Top 10 Digital Diary Entries for 2020

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(September 28 2020 – Lillian’s Belated 19th Birthday Poolside BBQ)

Top 10 Digital Diary Entries With the Most Views for 2020

  1. Movie Night: The Little Mermaid
  2. Movie Night: Halloweentown
  3. Movie Night: Howl’s Moving Castle
  4. Movie Night: Thor – The Dark World and Water of Summer by Lillian Darnell
  5. From No Bed to Plush Bed – New Bed for Thomas
  6. Songs to Conquer and Encourage you by Lillian Darnell and Congratulations to Lillian and I Love Our Weirdness and How We Celebrate
  7. An Aversion to Doing Anything the Typical Way – Camilla Interviewed by Jess Faraday and Movie Night: Pirates of the Caribbean – The Curse of the Black Pearl and Movie Night – The Princess and the Frog and Massive Sky Art with Beautiful Wild Horses and Unfulfilled Longing by Camilla Downs
  8. Guide to Self-Publishing by Bloomsbury – Camilla Contributed
  9. Wild Herds of Amazing and Survival of the Reno Downtown Library – Lillian Darnell and Movie Night – The Trip
  10. Movie Night – Pirates of the Caribbean – On Stranger Tides and Movie Night: It Happened on Fifth Avenue and Lillian and Camilla February 2020 Date Day and A Lovely and Magical Book – Curled Up With a Good Book – Where Would You Fly and Movie Night: The Little Mermaid Live!

Birthday Celebrations for Lillian’s 20th Birthday

September 14 2021

We started the celebration this morning with opening gifts. Happy 20th Birthday to Lillian Darnell!!!! An iPad and case from me, The Romano Duo, Grandpa Robert, and herself (it was a team effort), a great new shower curtain and sparkly curtain rings from The Romano Duo, a photo book with 2016 photos (in the mail, on the way here) scissors, and a rainbow crystal from me, and a card from Thomas.

Join us and help Lillian celebrate her 20th birthday! I remember having dinner with the Miller family at the Colorado C18 Conference. Matt said that Team TLC would make a great reality TV show, or something like that. Proof of that right near the beginning of Lillian’s live birthday event, via Thomas and an event he was supposed to be attending.

After the gifts, it was pool time! Happy 20th birthday Lillian Darnell!

After pool time, it was back to our place for cupcakes and cheesecake. 🎉❤️😋😋😋❤️🎉 Always lots of photos of blowing out the candles as it wasn’t until 2012 (I think) that Lillian was able to blow out candles.

We ended the Lillian Darnell 20th birthday celebrations with favorite fries to go along with dinner, a drive for a favorite dessert, and then a night time walk.

Thought I’d share something tangible to show the importance of the research that the Chromosome 18 Research Society performs. Lillian is one of those pink bars in the first image. We don’t just get general information having to do with Lillian’s deletion, we get specific information because of the research performed, and the families who have donated blood to be studied, completed questionnaires, and the sharing of information.

Lillian likes to have a birthday fundraiser for our beloved C18 every year. If you feel moved to help further the research they perform, here’s a link to the fundraiser … https://www.facebook.com/donate/255607943084820/ … Thank you! The facebook birthday fundraiser is over, but you can always donate directly to Chromosome 18, making the donation in Lillian’s name. Go here for that … https://chromosome18.salsalabs.org/donate/index.html

I can also send an email to someone at the Research Society with this question, and receive an answer back within 24 to 48 hours (usually faster) … “I’m watching the Gene Dosage Map #1 Youtube video on the website. I’m trying to find the exact molecular coordinates for Lillian’s deletion. Was that something that was determined as being a part of the study?” Pretty amazing, huh? I’m headed to bed now. I’m tired!

September 15 2021

Only one day late! 2016 was a really fun year, and I’m way behind on doing something with the photos. Turned out great!

Link to see the entire photo book … https://www.mixbook.com/photo-books/interests/blank-canvas-25676443?vk=2vBIYhVdDx9KCtsG76Ss

Ornamental Grasses with Berry Bushes and Clear Skies

August 31 2021

Grateful I went for a walk yesterday morning, as it looks to be a no go today (due to the air quality). It was all about ornamental grasses and berry bushes.

September 9 2021

Look at that beautiful sky! It is such a blessing to finally have clear skies and fresh air after weeks of smoke. I love you Mother Nature. You are simply THE BEST!

Throwback Post: Thomas and Camilla August 2013 Date Day

**THROWBACK POST**

August 31 2013:

Date day with Thomas!!! First stop … FOOD … YUM!

Second stop on the Camilla n Thomas date day! Was just going to return books but Mr. T wanted this to be stop number 2! Okay with me! I love this place!

Next stop on the Camilla n Thomas date day … Window shopping. He loves looking at Legos! He asks, “What’s this?” …. That’s a pay phone honey. “What’s it for?”

Lion in a Cat Body Followed by The Colony

September 9 2021

Just back from volunteering at the Humane Society. Check out the face of the first cat. I just could not stop looking at her, and thinking that is a freakin’ lion in a cats body! It felt like she wanted to rip our heads off! 😂🤣😂 To be fair, she has reason to look stern, as she is just there temporarily as part of the fire evacuations. (Editing to add: She is NOT available for adoption. She is just there temporarily due to fire evacuations.)

Thomas and I both wanted to bring home the cat in the last three photos. He was a sweetheart, just having arrived yesterday. He won’t be there long.

September 9 2021

Thomas loves this little theater, and was excited to see a play after not having been for well over a year.

First Day of School for Thomas With a Mindful Book

September 7 2021

Thomas’s first day of school photo. 🤣🤣😂 He started on September 1st. He’s also still taking piano lessons, and making great progress. Go Thomas!! xoxo (He’s about halfway through 10th grade).

September 9 2021

Checking the library accounts to see what’s due, and saw that Thomas has this book on hold. I don’t know why this brought the tears flowing. I just kept thinking after 10+ years of me deep diving into mindfulness and meditation, openly sharing with Thomas and Lillian (and with Thomas mocking/arguing with me about some of it), he’s researching it on his own. My heart is overflowing.

Harder Than It Looks With Shang-Chi and Vegan Pizza

September 1 2021

Finally got the corn hole bags. Definitely harder than it looks!

September 2 2021

New Marvel Movie = Dinner and a movie with Thomas. Vegan, gluten-free pizza from Noble Pie Parlor and then Shang-Chi and the Legend of the Ten Rings. The smoke cleared enough to walk to dinner and the movie. Bonus: It was still clear when we got home; which meant I finally got to have a swim. Great night!