Zoom Dancing With a Secret Service Agent and a Rose Fairy Princess

October 31 2020

Thank you Michelle Dvorak for hosting the The Chromosome 18 Registry & Research Society Halloween dance party!! What fun!! Everyone looked amazing and fun in their costumes!! 🎃👻🎃👻🎃👻🎃

October 31 2020

First time over to The Romano Duo’s since December. A whole pot of vegan chili just for me … with a virgin Bloody Mary!! 🧡🖤🎃👻

We had a fun time getting to visit The Romano Duo at their place. All three of us haven’t been since Last December.

We ate dinner outside and then I took Thomas and Lillian around the neighborhood for trick or treating. It was great to see how creative people were with safely handing out candy. Thomas was a secret service agent (who forgot to tuck in his shirt until after photos … Oops!). Lillian was once again The Rose Fairy Princess. 👻🎃💀

Thomas and Lillian also got a surprise visit from their dad who they’ve not seen since 2014. He phoned as we were driving to The Romano Duo’s place and said he’d be driving through town in about an hour. He visited for about 20 minutes before continuing on. 🤷🏼‍♀️

Home now. Time for Thomas and I to watch Arsenic & Old Lace. ☠️☠️☠️

Throwback Post: One Blood Test, One Phone Call, One Moment in Time

**THROWBACK POST**

November 3 2015:

The article I contributed to Interaction, which is a multidisciplinary journal for the Australian Institute On Intellectual Disability, has just been published. Here’s a brief description of what and why I was asked to contribute: “looking at creativity in how we work and interact with people with intellectual disability. The other theme I am interested in exploring is empathy and how this “works” within our relationship building within intellectual disability”

Excerpt from the article: “One blood test, one phone call, one moment in time, drastically changed the direction of my life forever. I know more about genetics, chromosomes, DNA, motor skills, verbal skills, and now emotional and behavioural issues than I ever thought I would need or want to know. ……. I thought I had life pretty much planned at that point and for a while this brief phone call seemed to have caused my life to break apart like a melting iceberg with pieces scattering here and there. Looking back now, all that was brought into my life, all that occurred, all that began, and all that ended were meant to happen for my own growth and enlightenment. An enlightenment I feel spreads far beyond myself and my family as I believe we are all connected.”

My article is on page 30. However, the entire journal is excellent! You’ll need a chunk of time to read it as it’s short story length at around 4,000 words. I encourage anyone who is moved to subscribe to this wonderful publication! Enjoy and please feel free to share and/or forward to anyone you think would benefit! With oceans of love … xoxo

Click here to read the digital version of the journal. The access code is: K9HqOa

My article is on page 30. However, the entire journal is excellent! You’ll need a chunk of time to read it as it’s short story length at around 4,000 words.

I encourage anyone who is moved to subscribe to this wonderful publication to do so! Enjoy and please feel free to share and/or forward to anyone you think would benefit! With oceans of love … xoxo

PDF version: Interaction Volume 28 Issue 4

A Lovely and Magical Book – Curled Up With a Good Book – Where Would You Fly

March 6 2020

Thank you to Michelle of Curled Up With a Good Book for the lovely review of Lillian’s book … We are deeply grateful!! xoxo

“This is a lovely and magical book, full of wonderful short stories where you can let your imagination drift and enter the unique world of Lillian. A collection of stories and poems written by Lillian throughout her life, will transport you to new enchanted and magical worlds, full of colour, rainbows and happy endings. The photos and drawings of Lillian are an added beautiful touch.

Personally my favourite bit about this book was the section on Emotions and Feelings. Camilla (Lillian’s Mum) explains at the beginning of the book that this section was born from them working together to understand and process emotions and from that, Lillian produced “Emotions with Animals”. There is a lot both children and adults alike can learn from this section and it really resonated with me, and how I try to live my life. Each mini story talks about a different animal and emotion, for example ‘Calm Monarch Butterflies’ and then there is Lillian’s summary of ‘How To’ (e.g How To Be Calm). There is some fantastic advice in this, and every single one of us could learn something!

Throughout the book there is a mix of short stories (fairies & princesses, legends, tales & adventures), poems and songs – each with their own unique tale to tell. This book is adorable and inspirational, and if nothing else will make you smile. We all love a wonderful and happy story, and Lillian certainly delivers this along with plenty of inspiration and a touch of magic ….”

Book Review: Where Would You Fly? & Other Magical Stories by Lillian Darnell

For Emarie Peters – We Are Family

February 29 2020

For Emarie … Wearing purple, red, and blue … blowing bubbles ….We love our Chromosome 18 family, we love you Emarie, we love you Peters family. I was lucky enough to catch a heart shaped bubble!! Perfect!! Strong winds made it a short celebration for you. Yet, that is perfect. As you were one strong human. Much power was packed within your tiny body. 💜💜💜💙💙💙 #WeAreFamily 💙💙💙💜💜💜

Photos of Emarie and her mom and dad from the Different iz Good archives …

 

Lillian Darnell You Did It – Keep Believing

September 8 2019:

I am way, way late in creating this for Lillian. I had wanted to write something special, paired with a photo collage; and finally took the time to focus on it. She has seen and read this, likes it, and approves of sharing! 💜🎉

Dear Lillian,

I am proud of you.
I love you.

You did it
You continue to do it.

You shine that bright sparkling smile
Upon all who’s eyes you meet.

You did it!
From high school
You have Graduated!

You, we, did it different.
And, that is okay.
In fact, it is perfect for we.

Not everyone is meant
to do life as it has always been done.

This is what creates
the rich and vibrant soup
of human life.

There are those who follow the path
of doing it different.
There are those who follow the path
of the way it’s always been done.
No path is better than the other.
Whether the same path as another is
followed or a different path is followed.

The paths are equal.
Yet the benefit to humanity
is vast in the variety
and depth of ideas,
the dynamic expressions,
that bloom when each of us
travels the path of our hearts.

You continue each day
in the face of chronic pain,
communication challenges,
depth perception and balance difficulties,
fine and gross motor awkwardness,
emotional struggles,
indecision worries,

You continue each day
with that bright sparkling smile.

You continue each day
Knowing what you want in this life
Knowing what you want to achieve
Knowing how you want to live

You continue each day
meeting all that life has put forth for you.

I honor you.
I honor and support the fierce
warrior within you who
knows her heart’s desire.

I honor you.
I am proud of you.
I love you.

YOU DID IT!

Happy Graduation to YOU!!

Love,
Camilla
Mom

Peaceful Summer by Lillian Darnell – Fundraising

Peaceful Summer by Lillian Darnell …. There’s still time to participate in Lillian’s fundraiser and get a custom poem created especially for you .. This one was created for a lovely supporter in Tasmania.

Here’s the beautiful comment from Patricia once she received her custom poem …

Dear Camilla and Lillian

Thank you! The poem is everything I hoped for and more, and paints a brilliant word-picture. I look forward v. much to seeing the image, and know it, too, will be special.

As we approach Winter Solstice here in the Southern Hemisphere, it’s particularly lovely to be reminded of the pleasures and promise of summer.

Peace.
Patricia

The donation amount is completely up to you. Go here to learn why Lillian is fundraising and also if you’d like a custom poem of your own.

https://lilliandarnell.com/2019/03/27/fundraising-for-the-2019-chromosome-18-family-conference-poem-creativity/

 

 

Graduation Day Book Signing for Lillian Darnell – Where Would You Fly

June 1 2019:

Book signing for Lillian today!!! Fifteen books signed! 🎉🎉🎉The Romano Duo came by to deliver a graduation gift to Lillian!

Rainbow of Emotions Abstract Art Makes Way to California

May 1 2019:

Today was a beautiful day to mail a “Rainbow of Emotions” print!! Thank you Steve for supporting Lillian’s fundraiser! 💗🎉🎉🎉💗

Would you like to help support Lillian’s fundraiser? Go here to learn more … 2019 Chromosome 18 Conference

Not Enough Left of This One

April 11 2019:

She must have 3 bookmarks marking her spot. And they must be the same 3 bookmarks. No substitutions should one of the three get “lost”. And. She uses them until they cannot be taped and repaired any more!

She says, “I don’t think there’s enough left of this one to use as a bookmark.” Hallelujah!!! After years one of the 3 gets replaced!! 🤣🤪😂💙📚…. This post has been approved by Lillian.