Top 10 Digital Diary Entries for 2019

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Top 10 Digital Diary Entries With the Most Views for 2019

  1. Movie Night: Castle in the Sky
  2. Movie Night: Mary and the Witch’s Flower
  3. Asking for Help and Please and Thank YOU – Chromosome 18 Family Conference
  4. Buy Me a Coffee – Thank YOU
  5. Movie Night: The Incredible Hulk
  6. The Wild and Crazy Journey to the 2019 Chromosome 18 Family Conference in Colorado Springs 
  7. Lillian Darnell Senior Graduation Photographs and Online Celebration
  8. When I Know It Is Time for a Lillian Break
  9. Stepping Into Doing for Self
  10. Fundraising for the 2019 Chromosome 18 Conference – Lillian and Breathe In and Breathe Out and Feel It by Camilla Downs

Thomas says, “Have a good year.”

Lillian says, “Happy New Year and Hope you Have a good start to the decade!”

Camilla says, “May we all be loved unconditionally and learn to love one another unconditionally.”

And so it is … xoxo

Walks of Love With a Wild Sunset While Being Hot and Humid

August 15 2020

After dinner walk with Lillian last Thursday. Love these walks.

August 16 2020

Wild sunset last night. Sounds like it was mostly due to a raging fire in northern California.

August 18 2020

Morning walk. Whew! Humid and hot. The rain yesterday afternoon was refreshing. Needed more though.

Movie Night: A Wrinkle in Time

August 15 2020

Team TLC Movie Night – Lillian’s choice: “A Wrinkle in Time” (2018 version)

Lillian says, “Good, amazing, liked the music, and my favorite character is Meg.”

I say, “It was okay. It’s been a while since I’ve seen the 2003 version, yet, I think I like that one better. It seemed to have more depth. I liked the actors and actresses in this one, though.”

Thomas says, “It was alright. Like the 2003 version better.”

Stay at Home Vacation – The Second Week

August 15 2020

I took a break from blogging and social media for two weeks, July 26, 2020 – August 9, 2020.

I was moved to share my thoughts and what happened for me during the first week (posted previously).
The second week went much smoother (August 2 – August 9, 2020). After taking the time to write about my experiences with the previous post, I was able to go with the flow better.

I began the week by giving Lillian a haircut. Thanks to our friend and hairdresser, Kathy, for finding the best “how to” video for me and for giving me tips. I think I did a good job as there was no meltdown afterwards and Lillian seemed happy with it, and still does.

I received a book that …..

The Second Week – Stay at Home Vacation and Social Media Break

Sincere and Sensitive Ode to Life – Words of Alchemy

August 9 2020

Thank you to the miramichi reader for publishing Bill’s glowing review of Words of Alchemy! Deeply appreciated!

“Camilla Downs is a powerhouse – a one-person publishing house, selfless promoter of fellow authors, bestseller, blogger, photographer, and mom – the order of which is not prioritized. I met Camilla through online authors’ networks. We swapped books, as you do. And I immediately fell for her story – relatable, inspiring – facing challenges, overcoming obstacles, and being a role model. In other words, a good person. A person who, among other things, fuels her creativity and capacity to give by immersing herself into landscapes – communing with the outdoors, shooting photos, and writing about all of it.

Words of Alchemy is her compilation of free verse poetry touching on these issues – a sincere and sensitive ode to life and to nature. Divided into alchemical sections – experience, perspective, lessons and growth – we take a seat next to our author for the Alchemy of Healing.

In Words of Alchemy, author Camilla Downs relays her story – powerfully personal and enlightening. Her words reflect a recognition of challenges and rewards, the natural world she is mindfully part of, consciously present, and admirably, ensuring she shares it with all of us.” – Bill Arnott

Go here to read the full review …

Words of Alchemy by Camilla Downs

Throwback Post: Major Meltdown

**THROWBACK POST**

December 6 2013:

Sweet Lillian had a major melt down the other morning. Oh my word! I realize how much Thomas is looking to me to see how I respond and how to respond when she’s lost it. There is no speaking to her. One must wait until she has calmed. As she was in her room trying to get calm, I explained to Thomas that she is going through puberty on top of having a decreased ability to control and handle her response when things don’t go as she wants them to … due to her chromosome abnormality. At times it is difficult for me to control my response!

What seems to be working during this phase is to flood my thoughts and heart with love and compassion and respond softly. This does not mean I do not respond when Lillian blames me and Thomas for how she chooses to react. I gently let her know that absolutely no one controls what she says and does but her. I give her suggestions like taking deep breaths, counting, going to her room, reading a book, changing what she’s thinking about, drinking some water.

Thomas has a great deal of anxiety when Lillian is unhappy or having a melt down. I attempt to show him by my reaction that we want to not let our emotions/attitude be controlled by other people and their emotions. I explain that I know it’s difficult at times and that if we are at least aware of this, then we can be more helpful by focusing on a solution when needed. Otherwise, Lillian has had great days all this week! Love and hugs y’all! xoxo

For years I have been making a shift to more mindful living. By no means do I have this perfected and there are times when I’m less than happy with my chosen response! However, when I do offer an “icky” response, I don’t beat myself up about it. I take note of it, release it and move on …

I sometimes over react too. I forgive myself, apologize to others and release it. We know that anything we say in anger is not coming from our true selves. Our true self only knows love and compassion. Oceans of love and hugs to all y’all!! xoxo

Honestly, there are times I would like to stick my head in the sand and pretend I don’t have kids …. And then, in the thick of the dramatic moment and in times of calm, I look deep into Lillian’s or Thomas’s eyes and we truly “see” one another. We each know that there’s no need to play games or “do” drama …. that’s not who we truly are …

2015 update:

It’s been 2 years since I posted this. It served as a good reminder when it popped up in memories. I’m still working on the blog post about the current journey with Ms. Lillian. I’d love to say that this got better. Yet, in fact it got worse (the melt downs became volatile last December 2014). We are making really good progress with psychotherapy (focused on mindfulness, recognizing emotions, and CBT).

Thomas does indeed still have anxiety when she has a meltdown turned explosion. Yet, he has learned the art of distraction. He tries his best using this method. Plus, he’s even used it on me! It’s been a journey of growth and learning. It’s been perfect and is happening exactly as it should be! Lillian has been the teacher that brought mindfulness into our life and that is a true blessing! Hugs to all y’all! xoxo


(Recent photo of Lillian, on one of our walks)

**September 2020 Update** 

I’m happy to write that things have gotten better! Lillian began using botanical oils in 2017, and once I got the dosage and timing figured out, it has helped tremendously. She still does have the occasional volatile melt down, but not nearly as often. I’m sure that maturity has helped a bit, too. Yet, still waiting for that to kick in a bit more.

Vegan Eats: Who Remembers Funyuns and Coconut Jerky

July 20 2020

Who remembers Funyuns? They were one of my favorite junk foods growing up. To me, these Vegan Rob’s Brussel Sprout Puffs taste like Funyuns. It absolutely doesn’t taste like Brussels sprout. Ha! I like all of the flavors, but this one is my favorite. Bonus: I like the ingredients, too!

August 15 2020

When you post about one of your vegan finds and a friend mails you bunches of said find! Plus, some yummy CBD tea. Thanks, Kimberly!!