**THROWBACK POST**
April 2 2016:
She said, “I updated the “about” section on my website. You wanna go look at it?” What I read made my eyes sweat. This incredible human who came into this world at only 4 pounds and whose quality of life at 3 years old was not given high hopes, continues to surprise, delight, and inspire me. Here’s the link for those wanting a dose of inspiration …
**THROWBACK POST**
June 28 2012:
How do you tell someone how to spell “disguised” when you can’t understand what they are asking you to spell?? Well, Lillian and I figured it out!! Got my Sherlock Holmes hat on today … Where’s my magnifying glass?
**THROWBACK POST**
June 28 2016:
She’s still at it …. and she’s good! Another from Lillian … xoxo
“When you or someone else is calm, you will feel a lot better. You will be more confident and relaxed. You will be happy, mindful, grateful, thankful and joyful.
Take a moment to read this quote. If you want to, share it with family, friends, and relatives.
“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; you are the one who gets burned.” – Buddha … ”
**THROWBACK POST**
July 9 2015
An experience and opportunity for growth and learning presented itself yesterday with the amazing Lillian. She had a meltdown with a volcanic like eruption as we left the grocery store. I ended up having to pull over at the highway entrance ramp and get out of the car for a moment. I took some deep breaths, prayed to see this differently, and looked down at the ground. This was shining up at me. After that, Lillian chose to use one of the mindfulness techniques we’ve been learning. She got out, chose a rock, held it in her hands and focused on it. Yesterday I was reminded not to let the lower self take over, even if the other person has. Always respond with love. Love is THE answer … May you choose LOVE today …. xoxo … I am in the middle of writing a blog post about the journey with Lillian since this past December. Will share when it is complete and I’m thinking it will be in third person again like the last post …
**THROWBACK POST**
June 28 2012:
Little something from Lillian this afternoon y’all …. The Diary of a Young Lady (My Life)
**THROWBACK POST**
July 6 2014:
Team TLC and C18 friends at the beach! I ♡ these people! So much acceptance!
**THROWBACK POST**
October 1 2013:
Gosh darn silly big toe … Went and got itself infected! At least it didn’t steal her smile …. We still plan on infecting people with our smiles! There’s no cure for that!
**THROWBACK POST**
September 29 2013:
Cleaning my email inbox and found this email from Lillian from 2011. I asked her if I could share with y’all and she said “Yes”! So sweet! xoxo
“Patty’s Love and Lillian’s Style, Camilla’s fun, Thomas’s Coolness and Frank’s funniness
Once upon a time there was someone named Patty’s Love was sweet but one day she became sick and Romano’s could not be kind and gentle without her, plus 1 day the Romano’s chimed the butterfly chimes then came up with a idea so they made her lunch and Patty’s Love was better.”
**THROWBACK POST**
October 14 2011:
Just got this in my email inbox . . . Hope y’all enjoy it!
Halloween Poem
Black cats cross the street
Black bats fly across the street
White ghost scare the people
Striped candy corn gets eaten
People wear famous costumes
Happy jack-o-lanterns watch as they smile.
Happy Halloween
Lillian Darnell
Fairy Princess
December 24 2023
I always love the Chromosome 18 card. Check out the quote on the back of this year’s card. ❤️💚❤️
“The journey from Lillian being diagnosed at 3-years-old to where we are now at 22-years-old would have been immeasurably more difficult and lonely if not for The Chromosome 18 Registry & Research Society. The Registry has blessed our entire family with critical information, research updates, hope, fun, friendships, and the family we never knew we needed.”
