Team TLC – Halloween 2022

November 1 2022

We had fun on Sunday participating in the C18 Halloween Zoom Dance Party. 👻👻🎃🎃👻👻

November 4 2022

I keep forgetting to post these. This was most likely Thomas’s last time hanging out with us for Halloween, so he took Lillian around without me this time. After about 20 Halloweens, I got the night off! 🎉👻🎃🎉

They both came back alive, and Thomas even took pictures while they were out. 🤣

The 2022 Chromosome 18 Family Conference – San Antonio

July 6 2022

Got here yesterday, but I was suffering from motion sickness from the landing. Thomas and I are waiting for some lovely vegan food to be delivered. Southern vegan food. Yes! Gimme some of that! We’ll go for a river walk later. (San Antonio Riverwalk)

July 7 2022

We finally got out for a short walk.

July 7 2022

Last night and this morning. The Giggling Duo have been reunited.

July 7 2022

Lillian and I went for a walk this time.

July 8 2022

I finally got photos of this trio!!

Lillian and Macy, the original Giggling Duo.

Lauren joined the duo a few conferences back, to make it a trio. Love this trio!!

July 10 2022

More of the trio. Their friendship makes my eyes sweat with liquid love. Thanks to Amy for taking some of these.

July 10 2022

Last day of conference, and Starfish Dance.

More photos taken throughout the event …

Photos taken by Rick of Positive Exposure …


(Entire Group)


(Siblings)


(18p-)

Photos by Others …


(Parent Panel)


(Volunteer Coordinators)


(Sibling Panel)


(Sibs Night Out)

Throwback Post: The Words Just Fly Out of One’s Fingers

**THROWBACK POST**

August 21 2015:

Just emailed the article for the next issue of The Australian Institute of Intellectual and Developmental Disabilities’ journal. Whew! 4,000 words in a week and a half. You know what that tells me? I can do it and I do have the time for that next book. YES! That felt great and I LOVED writing it! Completely and totally all from the heart … amazing how the words just fly out of one’s fingers when the mind is not allowed to give input! HA!

**December 2 2021 Update**

The article was published in November 2015. You can read it here …

My Journey With Intellectual Disability and Relationships – A Short Memoir

Zoom Dancing With a Secret Service Agent and a Rose Fairy Princess

October 31 2020

Thank you Michelle Dvorak for hosting the The Chromosome 18 Registry & Research Society Halloween dance party!! What fun!! Everyone looked amazing and fun in their costumes!! 🎃👻🎃👻🎃👻🎃

October 31 2020

First time over to The Romano Duo’s since December. A whole pot of vegan chili just for me … with a virgin Bloody Mary!! 🧡🖤🎃👻

We had a fun time getting to visit The Romano Duo at their place. All three of us haven’t been since Last December.

We ate dinner outside and then I took Thomas and Lillian around the neighborhood for trick or treating. It was great to see how creative people were with safely handing out candy. Thomas was a secret service agent (who forgot to tuck in his shirt until after photos … Oops!). Lillian was once again The Rose Fairy Princess. 👻🎃💀

Thomas and Lillian also got a surprise visit from their dad who they’ve not seen since 2014. He phoned as we were driving to The Romano Duo’s place and said he’d be driving through town in about an hour. He visited for about 20 minutes before continuing on. 🤷🏼‍♀️

Home now. Time for Thomas and I to watch Arsenic & Old Lace. ☠️☠️☠️

For Emarie Peters – We Are Family

February 29 2020

For Emarie … Wearing purple, red, and blue … blowing bubbles ….We love our Chromosome 18 family, we love you Emarie, we love you Peters family. I was lucky enough to catch a heart shaped bubble!! Perfect!! Strong winds made it a short celebration for you. Yet, that is perfect. As you were one strong human. Much power was packed within your tiny body. 💜💜💜💙💙💙 #WeAreFamily 💙💙💙💜💜💜

Photos of Emarie and her mom and dad from the Different iz Good archives …

 

All About Lillian – Guest Post

July 4 2019:

Guest post by Lillian Darnell hosted by Tracey Scott-Townsend Writer who lives in Kingston-Upon-Hull, East Yorkshire. Thanks tons Tracey for asking Lillian to write a guest post! We are deeply grateful!!

“Hey! My name is Lillian Darnell. I am 17 years old and live in Reno, Nevada USA. I just graduated from high school, have received a one year scholarship to Skillshare.com and am ready to put forth more writings, photography and art …. ” Visit the link to read the entire post and we’d sure appreciate if you “like” the post, comment and/or share it. Thank you!!!

All about Lillian

Peaceful Summer by Lillian Darnell – Fundraising

Peaceful Summer by Lillian Darnell …. There’s still time to participate in Lillian’s fundraiser and get a custom poem created especially for you .. This one was created for a lovely supporter in Tasmania.

Here’s the beautiful comment from Patricia once she received her custom poem …

Dear Camilla and Lillian

Thank you! The poem is everything I hoped for and more, and paints a brilliant word-picture. I look forward v. much to seeing the image, and know it, too, will be special.

As we approach Winter Solstice here in the Southern Hemisphere, it’s particularly lovely to be reminded of the pleasures and promise of summer.

Peace.
Patricia

The donation amount is completely up to you. Go here to learn why Lillian is fundraising and also if you’d like a custom poem of your own.

https://lilliandarnell.com/2019/03/27/fundraising-for-the-2019-chromosome-18-family-conference-poem-creativity/

 

 

Lillian Darnell Senior Graduation Photographs and Online Celebration

May 29 2019:

First round of senior/graduation photos for Lillian. She’s wants photos at a different location too! Ha!

This was the perfect spot for the first set. The little garden behind the library. We’ve been coming here ever since she was 5 years old.

I’ve taken tons of photos of the three of us in this little garden throughout the past 12 years. 🙏🎉💗💗💗🎉🙏

May 31 2019:

Lillian’s live facebook celebration …

 

Lillian Darnell – Graduating June 2019

May 6 2019:

Have spent nearly all day creating Lillian Darnell’s High School Transcript! Oh my goodness! Her official graduation date will be June 1st; which also happens to be National Donut Day … HA! And, the book signing event at Barnes & Noble!

We’ll be celebrating with donuts and books!! I’m sure we will have a wee live online celebration for Lillian’s long distance friends and family too. Stay tuned … What a journey!