October 14 2019:
She survived getting an ID! Extreme anxiety and pissed offness having to go do this (on Lillian’s part). You can tell she was nervous in the second photo and had calmed down by the 1st photo. She does not like these new rules that come with turning 18. We were only there about an hour. Plus, she registered to vote too! Whew! It is done now. 🎉🎉🎉🎉 Next up. Getting fingerprinted for her library volunteering …. More extreme anxiety over that one!
Thank you to the lovely DMV worker who graciously overlooked that I had made the appointment for the 15th. (And did not make me get in the “no appointment” line!) Today is not the 15th! I’m losing my mind!!
August 20, 2019:
Thank you Diana Beeghly Rovetti for getting me one of these packets! And, thank you for spending 2 hours with me discussing Supported Decision Making, Sierra Regional Center odds and ends, transportation, SSI, Sibshops, and whatever else we covered!!! Ha! Thank you, thank you, thank you!!! Deeply grateful! Another load off my shoulders. Whew!
August 24 2019
Two to three weeks working my way through the “Lillian turns 18” next month list, along with other “must be addressed” items.
SSI figured out for the moment
I have a better grasp on Supported Decision Making now and know I don’t have to feel rushed for that one.
Have researched and messaged back and forth regarding changes to the dosage of CBD oil
One issue almost completely taken care of – just waiting to receive something in the mail.
Still working my way up the ladder with the SRC issue. Got the supervisor of the supervisor’s email address yesterday afternoon.
Have gotten Meeting the Authors nearly caught up
Got 2 boxes packed for our upcoming move 😂
July and August date day with Lillian
Now … hoping to make my way back to my book this week and plan for Lillian’s 18th birthday!!
Thinking I may take a day or two off in October … July, August, and September have been and will be intense! Whew!
August 27 2019:
FINALLY got the issue with SRC resolved! Took nearly a month and going as far as the supervisor of the supervisors. Now I know why I like emailing as opposed to the phone. I had a timeline that indicated I had turned everything in as asked, when asked.
Recap: Turned in all documents in May having to do with a service for Lillian. It was approved. We used it for June and July. Got a message in July they had canceled the approval and had put her on a wait list as they didn’t get the documents needed. I kept getting “nothing can be done” until I sent an email this Monday to the supervisor of the supervisors. Done. And, retroactive to include July as I didn’t know they had not paid the provider for July.
So …. when dealing with agencies, keep notes on your calendar and email whenever possible!! Whew!! One thing completely off the list! Onward!
And a side note … I am kind in these communications; but firm. I also make sure the supervisors know that the person they supervise has been pleasant and helpful and that I appreciate them (if they have and I do). I did let them know about a rude individual who had contacted the provider about not receiving a form that was turned in …
September 30 2018:
Friends with special needs adult children … Lillian is 17 years old now and it’s time to decide about guardianship. I’ll need to decide whether to do a full guardianship, or just financial, or just medical or both or alternatives.
**Nevada friends have shared about Supported Decision making – About to educate myself on that!!** So … input on any and all routes friends have gone is welcome! Lillian is capable of making decisions. Although, she has a difficult time with some decisions; with much anxiety.
Would you mind sharing your thoughts and experiences with this? I’m interested in hearing from all, especially friends in the state of Nevada since state laws can be different.
Did you have your local Regional Center (state organization that provides services for special needs kids) to assist with this by giving you information and/or conducting a psychological evaluation?
Thank you so very much for your input!! xoxo
Lillian is not medically fragile and we hardly ever go to the doctor. She hasn’t been in years. Her difficulties are her ability to articulate her speech, and emotional and mental issues. She does have difficulty making some decisions. She almost always ask for my input; which I give to her. She still has some difficulties after that, yet, I usually will try a bit more to get her to make the decision. If she’s not able to do it, I’ll make the decision for her (which, sometimes will snap her into being firm with her own decision)!