Thanksgiving 2018 – Team TLC and The Romano Duo Plus Robert

November 22 2018:

Thankful for this. Two of my greatest teachers in this life. Helping open my eyes, mind, and heart to true knowing. Busting me loose from the confines of judgments and conformity and helping me learn about unconditional love!! Hallelujah!!! 🧡🧡🧡

Got treated with a virgin Bloody Mary and vegan turkey loaf, just for me. Cranberry sauce (made by Thomas), green bean casserole, and sweet potato to go with it. Got to lounge and begin reading this great book a friend bought for me last September. 🍁🧡🍁🧡🍁🧡

Team TLC + The Romano Duo + Robert …. and turkey just the way I like it! Cute, wee stuffed animal turkey!! 🧡🍁🧡🍁🧡

Team TLC + The Romano Duo + my brother Robert. We used to watch this every year with Mom and Frank before they moved 3 years ago. We switched to watching “It’s a Wonderful Life”; which we’ll watch tomorrow.🧡🍁🧡🍁🧡🍁

Just had to give these cuties their own post! Especially with The Romano Duos cozy abode as backdrop! I enjoyed just sitting in this spot, reading, resting my eyes (hehehe), and enjoying a Frank special virgin Bloody Mary.

Creating and More Creating and Pumpkin Soup and Respite and Lions and Sheep

November 11 2018:

Working on one of Thomas’ birthday gifts for this coming Tuesday! The big 13 is just days away! 💚💚💚🎉🎉🎉💙💙💙

November 12 2018:

Haven’t decided what to do with this. I’ve got 5 of them. I’ll be sanding the test paint as was just testing the texture after I sanded the original paint. Hmmmm … we shall see. 🤩🤩🤩

November 14 2018:

Mmmmmmm …. Pumpkin soup. This. Is. So. Yum!!! 😋🧡

November 15 2018:

There she goes!! Spending two nights with The Romano Duo!!! Hope you have a great time Lillian!!!

And, YAY, hallelujah, and wahooo!!!! Respite for Thomas and me!!! I get 2 days of no arguing over the bathroom and no arguing over Thomas and Lillian sharing a bedroom!! And Lillian gets respite from us too!! Win Win! Love you Lillian! 🎉🎉🎉💞💞💞

November 17 2018:

Very short story I read last night; which is within a book I’m re-reading. A friend posted something very similar this morning and so it seemed I should share. Perhaps a sync for someone … xoxo … “The Lion Who Thought He Was a Sheep”

Another Fear Walked Into – The Shower

November 17 2018:

She took a shower last night! At 17 years old, she finally leaned into her worries and fears of taking a shower. Yes! A wonderful and new first for Lillian with a bit of help from grandma Patty!


(Photo from September 2016 – Another first of “getting air” for a photo)

Thank goodness that in The Romano Duo’s new place, they’ve got one of those extra large walk in showers. Lots of room to stay away from the wrath of the shower head! HA! YAY Lillian!!

Shared with Lillian’s permission. 🎉🤩😍🎉

Sometimes I See People Staring At Me

November 12 2018:

“Sometimes I see people staring at me. I can see in their eyes that it’s a ‘you’re crazy’ look.” – Lillian …

I asked her if this bothers her? Yes, it does. …. (I told her they must be staring because she is so beautiful … 😍😃)

In the past when I’ve noticed others staring at Lillian, I ask them if I can help them and ask if they have any questions or if they are curious about Lillian. I also let them know it’s unsettling for another to be stared at by someone.

I will be kind. Yet, I am human and I am also Lillian’s mom and protector. I do have my limits. I told Lillian to let me know the next time it happens so that I can “help” the one staring.

People stare at me often too. I have no idea why. I have finally reached a point where I can mostly not be bothered by others actions and words. Yet, I also just don’t give a pluck. 😂🤣😜And, there again, maybe I have lettuce in my teeth or my clothes are on inside out … Hahaha!! xoxo

I posted this on facebook on November 12th and thought I’d share some of my response to friend’s comments ….

I’m sure most people don’t even realize they are doing it. Yet, it digs at one’s heart when one’s offspring is bothered by it enough to say something … more than once. I also told her that she could ask them why they are staring if she felt like it.

I have had a child ask me “What’s wrong with her?”, so since they were a child, I was able to explain it all to them. However, having an adult say that would most likely put me past my limit! I’m so crazy myself, and having a wild imagination, I would have them thinking they need to seek another planet on which to live … xoxo … And, then again, I may just start dancing. That would really freak em out.

Thomas asks me sometimes why I’m staring at him. I’m not. I’m just deep in thought and looking in his direction. I think for the most part this is what is happening. Except for the occasional times when one can sense from the energy of the other; that they are being judgmental or having negative thoughts.

I have to say that my split second initial response is a firm-smart-ass-full-of-profanity’s-tell-them- off comment. Yet, I know this gets society no where having this response. So, I tell them what I think, yet, in the kindest way possible.

I get lost in thought at times and I’m sure it seems as if I’m staring at someone when I’m actually just dazed and confused!! HA!

Thankfully, no one has been rude to her, except for when she used to be in public school. Fortunately, I don’t think it bothers her as much as it could. Perhaps it has helped a bit when she or Thomas tell me I’m weird or crazy and I respond with, “Thank you. Thank you for noticing!” HeeHeeHee!

Fun with Shadows

October 29 2018:

Lillian and I had a blast last night playing with shadows! This one is pretty cool. 🔦😂🤣 … What do you see?

First, we had all the lights out as we were enjoying our newly carved pumpkins! So, here’s what Lillian did. She put her iPhone onto the floor with the flashlight on. Then, she was kneeling over it in different directions, plus, hanging her head upside down!

Her shadow was cast onto the ceiling and upper wall. I took several more photos of her and then both of us playing around; but this was the coolest! So fun! xoxo

 

Team TLC Jack-o-Lanterns and Fairy Princess and Charlie Chaplin – Halloween 2018

October 28 2018:

Team TLC jack-o-lanterns … 🎃🎃🎃

Thomas ….

Lillian ….

Camilla …

October 31 2018:

It was a great day for Charlie Chaplin and Princess Fairy Lillian. Whew! And a busy day for this gypsy mama. Now we’re watching our traditional Halloween night movie …. Arsenic & Old Lace.

Thomas participated with a homeschool group for trick-or-treating so that residents at the Monaco Ridge Assisted Living center could hand out candy.

It was an interesting experience as I assume quite a few have varying degrees of Alzheimer’s or dementia. Thomas had a great conversation with one fellow talking about Charlie Chaplin, amongst other talk.

On the way out I found a kindness rock. I’ll perhaps add a little something to it and then drop off at a different location. Fun!!! 🎃👻🧡

First Dinner with The Romano Duo and Dark Chocolate

October 23 2018:

First dinner with The Romano Duo in their new place in Dayton. What a treat!!! They made me my own pot of vegetarian pasta sauce!

For fun, we drove through Virginia City on the way here. We’ll leave earlier next time so we can stop for pictures.

Next time we’re gonna have the ingredients so I can have a virgin Bloody Mary!!! It’ll be just like old times, but different! We all had a great time!!! 🎉🎉🎉

October 27 2018:

I walked in Trader Joe’s to get a few items and walked out with Dark chocolate heaven. Wow!! 🖤🍫🖤

Decisions As We Approach Lillian Darnell Reaching 18 Years of Age – Nevada

September 30 2018:

Friends with special needs adult children … Lillian is 17 years old now and it’s time to decide about guardianship. I’ll need to decide whether to do a full guardianship, or just financial, or just medical or both or alternatives.

**Nevada friends have shared about Supported Decision making – About to educate myself on that!!** So … input on any and all routes friends have gone is welcome! Lillian is capable of making decisions. Although, she has a difficult time with some decisions; with much anxiety.

Would you mind sharing your thoughts and experiences with this? I’m interested in hearing from all, especially friends in the state of Nevada since state laws can be different.

Did you have your local Regional Center (state organization that provides services for special needs kids) to assist with this by giving you information and/or conducting a psychological evaluation?

Thank you so very much for your input!! xoxo

Lillian is not medically fragile and we hardly ever go to the doctor. She hasn’t been in years. Her difficulties are her ability to articulate her speech, and emotional and mental issues. She does have difficulty making some decisions. She almost always ask for my input; which I give to her. She still has some difficulties after that, yet, I usually will try a bit more to get her to make the decision. If she’s not able to do it, I’ll make the decision for her (which, sometimes will snap her into being firm with her own decision)!

Wild n Crazy Ice Cream Flavors and Farewell Swim

September 26 2018:

Thomas and I stopped to get our Icecycle Creamery fix before Alchemist Theatre tonight!!

Oh my gosh!! Pickle flavor! Unfortunately there was only enough for us to taste and find out that we loved it!!! Yummy!! Must go back for that!

I tasted about 4 different flavors and Balsamic Roasted Tomato was one of them. I really didn’t think I would like it. Surprise! Incredibly delicious so that’s what I had.

Thomas had half Roy Rogers and half salted butterscotch.

September 28 2018:

This afternoon Team TLC had a farewell swim in the amazing pool! After this weekend, it’s drained and covered til next spring.

This Pisces girl is going to miss submerging in the water so often. And I know Thomas and Lillian will miss it too.

Deep gratitude for the wet, silky-smooth, hugs and love! I love you water …. til next spring! 💙💦💦 💦 💙

 

Lillian and Independent Time

September 7 2018:

Lillian is still going to the lodge once a week for independent time. It’s been a year now. Yay!!! She stays anywhere from 1-3 hours.

I stay with her for 10 minutes while she walks on the treadmill working on that heal toe movement. Then she reads, does artwork, and uses her phone.

During the summer she incorporated going to the pool while she’s there. Had the pool all to her self yesterday! Except I crashed her solo pool party for a quick swim too! 💦💙💦