July 22 2020
A socially distanced Sibshop for Thomas this morning. Beautiful park and location with great trees. I may have accidentally picked cherries from the cherry tree. Thanks for the extra mask for Thomas, and thank you to the person who made the masks! Team TLC colors!
July 13 2020
Much thanks to James for having me on the JQM Literary Spotlight today! We’re chattin’ about an outrageously determined, trailblazing, heartfelt, warrior woman and how I became an accidental poet. Join us …
JQM LITERARY SPOTLIGHT PRESENTS Words of Alchemy by Camilla Downs
**THROWBACK POST**
December 6 2014:
Thomas really got to infect people today …. With his smile. He got to be in the Sparks Hometown Parade with his High Desert Montessori buddies. They handed out candy and $1 off coupons for Kids on Big Rigs which is a fun event for kids in April that’s also a fundraiser for HDMS. Thanks Stacey Perez for putting this all together!
**August 2020 Note – Thomas attended High Desert Montessori school from 1st – 4th grade. It was the perfect fit, the perfect situation, the perfect school for him. We LOVED our time there!! From fifth grade on he has been homeschooled. He’s now in the 9th grade.
July 13 2020
The Chromosome 18 Annual Family Conference that happens every summer got postponed this year. We would have been in San Antonio last week for it.
However, they put together a virtual conference with one live session every day this week. Plus, a live virtual dance party on Saturday!
My head is spinning after this session. Incredibly grateful for the abundance of information from Benji!
July 14 2020
Today it was the self-advocate (Club 18) Panel
Two amazing hours hanging with the self-advocates. Getting to hear them answer questions about living on their own (or not), driving (or not), how things have changed for them due to Covid-19, their jobs, and their lifestyle. So wonderful!
The Chromosome 18 Annual Family Conference that happens every summer got postponed this year. We would have been in San Antonio last week for it.
However, they put together a virtual conference with one live session every day this week. Plus, a live virtual dance party on Saturday!
July 15 2020
Another great one for planning purposes. Overlapped a tiny bit with Monday’s session (in a good way), but covered many different topics. Worth it to watch the recording.
The Chromosome 18 Annual Family Conference that happens every summer got postponed this year. We would have been in San Antonio last week for it.
However, they put together a virtual conference with one live session every day this week. Plus, a live virtual dance party on Saturday!
July 16 2020
Today was the Sibling Panel!
Thank you so very much to all the siblings. It’s wonderful and enlightening to hear your perspective. Huge thank you to Thomas for your honesty, and balancing out the panel as someone who doesn’t have a shining relationship with their sib. I AM incredibly proud of you!!!!
July 18 2020
Blurry photo, oops! Last session of the online conference. Look at all the beautiful faces Neale Parker has as his background. Looking forward to the dance party at 5:00 PST. 🍀💐🍀
The Chromosome 18 Annual Family Conference that happens every summer got postponed this year. We would have been in San Antonio last week for it.
However, they put together a virtual conference with one live session every day this week. Plus, a live virtual dance party on Saturday!
July 18 2020
The finale of the annual Chromosome 18 Family Conference. A fabulous dance party! Chromosome 18 Registry & Research Society
Oh my gosh!!! That was so freaking fun!! It was amazing to see so many C18 faces!! YaY!!! WE ARE FAMILY!! 💃🌸🌸🌸💃 I was cooking dinner and dancing! Ha!
The Chromosome 18 Annual Family Conference that happens every summer got postponed this year. We would have been in San Antonio last week for it.
However, they put together a virtual conference with one live session every day this week. Plus, a live virtual dance party to end the conference!
July 14 2020
S’mores!
July 16 2020
I felt like having this for lunch today. So, I did. Ha! Crispy crunchy okra, Miyoko’s cultured farmhouse “cheddar”, tomatoes with Himalayan pink salt and pepper, kalamata olives, marinated artichoke quarters, pugliese artisan bread with milkadamia buttery spread, sweet cherries, truffle Marcona almonds, and sweet & spicy pecans …. Can you tell I had just gotten back from grocery shopping? This was incredibly satisfying.
July 12 2020
What a gift to receive this morning before leaving for my hike! I was in tears. Thank you, Bill!
In Words of Alchemy, Camilla Downs invites you to walk with her to share her love of Nature and Life through a free-verse poetry memoir. During her daily strolls she is mindfully present as she delves into life in the raw and experiences her heart’s observations. Camilla embraces what happens when she opens her heart and invites the written words to flow.
Camilla Downs is a powerhouse – a one-person publishing house, selfless promoter of fellow authors, bestseller, blogger, photographer, and mom – the order of which is not prioritized. I met Camilla through online authors’ networks. We swapped books, as you do. And I immediately fell for her story – relatable, inspiring – facing challenges, overcoming obstacles, and being a role model. In other words, a good person. A person who, among other things, fuels her creativity and capacity to give by immersing herself into landscapes – communing with the outdoors, shooting photos, and writing about all of it.
Go here to read the full review …
July 5 2020
It was a s’mores kinda afternoon. So good. What a delicious treat.
July 10 2020
This afternoon called for comfort food. Totally tomato soup courtesy of Great Full Gardens South Meadows Reno. Grilled cheese made by me, with Ciabatta and Violife smoked provolone slices. Then a nice rest on the couch. Ahhhhh …
July 8 2020
I was recently on Chat And Spin Radio, an Internet Radio Station based in the UK. My interview begins at 1:35 if you’re in a hurry. They play awesome music, too!
They’ve asked me to invite all the authors I know to be a guest! Here’s the information …. Follow link to listen and to see the contact information …
July 6 2020
Artwork by Lillian, Camilla please let her know how much I love her artwork I see it in my office every day! Her artwork makes my office a happy place to be. – Beverly Marshall
July 5 2020:
In our new place we have a remote control ceiling fan. Someone didn’t think through that residents would be on the same frequency, turning one another’s lights and fan on and off. If you don’t want it on, and a neighbor does, you have to turn it off with the wall switch.
I need my fan on right now neighbors. Please stop turning it off!! So … found the heaviest, closest thing near me and fixed it. They are supposed to be fixing this in the next two weeks. Getting rid of remotes and just having wall switches.
July 6 2020
Welcome to the family! This one is currently not happy with me due to overwatering. Hopefully, we reach a healthy-amount-of-water understanding soon.
