March 5 2022
Exciting news to share!
I have been offered and accepted a very part-time position with the Family Navigation Network (FNN); which is a project of the Nevada Center for Excellence in Disabilities (NCED). NCED is a part of the University of Nevada, Reno.
I’ll be working about 10 hours a week, with the opportunity to work 20 hours a week. I just don’t see the 20 hours happening any time soon, though. I finally hit 10 hours last week. Ha! I’ve been with them for about a month now, just have not had the time to make a proper announcement.
Family Navigators help connect families with resources that they may not have known about; while at the same time collecting resources and information that we can share with families. So far I’ve spent much of my time onboarding, attending webinars (to learn about more resources, and the like), and have stepped into researching what type of information and resources Nevada families need.
When I come across resources I feel would be of benefit to my Chromosome 18 family, I make sure to share them in the 18p- facebook group as part of my volunteer coordinator role.
Here’s a description from the NCED website: