Mermaid’s Song by Lillian Darnell

July 17 2019:

Mermaid’s Song

Mermaids swim the water
like a dolphin.
Mermaids sing as 
sweet as a pineapple.

Mermaids travel like whales
to explore magical lands
of unknown kingdoms.

Mermaids swim in the sky’s ocean
dancing in the sunlight.
Mermaids flick their tails
leaving water droplets
high in the sky.

Mermaids whisper
my name into the shell
as I listen to the waves of
mermaids talking.
©️2019 Lillian Darnell.com

Written by my 17 year old daughter, Lillian. She is still fundraising by offering to write a custom poem just for you. She wrote this one for a friend down South … Mermaid themed! Thank you Christy!! Let us know if you’d like one! Donation amount is completely up to you.

from Lillian: Hey, everyone! For this year’s fundraising efforts for my family to attend the Chromosome 18 Conference in Colorado Springs, I decided to make customized poems. Here’s some information on the poems:

The poems will be nature themed, fairy themed, mermaid themed, or unicorn themed. Every poem created will be different and uniquely yours! The poem will be made into a lovely graphic image and emailed to you. Go here to read why this is so important to her …

Fundraising for the 2019 Chromosome 18 Family Conference – Poem Creativity

Although the conference is over for this year, you can still take part in Lillian’s offer of a custom poem. We’ve got a move coming up on September 9, and funds raised will go towards that. Lillian and Thomas will each get their own bedroom!! Plus, Plus!!! We will have a 2nd bathroom!! Ament to that!!

Unicorn Magic by Lillian Darnell

July 7 2019:

My daughter is fundraising to help pay for she, her brother, and myself to attend a family conference related to her chromosome deletion …. 18p-. It’s the Chromosome 18 Family Conference and this year it’s in Colorado Springs, Colorado USA.

She will create a custom poem especially for you and the donation amount is entirely up to you. This one was a request for a unicorn themed poem from my friend Karen in Mississippi.

Pease share with others you know who may wish to support Lillian. Thank you!!

Unicorn Magic

Unicorns dance like clouds
Leaving little rainbows everywhere.
Unicorns prance happily
as a wave of rainbows everywhere.

Unicorns chase their tails like
dogs shedding pretty
sunsets everywhere.

Unicorns watch over us
Like guardian angels.
The unicorn flies into my dream
As I sleep.
©️2019 LillianDarnell.com 

To learn more, to support Lillian, or read why it’s so important to her, go here ….

http://lilliandarnell.com/2019/03/27/fundraising-for-the-2019-chromosome-18-family-conference-poem-creativity/

 

Fundraising for the 2019 Chromosome 18 Conference – Lillian

Sharing for Lillian Darnell (my daughter for those who don’t know) …. She is one determined being with this every year. She will continue to ask me for ideas every other day with a determination and steadfastness that rivals a future Olympian in training …

“Hey, everyone! For this year’s fundraising efforts for my family to attend the Chromosome 18 Conference in Colorado Springs, I decided to make customized poems. Here’s some information on the poems:

The poems will be nature themed, fairy themed, mermaid themed, or unicorn themed. Every poem created will be different and uniquely yours! You can get a decorative border around the poem, incorporating recycled materials; or simply the poem emailed to you.

Now, here’s some information on what the Chromosome 18 annual conference means to me:

The Chromosome 18 conference means a lot to me because I get to meet new friends and spend time with old friends. It also means a lot to me because I get to travel to a new city with my family.

The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: In July 2017, when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.

Here’s a poem as an example:

Butterflies dash and play
Within the golden sunbeams
Dancing in the afternoon sky.

Butterflies fly in the sky like a colorful moving rainbow
Glimmering in the sky.
The sky sparkling like water.

Butterflies dance freely along
the water.
Water sways as it’s greeting the butterflies.

©2019 Lillian Darnell

You can still purchase prints of my abstract artwork also.”

from me: Lillian has a condition called 18p- which means she is missing the short arm of chromosome #18. The ways in which this manifest for her are: difficulties with articulation, balance and depth perception issues, chronic pain, difficulties with handling strong emotions, and irrational fears and worries.

Her only friends are through the Chromosome 18 group. She always chooses one fear to conquer leading up to the conference. This year it is her fear of taking a shower (she’s always taken baths). She’s nearly conquered it already! The conference is like one long therapy session for the entire family as there is a track for parents/caregivers, a sibling track, and a self advocate track.

Feel free to share this with any you know who enjoy supporting artists and fundraisers.

(Photo of Lillian on one of our date days; and a message from Lillian, table centerpiece and a group photo … All from the 2018 conference in Baltimore)

Go here to learn more ….

Fundraising for the 2019 Chromosome 18 Family Conference – Poem Creativity

 

The Italian Named Frank

Handmade gift for Frank. His favorite colors are blue and orange. xoxo

The Italian Named Frank

Always ready
To celebrate
And to do it
With flair!

Good food and drink
He’s always happy
To serve up.

Willing to help,
Ready to give hugs,
With much love.

One whom can
Be counted on
To bring along
The silly side
Of any holiday!

Fra-gee-lay … it must be Italian!
It’s a Major Award!
Merry Christmas, The shitter was full!

Love,
Camilla😜💖😂
xoxo
2018