Zoom Dancing With a Secret Service Agent and a Rose Fairy Princess

October 31 2020

Thank you Michelle Dvorak for hosting the The Chromosome 18 Registry & Research Society Halloween dance party!! What fun!! Everyone looked amazing and fun in their costumes!! 🎃👻🎃👻🎃👻🎃

October 31 2020

First time over to The Romano Duo’s since December. A whole pot of vegan chili just for me … with a virgin Bloody Mary!! 🧡🖤🎃👻

We had a fun time getting to visit The Romano Duo at their place. All three of us haven’t been since Last December.

We ate dinner outside and then I took Thomas and Lillian around the neighborhood for trick or treating. It was great to see how creative people were with safely handing out candy. Thomas was a secret service agent (who forgot to tuck in his shirt until after photos … Oops!). Lillian was once again The Rose Fairy Princess. 👻🎃💀

Thomas and Lillian also got a surprise visit from their dad who they’ve not seen since 2014. He phoned as we were driving to The Romano Duo’s place and said he’d be driving through town in about an hour. He visited for about 20 minutes before continuing on. 🤷🏼‍♀️

Home now. Time for Thomas and I to watch Arsenic & Old Lace. ☠️☠️☠️

A New Phone After Eleven Years – Lillian Darnell

October 24 2020

It’s been 11 years since she had a brand new phone. Enjoy the new phone, Lillian!!! Love the sparkly red glitter cover she chose.

Thank you to all of the amazing friends and family who donated their old iPhones to us throughout these years. We appreciate your kindness more than can be expressed. Thomas and I are still on donated phones. I use things til they die or fall apart!! Ha!!

Lillian Darnell – First Time Voting

October 23 2020

It is done. I normally wouldn’t take so many pictures. Yet, this was Lillian’s first time. She can’t/won’t wear a mask so she didn’t get to walk it in to the official ballot box at Raleys – took me about 2 minutes. 💙🌊💙

When Lillian reluctantly agreed to register to vote last year while we were getting her ID, she had no intention of voting. I suggested she might change her mind, and this way she’d be ready, just in case. I asked her last night why she changed her mind, deciding to vote. She said, “The United States needs me to vote.” She researched the candidates and the questions for hours. Congratulations, Lillian Darnell!!! 🏳️‍🌈🏳️‍🌈🏳️‍🌈

Throwback Post: One Blood Test, One Phone Call, One Moment in Time

**THROWBACK POST**

November 3 2015:

The article I contributed to Interaction, which is a multidisciplinary journal for the Australian Institute On Intellectual Disability, has just been published. Here’s a brief description of what and why I was asked to contribute: “looking at creativity in how we work and interact with people with intellectual disability. The other theme I am interested in exploring is empathy and how this “works” within our relationship building within intellectual disability”

Excerpt from the article: “One blood test, one phone call, one moment in time, drastically changed the direction of my life forever. I know more about genetics, chromosomes, DNA, motor skills, verbal skills, and now emotional and behavioural issues than I ever thought I would need or want to know. ……. I thought I had life pretty much planned at that point and for a while this brief phone call seemed to have caused my life to break apart like a melting iceberg with pieces scattering here and there. Looking back now, all that was brought into my life, all that occurred, all that began, and all that ended were meant to happen for my own growth and enlightenment. An enlightenment I feel spreads far beyond myself and my family as I believe we are all connected.”

My article is on page 30. However, the entire journal is excellent! You’ll need a chunk of time to read it as it’s short story length at around 4,000 words. I encourage anyone who is moved to subscribe to this wonderful publication! Enjoy and please feel free to share and/or forward to anyone you think would benefit! With oceans of love … xoxo

Click here to read the digital version of the journal. The access code is: K9HqOa

My article is on page 30. However, the entire journal is excellent! You’ll need a chunk of time to read it as it’s short story length at around 4,000 words.

I encourage anyone who is moved to subscribe to this wonderful publication to do so! Enjoy and please feel free to share and/or forward to anyone you think would benefit! With oceans of love … xoxo

PDF version: Interaction Volume 28 Issue 4

Lillian and Camilla October 2020 Date Day

October 10 2020

Yesterday was the Lillian and Camilla October 2020 Date Day

First stop: I picked up an order of fries for Lillian and we had a great lunch at home.

Next stop: A trip to Wilbur May Arboretum. So much gorgeousness = tons of photos!

Last stop: Lillian picked out her pumpkin and chose a sugar cookie with red icing, in the shape of an apple.

Official Ballots Have Arrived – Lillian’s First Time Voting

October 8 2020

Finally arrived in yesterday’s mail. This will be Lillian’s first time voting since turning 18! When she and I were getting her ID, she wasn’t much interested in adding on the form to register to vote. I suggested she do it then, so when she was ready to vote, everything would be all set, explaining you couldn’t wait until the last minute. Photos to follow when we deposit them in an official ballot box.

Congratulations to Lillian

September 19 2020

I’m finished. I’m done! After eight years, Lillian will be fully taking over an aspect of her self care. We have been working the past seven months on her taking it over fully. I did it for the last time about 30 minutes ago! Hallelujah!! Congratulations to Lillian!! Photo from our July 2020 Date day.