum, yum!

Yet, thought it so cute how this one propped itself perfectly for me to see. Love, the micro greens. 💚

January 5 2019:

I made fresh pico de gallo tonight to go with our tradition of every other Saturday nacho dinner.

Thomas had finished eating, Lillian was in the bathtub. And, I was alone chewing my nachos. A wave of emotions hit me like I imagine a tsunami wave hits land.

My eyes began to sweat with liquid gratitude for the miracle occurring in my mouth. I was chewing the nachos on BOTH sides of my mouth. I have not been able to do that in about 2 years. I’ve had to chew crunchy foods on the right side only.

I’m aware this sounds silly to some. Yet, this post is not for you. It’s for me and others who are stricken with gratitude, bliss, and joy over seemingly small things.

I alternated between laughter and eyes sweating the entire meal. I realized I had been given back something more than being able to chew certain foods using ALL of my teeth.

This had nothing to do with sadness. This was pure joy, gratitude, bliss, peace, reassurance, and LOVE. And that pico de gallo was damn good! ❤️🙏🙏🙏❤️

Merry Merry Joy Joy – Team TLC Christmas 2018

December 25 2018:

Merry, Merry!! Joy, Joy!!! Oceans of love!!! 💚🎄❤️🎄💚🎄❤️🎄

My non- traditional Christmas dinner!

Beyond Beef Burger topped with romaine lettuce, cherry tomatoes, hot and sweet jalapeños, sautéed crimini mushrooms and sweet onions with a side of roasted delicata squash. Patty made me my own batch of potato salad! Yum!! Washed down with blood orange Italian soda.

And, another of Frank’s virgin Bloody Mary.

My homemade gift to Thomas. Favorite color is a shade of aqua and favorite color combination is yellow and white. xoxo

That is Thomas

A beaming smile
To light the way.

A mind that
Craves to know
The why, the how.

A heart that
Thumps, thumps, thumps
With the wonder
At every pondering.

A young person
Making way
Through this
Crazy thing
Called adolescence.

Conversations,
Never dull.
Conversations,
Always full of passion.

A beautiful
Shining human
That is this one
That is Thomas.

Love,
Camilla🚀💞
Mom
xoxo

My handmade gift to Lillian. Her favorite color is blue, favorite color combination is rainbow colors, and she loves glitter and sparkles.

Magical Fairy Drops

She is a fairy
A fairy whom
Likes a berry.

She is a fairy.
A fairy that’s
Definitely not hairy.

A lover of shadows
A lover of weather
She is a fairy.

Inspired by the sparkles,
Lifted by the rainbows,
Delighted by the
Pink and orange sunsets.

Eyes shining bright
To behold the
Beautiful sky.

All aglow with
The sighting of
The magical moon.

Icicles, dew drops,
Puff balls, fresh snow,
Spring flowers,
Summer showers,
Autumn leaves
These are a few of her
Favorite things.

She is a fairy.
She is Lillian.

Love,
Camilla💙🌈
Mom
xoxo
2018

Handmade gift for Frank. His favorite colors are blue and orange. xoxo

The Italian Named Frank

Always ready
To celebrate
And to do it
With flair!

Good food and drink
He’s always happy
To serve up.

Willing to help,
Ready to give hugs,
With much love.

One whom can
Be counted on
To bring along
The silly side
Of any holiday!

Fra-gee-lay … it must be Italian!
It’s a Major Award!
Merry Christmas, The shitter was full!

Love,
Camilla😜💖😂
xoxo
2018

Handmade gift for Robert. One of his favorite colors is green. 💚💚💚

Handmade gift for Mom … Patty. One of her favorite colors is merlot. This was as close as I could get. xoxo

Ode to Patty

Always there,
Always with
Love to share.

Always with a
Comfy and cozy
House to share.

She makes
Us giggle
She makes
Us wiggle …

She makes us wiggle?
Well, not really, yet
That’s the word
That shot forth!

Deeply for her
Family she
Does care.

Always there,
Always with
Love to share.

Love,
Camilla 💖
xoxo

Handmade gift for Carolyn. Her favorite color is purple. Love you dearly, SongBird …. 💜💜💜

Dearest Carolyn – SongBird,

To have someone
such as you
to hold a mirror
so that one may
fully see the path
she has travelled
and continues to travel.

To have someone
such as you
shower your kindness
and generosity upon she.

To have someone
such as you
to share what
she needs to share
knowing it only
deepens the relationship.

To have someone
such as you
is a blessing
of the highest
and brightest.

I am blessed
by our friendship
I love YOU

Yo Cosmic Sista!!
Camilla – LoveSeed 💖
xoxo

I Felt Much Braver and Not Scared

December 23 2018:

Lillian is at The Romano Duo’s House again this weekend. Yes!!!!

For anyone who doesn’t know: Lillian has a fear of taking showers. She’s always had baths.

About a month ago, she spent a couple of days at The Romano Duo’s place (my Mom and step-father, Frank).

They have a big, walk-in shower and it was perfect for Lillian to “walk” into that fear!! Yay!!! At 17 years old, she’s conquered that one!! 🧚🏼‍♂️🎉🎉🎉🧚🏼‍♂️