Throwback Post: Respite with New Friends While Digging in the Dirt With Comfort Food and Tea

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December 5 2015:

Took Lillian to Ms. Kat’s place about an hour ago and now experiencing 3 uninterrupted hours of pure bliss and quiet respite. Now I shall write or read or take a nap or just sit. There’s so much I want to do … I’ll breath into the moment and listen with my heart ….. (Picture at little Washoe lake in October 2015).


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December 4 2014:

Here’s to new friendships! Had such a great time chatting with you Michaela Koenig! YAY!


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December 4 2013:

The other night I asked Thomas what the absolute, most spectacular and favorite thing that he got do at school that day was. His answer was that he got to dig in the dirt today and it was so much fun. They are making a garden area in front of the school and he got to be a part of the students cleaning it up and getting it ready for when planting time rolls around. Love this school!

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Dinner was enjoyed by all tonight! All 3 Team Members could taste the love! T & C loved the mashed potatoes made with sweet potato and russet potato… all smooshed up with 3 kinds of cheese and a little bit of butter. T & L loved the different colored carrots … red, yellow and orange. They still aren’t going for the brussel sprouts, but I keep trying! Meatloaf made with grass fed beef and some other goodies. Soooo yummy!


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December 4 2011:

Chromosome 18 friends … Vanilla Caramel Truffle … Celebrating Phantom Tea in spirit … Sending a donation in honor of Lillian later this week. Any of FB friends want to join? Research performed benefits all with genetic differences.


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December 4 2008:

taking Thomas on a date today – probably to the airport and then the toy store!

Throwback Post: Beautiful Sky with Eggnog, Books and Phantom Tea

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December 2 2014:

Great autumn sky 2014 …. So beautiful!


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December 2 2013:

Thank you Manal Toppozada for having me come speak to your undergrad med class today at UNR again this semester. I so much enjoy giving students a parent’s view of advocacy for children with special needs and give them an opportunity to walk in our shoes, if only for a few minutes. This time they got the added benefit of seeing my eyes sweat when talking about receiving THE phone call … the one delivering the news when Lillian was 3 years old. Oops!! Guess I’m just in an eye sweating mood!!! Looking forward to next semester’s class! They ask such GREAT questions! xoxo

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Trying my hand at dairy free eggnog … Tastes yummy so far!

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I’m a wee bit late but here’s my Phantom Tea picture … Yummy sipping chocolate in the cute teacup I got in England back in 2000. This is The Registry’s annual fundraiser … if anyone would like to make a donation in Lillian’s name visit the website at http:\\www.Chromosome18.org … Thanks tons y’all!


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December 2 2012:

$5 bag sale adventures!!!!


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Vanilla Cinnamon with a dash of almond milk … YUM!! My tea of choice for the annual Chromosome 18 Phantom Tea!! Research performed by The Registry & Research Society benefit all with chromosome abnormalities .. You can help out for as little as $10 and have some tea in the warm comfort of your own home!! Read more about it here … https://secure3.convio.net/chr18/site/Donation2…


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Just received word that we’ve successfully infected another person with The Team TLC Happy Virus!! WooooHooooo!! Thank you tons to those of you who reach out via FB message or email to let me know we are making a difference in your life!! Big warm and happy HUGS y’all!