Boosting the Joy With Great Clouds and Orange Memories

September 27 2021

Walks soothe whatever ails, walks boost the joy, the love.

September 28 2021

Great clouds last night.

September 28 2021

Memories of four years of walks, climbing trees, throwing rocks and sticks in the water, playing in the snow, and many inspired poems. That was the walk this morning.

October 2 2021

Forgot to post these orange beauties, from a walk last week.

A walk with Lillian earlier in the week. It’s difficult to get her out of the house these days. Success!!

Birthday Celebrations for Lillian’s 20th Birthday

September 14 2021

We started the celebration this morning with opening gifts. Happy 20th Birthday to Lillian Darnell!!!! An iPad and case from me, The Romano Duo, Grandpa Robert, and herself (it was a team effort), a great new shower curtain and sparkly curtain rings from The Romano Duo, a photo book with 2016 photos (in the mail, on the way here) scissors, and a rainbow crystal from me, and a card from Thomas.

Join us and help Lillian celebrate her 20th birthday! I remember having dinner with the Miller family at the Colorado C18 Conference. Matt said that Team TLC would make a great reality TV show, or something like that. Proof of that right near the beginning of Lillian’s live birthday event, via Thomas and an event he was supposed to be attending.

After the gifts, it was pool time! Happy 20th birthday Lillian Darnell!

After pool time, it was back to our place for cupcakes and cheesecake. 🎉❤️😋😋😋❤️🎉 Always lots of photos of blowing out the candles as it wasn’t until 2012 (I think) that Lillian was able to blow out candles.

We ended the Lillian Darnell 20th birthday celebrations with favorite fries to go along with dinner, a drive for a favorite dessert, and then a night time walk.

Thought I’d share something tangible to show the importance of the research that the Chromosome 18 Research Society performs. Lillian is one of those pink bars in the first image. We don’t just get general information having to do with Lillian’s deletion, we get specific information because of the research performed, and the families who have donated blood to be studied, completed questionnaires, and the sharing of information.

Lillian likes to have a birthday fundraiser for our beloved C18 every year. If you feel moved to help further the research they perform, here’s a link to the fundraiser … … Thank you! The facebook birthday fundraiser is over, but you can always donate directly to Chromosome 18, making the donation in Lillian’s name. Go here for that …

I can also send an email to someone at the Research Society with this question, and receive an answer back within 24 to 48 hours (usually faster) … “I’m watching the Gene Dosage Map #1 Youtube video on the website. I’m trying to find the exact molecular coordinates for Lillian’s deletion. Was that something that was determined as being a part of the study?” Pretty amazing, huh? I’m headed to bed now. I’m tired!

September 15 2021

Only one day late! 2016 was a really fun year, and I’m way behind on doing something with the photos. Turned out great!

Link to see the entire photo book …

Throwback Post: A Little Adventure


August 31 2014:

‘Twas time for a little adventure so we went all the way to California this afternoon! Boca Reservoir. First time visiting there for all of us. Collected bunches of beautiful rocks for painting.

Got all wild n crazy and went across the state line! So much fun collecting rocks, taking pictures, throwing rocks in the water, and taking Rosey for a spin in the dirt! Plus, we got some cool rocks for painting now!

Throwback Post: Registering with Birthday Invitations and Margaritas


September 4 2014:

Registration Team!


September 4 2012:

Just finished presenting at Sierra Regional Center … Love an engaged group of people!!! Wahoo!!


September 4 2010:

Took kiddos 2 Great Basin Brewing Co for dinner. Yummy 4 me & them. Jackpot porter is da bomb!!


September 4 2010:

Lillian’s so proud of her Birthday Invitations, thought I’d share with y’all! Any of my local friends, please feel free to stop by and say “Hey”!


September 4 2009:

Just had the awesome Frank deliver a Yummy Margarita! We’re having taco’s tonight! Aaaaarrrrrriiiibbbbbaaa! Here’s to a great weekend for all my FB Friends!

Throwback Post: Finding Treasures and Runners Up


May 31 2015:

Y’all know how much I like to purge!! Let the 2015 purge begin! Not only to get rid of not needed stuff; but finding treasures like this. Made my eyes sweat … xoxo

It was library day and Thomas and Lillian got their certificates for runners up in the bookmark contest! Wahoo!!

Runners Up May 31 2015

Jack’s Adventure of Magic – Lillian Darnell

August 5 2021

New story from Lillian Darnell …

Once there was a boy named Jack who lived with his mystical family. Jack loved his mystical family but he wished he could have mythical powers like the rest of his family. He felt jealous of his family so one day, he headed off to Magical Unicorn Island.

He stopped at an island called Apple of Music to visit some family relatives. His family relatives said, “Get some rest and watch out for flying manta rays.” And Jack was very confused, about what his relatives said.

But he got some rest for the next day anyways. When Jack woke up the next morning, he was surprised that no one was on the island except for a few little creatures who were called glitter critters.
Jack wondered if he could test out his mythical powers on the glitter critters. He decided to try. So he began to focus and to his surprise, his mythical power made the glitter critter glow and fly for a bit before the power faded into the midst of the magical sun ….

Jack’s Adventure of Magic


Lillian and Camilla July 2021 Date Day

July 20 2021

Lillian and Camilla July 2021 Date Day

Lillian has never been a fan of traditional pizza. I’ve always made her pizza using a slice of gluten free bread. She does not like sauce. So it’s usually just cheese, olives, pepperoni and salami.

Today she wanted Blaze Pizza, as you can build your own, and they have gluten-free crusts. Still no sauce, but she was adventurous with all the toppings she chose. I cannot believe she ate this pizza! Go Lillian. They have vegan options, too. So I was able to get one for me to have for dinner. 😋😋😋

After pizza we stopped for choosing a macaroon for dessert. Then to window shop in a couple of stores. Lillian really liked the “it’s ok” sticker.