Top 10 Digital Diary Entries for 2019

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Top 10 Digital Diary Entries With the Most Views for 2019

  1. Movie Night: Castle in the Sky
  2. Movie Night: Mary and the Witch’s Flower
  3. Asking for Help and Please and Thank YOU – Chromosome 18 Family Conference
  4. Buy Me a Coffee – Thank YOU
  5. Movie Night: The Incredible Hulk
  6. The Wild and Crazy Journey to the 2019 Chromosome 18 Family Conference in Colorado Springs 
  7. Lillian Darnell Senior Graduation Photographs and Online Celebration
  8. When I Know It Is Time for a Lillian Break
  9. Stepping Into Doing for Self
  10. Fundraising for the 2019 Chromosome 18 Conference – Lillian and Breathe In and Breathe Out and Feel It by Camilla Downs

Thomas says, “Have a good year.”

Lillian says, “Happy New Year and Hope you Have a good start to the decade!”

Camilla says, “May we all be loved unconditionally and learn to love one another unconditionally.”

And so it is … xoxo

Throwback Post: Opportunism and Birds and Holidays

**THROWBACK POST**

June 4 2013:

Thank you Wade A. Hodges for taking the “opportunity” to leave an Amazon review for “D iz for Different” … I deeply appreciate your friendship and the DIFFERENT perspective of your review!! “Opportunism is generally regarded as a derogatory term that refers to people who will do anything for themselves. They have no core values beyond promoting their own needs. They contribute nothing to society.

In fact, opportunism is a great art that has been studied and practiced by many. Opportunism is a belief system that is eminently positive and powerful. It is a philosophy that says every event occurs for a reason and that it is within your capacity to see this reason as positive. When you complain and rail against circumstances, you fall out of balance with the the natural state of things; you wish things were D-i-f-f-e-r-e-n-t. What Camilla has done is to embrace Different to the point that she sees it as an Opportunity to the point where it can be likened to a fire that consumes everything in its path – ALL cicrumstances become consumed in her mental heat and converted into O-p-p-o-r-t-u-n-i-t-i-e-s. Any man or woman who believes this cannot be hurt by anything or anyone. The age of the individual is NOT over – but needed now more than ever. Good Job Camilla and thanks for leaving a trail at a time when so many have come to rely on Hope as a Strategy for moving forward. Thanks for being You!”

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There they were 3 Little Birds sitting on the fence all in a row … I tried to get a picture, yet, they decided I didn’t need one! Just back from my walk … It’s gettin warm out there y’all!!

Bob Marley’s Three little birds ….

… and Bob Marley’s Don’t Worry, Be Happy …

__________________________________

Lillian is making a list of holidays that she wants to create. One of the holidays will be Lillian Day …. Thomas adds that on Lillian Day we will all speak Lillian Language! Now! That’s what I’m talkin bout! What an awesome little brother!

The Smell of Relief with Pasta Salad Followed by Chocolate Bliss

May 4 2020

The smell of freshly sliced English cucumber. Heavenly, swoon worthy.

May 5 2020

Those cucumbers yesterday were chopped and added to this giant bowl of pasta salad. I’m down to the soft, semi-soft food with these teeth.

Last night I stuck my phone halfway in my mouth and took a picture of just one offending tooth. Sent to the dentist this morning with a message that I’m running out of spots to chew food and I feel awful, and asked if I could get in before the 12th. Guess the picture and fact that I can barely eat did the trick. I’m going in tomorrow morning.

Don’t think I’ve ever been so excited to go to the dentist!!

May 9 2020

Coconut Bliss – Chocolate Hazelnut Decadence. My taste buds approve.

Found Poetry Hidden Within Mailed Books

April 14 2020 a;lsdkfj;lasdkjf

It was a great day to mail books! Thank goodness for these drive through postal drops. And …. thank you to those who are buying books and sharing about books.

May 6 2020

Creating more Found Poetry to hide within Words of Alchemy. Preparing to mail a book to a lovely winner in Massachusetts. Some of these still need a word or two trimmed. Found within books that were destined for the trash.

May 9 2020

Ready to be hidden within outgoing books.

Untamed – Putting Words to Our Wild

May 8 2020

A couple of weeks ago, I won this book. It just arrived!!! I’m SO EXCITED to read this one! Gorgeous cover too. Thank you, Christy!!!

I marked one page. Attaching a photo of it.

I am not a religious person, yet, this Walt Whitman quote has always been a powerful one for me. I grew up in the Deep South (of the U.S.), and have had to unlearn much that insults my soul and knowing. There’s much that permeates the culture due to beliefs, discounting the knowing of our hearts. On the flip side, there’s much I love about the culture, having grown up there, with my ancestors being from there.

I love this book, for being about the truth of having lost our spark, being numb to life, for standing up for not discounting what we feel from our knowing, for putting words to our wild, for declaring, “I am a goddamn cheetah!”

Star Crossed – Lovely Book

May 3 2020

Started reading this last night. Read for most of today until I’d read all 277 pages. Felt good to lounge and read a full book in nearly one sitting, reading most of it outside on the deck. It’s been a beautiful day.

Lovely book, too! There’s nothing like a story you don’t want to stop reading. This is one I bought to read before passing to Lillian and Thomas. It wasn’t in the library’s digital collection for checking out. First time I’ve bought a brand new book in a really long time, and also first time in many years I’ve been able to buy a brand new book.

Words of Alchemy – A Celebration of Family and Adaption

April 22 2020:

“Words of Alchemy is warm and personal, like being invited to sit on the author’s couch and listen to her talk to family and friends. Intimate and loving, these poems are a celebration of family, of friends, of life, of nature, and of adaptation.”  – Amazon Customer

Throwback Post: Parent’s Perspective With No Lunch

**THROWBACK POST**

May 30 2013:

Just finished speaking to Manal’s class of undergrad med students. Sharing a parent’s perspective regarding advocacy and inclusion. Loved it. Thanks tons for asking me Manal!!

May 30 2013:

Thank you to Frank C. Romano Jr of the The Romano Duo for saving the day this morning. I got halfway to driving Thomas and Lillian to school this morning and realized I forgot Lillian’s lunch and Thomas’ snack. Oops! I was headed to speak to Manal’s UNR class straight from T & L’s school. My fabulous step-daddy went to my house, got the lunch and snack and took up to the school for them! YAY! I’m so blessed to have The Romano Duo! Here’s some throwback pictures …. One on the top is from about 1993. One below that is about 1996 or 1997 and bottom one is 1998.

Movie Night: The Little Mermaid Live!

May 2 2020

Team TLC Movie Night – Lillian’s choice: “The Little Mermaid Live!”

Lillian says, “Good, musical, and my two favorite characters are the two Ariels (Auli’i Cravalho and Jodi Benson).”

I say, “I don’t think I’ve ever seen anything like this. I’ll be okay if it doesn’t happen again. I did like two of the songs, ‘Under the Sea’ and ‘Les Poissons’.”

Thomas sat this one out.