Tag Archives: 18p-

Throwback Post: Weather Fairy Lillian

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**THROWBACK POST**

December 6 2010:

Just received my weather report for today from Weather Fairy Lillian …

Fog Alert … Complete with instructions on how to drive in the fog and to allow extra time when traveling …

Thank YOU Team Member L!!! Seriously y’all!! She has it set up so she receives weather alerts. I hear her darn phone going off at all hours with those alerts!!

**July 2020 Update** – Lillian is still obsessed with the weather. Still shares the weather report with me nearly every day, for the next month.

Where Would You Fly – Coming Soon as an Ebook

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April 4 2020

Exciting news!! Lillian Darnell’s book, Where Would You Fly, is being converted to an ebook. Finally!! We’ll let everyone know when it’s finished. We’ll have a special for free or low cost, and perhaps maybe a mini-launch. This opens it up to a much wider audience. YAY!!

Only One Item Left

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April 3 2020:

Another one checked off the list! New bank account set up for Lillian’s SSI! Finished at 5:56 pm today. The entire process has taken about a month, to month and a half, due to needing paperwork from SS.

This last part has taken about a week and a half as we did it through email, text, phone, and DocuSign. Yet, it’s done!! Only one item left now for the Lillian-Turned-18-Paperwork-And-To-Do-List-Palooza … Creating an ABLE account.

Overflowing With Gratitude – Loving Kindness in Action Followed by Quaking and Rolling

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March 20 2020

Overflowing with gratitude for a beautiful human who made a grocery store run for us. I went grocery shopping last week BEFORE the craziness began, and it was just a regular weekly trip. So, we were running out of things.

Except for walks, we’ve not left the house since Saturday. Lillian has a weak immune system so best to stay home. Incredibly grateful for your kindness, Constance Aguilar!!! Team TLC thanks you!!!

And … how about an earthquake to go along with dinner tonight? Sure …

It was big for this area (5.0), but, I don’t think there was damage anywhere. It’s just the most unsettling feeling. It always takes me a bit to get my equilibrium settled. Lillian felt it the most, Thomas didn’t feel a dam* thing (HA!), and I felt it, but what got my attention was the loud noise the 3 big windows in the living room made! Hugs to you!! xoxo

March 27 2020

Thank you Toilet Paper Faeries!! Who knew there were faeries for TP? Well, there are and we are grateful to all of you. We’re also good with toilet paper now. Deeply grateful and incredibly blessed by your thoughtfulness and kindness. 🙏♥️♥️♥️🙏 A photo of the sky as I chatted with the faeries.

**Update April 4, 2020: We’ve had another trip to Trader Joe’s by different friend, in addition to using Insta Cart. We are incredibly thankful and deeply blessed.

Lisa and the Huge Storm by Lillian Darnell

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March 17 2020

New story from Lillian …

Once many years ago, there lived a girl whose name was Lisa. Lisa lived with her parents in a huge castle. Her parents were Leah and Andy. Lisa loved having fun. They lived happily in the castle.

But one day, a huge ….

https://lilliandarnell.com/2020/03/09/lisa-and-the-huge-storm/?fbclid=IwAR1HYEa1YyQtE4INbjx7yMfFJB0odhESCa09T0XLPH9aEGWcfQTs3QRq7RE

Can We Be Done Now

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March 9 2020

Can we be done now? Just back from having the POA for health decisions notarized. Just two items remaining. New bank account for SSI and then an ABLE account. Yay!!! Done!!!

Next up, after a rest from paperwork, …. trust(s) and adjusting my life insurance. So much paperwork, so many details.

A Lovely and Magical Book – Curled Up With a Good Book – Where Would You Fly

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March 6 2020

Thank you to Michelle of Curled Up With a Good Book for the lovely review of Lillian’s book … We are deeply grateful!! xoxo

“This is a lovely and magical book, full of wonderful short stories where you can let your imagination drift and enter the unique world of Lillian. A collection of stories and poems written by Lillian throughout her life, will transport you to new enchanted and magical worlds, full of colour, rainbows and happy endings. The photos and drawings of Lillian are an added beautiful touch.

Personally my favourite bit about this book was the section on Emotions and Feelings. Camilla (Lillian’s Mum) explains at the beginning of the book that this section was born from them working together to understand and process emotions and from that, Lillian produced “Emotions with Animals”. There is a lot both children and adults alike can learn from this section and it really resonated with me, and how I try to live my life. Each mini story talks about a different animal and emotion, for example ‘Calm Monarch Butterflies’ and then there is Lillian’s summary of ‘How To’ (e.g How To Be Calm). There is some fantastic advice in this, and every single one of us could learn something!

Throughout the book there is a mix of short stories (fairies & princesses, legends, tales & adventures), poems and songs – each with their own unique tale to tell. This book is adorable and inspirational, and if nothing else will make you smile. We all love a wonderful and happy story, and Lillian certainly delivers this along with plenty of inspiration and a touch of magic ….”

Book Review: Where Would You Fly? & Other Magical Stories by Lillian Darnell

For Emarie Peters – We Are Family

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February 29 2020

For Emarie … Wearing purple, red, and blue … blowing bubbles ….We love our Chromosome 18 family, we love you Emarie, we love you Peters family. I was lucky enough to catch a heart shaped bubble!! Perfect!! Strong winds made it a short celebration for you. Yet, that is perfect. As you were one strong human. Much power was packed within your tiny body. 💜💜💜💙💙💙 #WeAreFamily 💙💙💙💜💜💜

Photos of Emarie and her mom and dad from the Different iz Good archives …

 

Nearly Done with the Lillian Turned 18 Buried in Paperwork Palooza

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February 19 2020:

Another one down, one more to go for the Lillian-turned-18-buried-in-paperwork-palooza. Power of Attorney for financial matters signed and notarized this afternoon. Last one is the Durable Power of Attorney for Health Care Decisions and End of Life Decisions. I need to discuss this one with Lillian more to make sure she understands it all. And, just a fun photo from happier times for us … Book signing for Lillian in June 2019 at Barnes & Noble.

Feelings of Relief and Winning at Life

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February 12 2020

Paperwork (loads of it) turned in for Lillian’s Age 18 Redetermination for SSI … Another one done! Only had to wait about 2 hours just to turn in paperwork (I wanted a date stamp on it as I’ve had things get “lost” before.) Wahooo!!! A beautiful photo to match the feeling of relief … Ahhhhh ….

Winning at life! Just took a really long, hot shower, turned the water off, and thought, “Um, I don’t think you actually used any soap, girl! You just stood there under the running water!” Winning = I realized it BEFORE I dried off and got out! Wahooo! 😜😂