Throwback Post: Sunset With Wind Chimes and Classes in the Bubble Bath


July 28 2014:

Sunset at Little Washoe Lake … June 2014 …. So magnificently beautiful!! ♡


Just finished a connect the dot party with Thomas and Lillian on the veranda. Now there’s a storm moving in ….. Cool!!! Can’t wait for dinner on the veranda tonight!


July 28 2011:

It’s official!! I’ve finally completed Lillian’s enrollment in her new school for 5th grade!! She starts August 29th! I’ve gone through 2 hours of orientation to be her Learning Coach and I’m still not done – probably another hour remaining. Another GREAT adventure y’all . . .

We had a little Welcome Home Mama and Lillian party tonight – Pizza, Doing our own thang, Bubble Bath for Team Member T and watching a short movie!! Watch out cause this Mama gives you a bubble bath when you want a bubble bath!! Team TLC Bubble Bath Adventures!! WooooHoooo!


Eight Long Years – Respite for Camilla With Guinness 0

July 24 2022

It has been EIGHT years since I’ve had respite from Lillian and Thomas at the same time. Beginning right now, I have 7 days without both of them.

Eight years is a damn long time to go without a break. Gigantic THANK YOU to The Romano Duo for having Lillian over for the week. I shall cherish every second of this break!

July 26 2022

Oh my, WoW! Look what I found today. Guinness 0 – non-alcoholic. I’ve been waiting patiently for this to make its way to the US.

Before I stopped drinking alcohol about 5 or 6 years ago, Guinness, and similar beers, were my absolute favorite. This has been available for quite some time in Ireland.

I wasn’t even in search of it today. While I waited for my lunch from Maya’s South Indian Cuisine, I popped into the liquor store to see if they had the Black Butte non-alcoholic I found a few weeks ago. I found this instead.

Creamy, long-lasting head with hints of chocolate and coffee. Yes!! Had one with my burrito tonight.


Throwback Post: Stacks of Books Under Shade Trees with Good Food


July 30 2012:

Good morning y’all from San Antonio!! Monica Tello McDivitt saw Chad Templeton’s stack of books … said it brought a smile to her face ’cause she has a stack too!!! Thanks Monica for sharing ‘D iz for Different’ in your stack of books!! Hugs to you …. missing you at the C18 Conference!


July 30 2011:

Picnic in the park for Team TLC!! Nice big shade trees … YES!!


July 30 2010:

They even have rides at The Romano Casa!! The horsey tired out before I got my chance.


July 30 2009:

Just got home from a little eWn gals gathering to design & put together our special little boot badges we’re wearing at the conf in Dallas!! Reno eWn members ROCK!!! Wine, yummy food, fun & beautiful friends, laughter, being silly ~ what more could a girl ask for??

Throwback Post: Thomas Knows and Slight Hearing Loss and Swimming and Walking


July 30 2014:

Thomas knows Lillian is not thrilled to have his arm around her …. So he just kind of hovers it over her shoulder!

Lillian had another hearing test today which confirmed slight hearing loss in right ear and even more so in left ear. Next is an ENT doctor to make sure nothing is wrong in there. Lillian already says she will NOT wear a hearing aide.

Great swim after the hearing testing, fun game of UNO, and another awesome walk! Date day for me and Thomas tomorrow. YAY!

Throwback Post: The Litmus Test


July 30 2015:

“The Litmus Test” …. Brought to us by the wonderful siblings of the Chromosome 18 Registry. The Sibling Panel is one of my favorite sessions at the conference. It’s the ONE session I do NOT miss.

Pretty much all siblings agree about “The Litmus Test” as something they unofficially use with new friendships and with potential significant others.

Two siblings had brought along their significant others and what they had to say made my eyes sweat! What they shared is so beautiful …. What they had learned being at the conference, the joy of being around all of us, and thanked us for having them.

I feel “The Litmus Test” applies all across the board … potential friends of the sibs, potential friends of the parents, potential significant others for sibs and potential significant others for parents. “The Litmus Test” … Sounds like a GREAT book title to me!!

And, Ronda, what your amazing daughter shared had my eyes sweating a river. I, too, feel that part of the purpose is to help us learn that change happens within our own minds and our beautiful children facilitate this for us.

Oceans of love and gratitude to the siblings and their significant others … xoxo  (Thank you Andy for facilitating the panel!)

Throwback Post: I Want Food With Fig Preserves


August 2 2014:

Lovey is sure enjoying her outdoor time! After one week of being a part of Team TLC, she’s settled in good and we’ve gotten to hear all of the cute sounds guinea pigs make. It only took her a few days to start making the “I want food” sound whenever she hears me in the kitchen. She’s got us trained perfectly already!! Lots of love to all y’all today! xoxo


August 2 2011:

Was just thinkin how much I LOVED my Mammaw’s fig preserves! Mmmmmmmmm!!! They rocked and so did you, Mrs. Elnor Downs!! She was one honest and tough cookie. I’m thinkin of you mammaw!

(Camilla and Elnor Downs – My high school graduation – 1988)

Throwback Post: Inspired and Blessed and Peaceful


August 2 2016:

Lillian and I had a beautiful walk last night. Walking with Thomas and Lillian inspires me and I’m blessed they feel the same. xoxo

There are times when a swim feels amazing and then there are times like today. Those times when all that exists is you and the water with an indescribably peaceful feeling …. Floating and feeling the water against ones skin. Today has been weird. This was a blessing in the weirdness! xoxo

The 2022 Chromosome 18 Family Conference – San Antonio

July 6 2022

Got here yesterday, but I was suffering from motion sickness from the landing. Thomas and I are waiting for some lovely vegan food to be delivered. Southern vegan food. Yes! Gimme some of that! We’ll go for a river walk later. (San Antonio Riverwalk)

July 7 2022

We finally got out for a short walk.

July 7 2022

Last night and this morning. The Giggling Duo have been reunited.

July 7 2022

Lillian and I went for a walk this time.

July 8 2022

I finally got photos of this trio!!

Lillian and Macy, the original Giggling Duo.

Lauren joined the duo a few conferences back, to make it a trio. Love this trio!!

July 10 2022

More of the trio. Their friendship makes my eyes sweat with liquid love. Thanks to Amy for taking some of these.

July 10 2022

Last day of conference, and Starfish Dance.

More photos taken throughout the event …

Photos taken by Rick of Positive Exposure …

(Entire Group)



Photos by Others …

(Parent Panel)

(Volunteer Coordinators)

(Sibling Panel)

(Sibs Night Out)