Rainbow of Emotions Abstract Art Makes Way to California

Posted on May 12, 2019 by Camilla

May 1 2019:

Today was a beautiful day to mail a “Rainbow of Emotions” print!! Thank you Steve for supporting Lillian’s fundraiser! 💗🎉🎉🎉💗

Would you like to help support Lillian’s fundraiser? Go here to learn more … 2019 Chromosome 18 Conference

Not Enough Left of This One

Posted on April 18, 2019 by Camilla

April 11 2019:

She must have 3 bookmarks marking her spot. And they must be the same 3 bookmarks. No substitutions should one of the three get “lost”. And. She uses them until they cannot be taped and repaired any more!

She says, “I don’t think there’s enough left of this one to use as a bookmark.” Hallelujah!!! After years one of the 3 gets replaced!! 🤣🤪😂💙📚…. This post has been approved by Lillian.

Yummy Dinner and Laughs

Posted on March 28, 2019 by Camilla

March 17 2019:

Team TLC + The Romano Duo + Aunt Debbie …. We lost Robert … He was here too.

Yummy dinner and laughs.

We Are Surrounded By Good

Posted on March 16, 2019 by Camilla

**THROWBACK POST**

May 2 2014:

I awoke this morning with a heart open to all the good that surrounds me. After our love and hug conversation at breakfast we left to take Thomas and Lillian to school. I decided I was gonna listen to some music on the way. Turned on the radio and “Best Day of My Life” was playing … Blow my mind!! Then happy, fun songs one right after another! Dropped Lillian off and told her to have fun having the best day of her life. Dropped Thomas off and told him to have the time of his life sharing love.

At the grocery store a lovely grandfatherly gentlemen stopped me on the aisle and said “That’s a very special dress you have on.” I told him “Thank you …… And so are YOU!” Beautiful sweet man was speechless.

Last stop was the bank to get a cashier’s check. The teller asked me if I wanted to withdraw any money from my account. I told her no, unless it was coming from somewhere else … with a smile and a giggle. After a few seconds checked my phone for texts and I had a text that I’d received money deposited into another account … that I did not know was coming … Without knowing it I said something out loud and she asked if I had a question. I said “No, I really did just receive money. Ask and you shall receive!” My eyes almost sweated right there in the bank!

Then, after Thomas’ vaulting lessons tonight Team TLC stopped at little Washoe Lake for some rock throwing and skipping! I love LOVE! Best Day Of My Life Indeed! Plan on having another tomorrow! Thank you, thank you, thank you!!

She’s a Member of a Rare Club and I Am Crazy

Posted on March 13, 2019 by Camilla

February 28 2019:

This spitfire is 1 in 56,0000! Missing the short arm of Chromosome #18. Honoring all who find themselves as part of this club on Rare Disease Day. Red for 18p- …. ❤️❤️❤️

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That’s it. I’m one crazy lady. Lillian asked in December if we could take advantage of “free for locals” winter swimming at the Grand Sierra. Sure, we can do that.

For one reason or another we didn’t make it and today was the last day for the free swimming.

We first made our way to the Infinity pool. With wind gusting so hard we could hardly walk. That’s it in the last picture. I think I would have preferred 30 degrees and no wind as that’s what it felt like. Thank goodness the pool is heated. Needed my ear muffs though. Frozen ears!!!

You can tell by our smiles that it felt much better in the hot tub. It is protected from the winds by the hotel building and ahhhhhhhh, ohhhhhhhhhhh so warm.

One crazy a** adventure done!! Check. Lillian, please do not ask to do this next winter!! Hahaha! I’m glad we did it. We laughed. We smiled. Yet, I’m a “I’ve done it once, don’t need to do it again” adventure person.

Between this and the hour long walk this morning in the 25 mile an hour gusts, I’m ready for bed! Mother Nature packs a powerful workout! No gym needed!

I figured she wouldn’t last long!! (And, she didn’t) So, thought the little bit I’d be cold was worth it so she could experience this …. (and hopefully not want to ever do it again!!)