July 14 2019:
Currently reading. Two of them I’m reading for the 2nd or 3rd time. I am so much enjoying Rise & Shine, Benedict Stone!
July 15 2019:
One more swim with Samantha yesterday. She left this morning headed back home to Louisiana. I think she was incredibly happy to meet her cousins.
July 17 2019:
Mermaid’s Song
Mermaids swim the water
like a dolphin.
Mermaids sing as
sweet as a pineapple.
Mermaids travel like whales
to explore magical lands
of unknown kingdoms.
Mermaids swim in the sky’s ocean
dancing in the sunlight.
Mermaids flick their tails
leaving water droplets
high in the sky.
Mermaids whisper
my name into the shell
as I listen to the waves of
mermaids talking.
©️2019 Lillian Darnell.com
Written by my 17 year old daughter, Lillian. She is still fundraising by offering to write a custom poem just for you. She wrote this one for a friend down South … Mermaid themed! Thank you Christy!! Let us know if you’d like one! Donation amount is completely up to you.
from Lillian: Hey, everyone! For this year’s fundraising efforts for my family to attend the Chromosome 18 Conference in Colorado Springs, I decided to make customized poems. Here’s some information on the poems:
The poems will be nature themed, fairy themed, mermaid themed, or unicorn themed. Every poem created will be different and uniquely yours! The poem will be made into a lovely graphic image and emailed to you. Go here to read why this is so important to her …
Fundraising for the 2019 Chromosome 18 Family Conference – Poem Creativity
Although the conference is over for this year, you can still take part in Lillian’s offer of a custom poem. We’ve got a move coming up on September 9, and funds raised will go towards that. Lillian and Thomas will each get their own bedroom!! Plus, Plus!!! We will have a 2nd bathroom!! Ament to that!!
July 7 2019:
My daughter is fundraising to help pay for she, her brother, and myself to attend a family conference related to her chromosome deletion …. 18p-. It’s the Chromosome 18 Family Conference and this year it’s in Colorado Springs, Colorado USA.
She will create a custom poem especially for you and the donation amount is entirely up to you. This one was a request for a unicorn themed poem from my friend Karen in Mississippi.
Pease share with others you know who may wish to support Lillian. Thank you!!
Unicorn Magic
Unicorns dance like clouds
Leaving little rainbows everywhere.
Unicorns prance happily
as a wave of rainbows everywhere.Unicorns chase their tails like
dogs shedding pretty
sunsets everywhere.Unicorns watch over us
Like guardian angels.
The unicorn flies into my dream
As I sleep.
©️2019 LillianDarnell.com
To learn more, to support Lillian, or read why it’s so important to her, go here ….
July 4 2019:
Guest post by Lillian Darnell hosted by Tracey Scott-Townsend Writer who lives in Kingston-Upon-Hull, East Yorkshire. Thanks tons Tracey for asking Lillian to write a guest post! We are deeply grateful!!
“Hey! My name is Lillian Darnell. I am 17 years old and live in Reno, Nevada USA. I just graduated from high school, have received a one year scholarship to Skillshare.com and am ready to put forth more writings, photography and art …. ” Visit the link to read the entire post and we’d sure appreciate if you “like” the post, comment and/or share it. Thank you!!!
July 13 2019:
I’ve never used this before … Yet, I’m kinda, sort of, like, REALLY exhausted and was moved to give this a go for the wee bit remaining to fully cover the cost of this year’s Chromosome 18 Conference. If it moves you and you feel it the right thing to do, please share. Much love! The conference is being held July 21st-24th in Colorado Springs, Colorado.
Once a year she gets the opportunity to be amongst friends and those who get her, those who judge not. Once a year, she gets the opportunity to attend a life changing event. And, every year it does, sometimes a small change, sometimes a huge change. She chooses the time approaching this once a year event, and at the event itself, to conquer fears so as to have exciting news to share with friends …….
Visit this link to read more and to share should it move you. With deep gratitude for all who have shared and donated in the past few days. https://www.gofundme.com/f/help-lillian-spread-her-wings
May 1 2019:
Today was a beautiful day to mail a “Rainbow of Emotions” print!! Thank you Steve for supporting Lillian’s fundraiser! 💗🎉🎉🎉💗
Would you like to help support Lillian’s fundraiser? Go here to learn more … 2019 Chromosome 18 Conference
April 11 2019:
She must have 3 bookmarks marking her spot. And they must be the same 3 bookmarks. No substitutions should one of the three get “lost”. And. She uses them until they cannot be taped and repaired any more!
She says, “I don’t think there’s enough left of this one to use as a bookmark.” Hallelujah!!! After years one of the 3 gets replaced!! 🤣🤪😂💙📚…. This post has been approved by Lillian.
March 17 2019:
Team TLC + The Romano Duo + Aunt Debbie …. We lost Robert … He was here too.
Yummy dinner and laughs.
**THROWBACK POST**
May 2 2014:
I awoke this morning with a heart open to all the good that surrounds me. After our love and hug conversation at breakfast we left to take Thomas and Lillian to school. I decided I was gonna listen to some music on the way. Turned on the radio and “Best Day of My Life” was playing … Blow my mind!! Then happy, fun songs one right after another! Dropped Lillian off and told her to have fun having the best day of her life. Dropped Thomas off and told him to have the time of his life sharing love.
At the grocery store a lovely grandfatherly gentlemen stopped me on the aisle and said “That’s a very special dress you have on.” I told him “Thank you …… And so are YOU!” Beautiful sweet man was speechless.
Last stop was the bank to get a cashier’s check. The teller asked me if I wanted to withdraw any money from my account. I told her no, unless it was coming from somewhere else … with a smile and a giggle. After a few seconds checked my phone for texts and I had a text that I’d received money deposited into another account … that I did not know was coming … Without knowing it I said something out loud and she asked if I had a question. I said “No, I really did just receive money. Ask and you shall receive!” My eyes almost sweated right there in the bank!
Then, after Thomas’ vaulting lessons tonight Team TLC stopped at little Washoe Lake for some rock throwing and skipping! I love LOVE! Best Day Of My Life Indeed! Plan on having another tomorrow! Thank you, thank you, thank you!!
February 28 2019:
This spitfire is 1 in 56,0000! Missing the short arm of Chromosome #18. Honoring all who find themselves as part of this club on Rare Disease Day. Red for 18p- …. ❤️❤️❤️
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That’s it. I’m one crazy lady. Lillian asked in December if we could take advantage of “free for locals” winter swimming at the Grand Sierra. Sure, we can do that.
For one reason or another we didn’t make it and today was the last day for the free swimming.
We first made our way to the Infinity pool. With wind gusting so hard we could hardly walk. That’s it in the last picture. I think I would have preferred 30 degrees and no wind as that’s what it felt like. Thank goodness the pool is heated. Needed my ear muffs though. Frozen ears!!!
You can tell by our smiles that it felt much better in the hot tub. It is protected from the winds by the hotel building and ahhhhhhhh, ohhhhhhhhhhh so warm.
One crazy a** adventure done!! Check. Lillian, please do not ask to do this next winter!! Hahaha! I’m glad we did it. We laughed. We smiled. Yet, I’m a “I’ve done it once, don’t need to do it again” adventure person.
Between this and the hour long walk this morning in the 25 mile an hour gusts, I’m ready for bed! Mother Nature packs a powerful workout! No gym needed!
I figured she wouldn’t last long!! (And, she didn’t) So, thought the little bit I’d be cold was worth it so she could experience this …. (and hopefully not want to ever do it again!!)