Thanks for Noticing

February 29 2020

When Thomas and Lillian were younger, this was a much discussed topic in our house. They still tell me I’m weird and crazy. I tell them, “Thanks for noticing.” 😜🤣

“My kids are starting to notice I’m a little different from the other dads. ‘Why don’t you have a straight job like everyone else?’ they asked me the other day.

I told them this story:

In the forest, there was a crooked tree and a straight tree. Every day, the straight tree would say to the crooked tree, ‘Look at me…I’m tall, and I’m straight, and I’m handsome. Look at you…you’re all crooked and bent over. No one wants to look at you.’ And they grew up in that forest together. And then one day the loggers came, and they saw the crooked tree and the straight tree, and they said, ‘Just cut the straight trees and leave the rest.’So the loggers turned all the straight trees into lumber and toothpicks and paper. And the crooked tree is still there, growing stronger and stranger every day.” Tom Waits

For Emarie Peters – We Are Family

February 29 2020

For Emarie … Wearing purple, red, and blue … blowing bubbles ….We love our Chromosome 18 family, we love you Emarie, we love you Peters family. I was lucky enough to catch a heart shaped bubble!! Perfect!! Strong winds made it a short celebration for you. Yet, that is perfect. As you were one strong human. Much power was packed within your tiny body. 💜💜💜💙💙💙 #WeAreFamily 💙💙💙💜💜💜

Photos of Emarie and her mom and dad from the Different iz Good archives …

 

Celebration Time – I’m Still Standing

February 28 2020

Tonight we celebrate (with sparkling pink lemonade)! After 8 years, a chapter of our lives full of struggle and worry has come to an end.

That’s one long da** chapter! Hallelujah, Wahooooo, YES!!, WooooHoooo …. And, I’m Still Standing … I pray to never relive that chapter …

(And, check out that cloud from a couple of hours ago. Will share more photos of that beauty later.)

Throwback Post: Good to Hear from You and Dinner With The Romano Duo

**THROWBACK POST**

May 28 2015

I’ve mentioned in the past that Lillian likes to email the authors of books she reads to let them know she liked the book. She’s also writing book recommendation posts on her blog and listing every book she reads!

She almost always gets a response, and I was moved by this latest response .. “Hi, Lillian,
So good to hear from you! Your website and posts are amazing! Good for you to read and write and to share your messages with the world.

I have a new book that just came out. It’s called BAYOU MAGIC. Before SUGAR I wrote NINTH WARD.

I love fairies and I love Salt Lake, too. I’ve been to Salt Lake twice.

Happy reading and thank you for contacting me.

Sincerely,
Jewell

Dr. Jewell Parker Rhodes
Founding Artistic Director, Virginia G. Piper Center for Creative Writing
Piper Endowed Chair
Professor of Creative Writing & American Literature
Affiliate, Center for Film, Media and Popular Culture”

May 28 2012:

We eat sooooooooo GOOD when those Romano peeps are here!!!! Yuuuuuuummmmmmmyyyyyyy!!!

 Romano Dinner May 28 2012

Nearly Done with the Lillian Turned 18 Buried in Paperwork Palooza

February 19 2020:

Another one down, one more to go for the Lillian-turned-18-buried-in-paperwork-palooza. Power of Attorney for financial matters signed and notarized this afternoon. Last one is the Durable Power of Attorney for Health Care Decisions and End of Life Decisions. I need to discuss this one with Lillian more to make sure she understands it all. And, just a fun photo from happier times for us … Book signing for Lillian in June 2019 at Barnes & Noble.

Feelings of Relief and Winning at Life

February 12 2020

Paperwork (loads of it) turned in for Lillian’s Age 18 Redetermination for SSI … Another one done! Only had to wait about 2 hours just to turn in paperwork (I wanted a date stamp on it as I’ve had things get “lost” before.) Wahooo!!! A beautiful photo to match the feeling of relief … Ahhhhh ….

Winning at life! Just took a really long, hot shower, turned the water off, and thought, “Um, I don’t think you actually used any soap, girl! You just stood there under the running water!” Winning = I realized it BEFORE I dried off and got out! Wahooo! 😜😂

Throwback Post: Smiling Bread and Glad to Still Be A Kid

**THROWBACK POST**

May 27 2014:

I was making Lillian’s lunch for tomorrow and her beautiful bread gave me a wink and a little crooked smile ….. I love being open to kindness, happiness and love coming at me from any one or any thing! HA! ♡

Bread May 27 2014

May 28 2012:

“I’m so glad I’m still a kid.” -Thomas Darnell

{ This has turned into a morning long conversation. Today’s BrainPop was about Memorial Day and mourning. He asked what mourning means …. Then said he never wants Lillian to die and his eyes started “sweating” (as he calls it). May we ALL remember to think and live like when we were a kid and to fully embrace every single moment with our loved ones!}

Living and Dancing in Love

February 3 2020

I went for a nighttime walk, returning with a frozen face, legs, and toes. This is hitting the spot, with tea wisdom that hits the spot too. I adore the smell and flavor of this decadent tea. A Netherlands friend brought it to me when she visited last year. What will I do when it’s gone??? ♥️😭

February 4 2020

Nothing brings you right back into the 80’s like Billy Idol’s, “Dancing With Myself” … Problem is, my body knows it’s not the 80’s anymore …. I still got the moves. It’s just afterwards … I’m really feeling those moves .. HA!

 

 

Supported Decision Making Agreement and Room Rental Agreement Done

February 2 2020

It is FINALLY done!! I have just finished creating the Supported Decision Making Agreement for Lillian. She and I will sign it tomorrow in front of two witnesses … The Romano Duo … January has been, and February will be, all about paperwork, lots of paperwork …. Come March, we should be finished with all the big ones. Next up, Power of Attorney for Medical and Financial. Hallelujah!! 🎉🎉🎉

February 4 2020

Another one done!! Room Rental Agreement created. Nearly finished with the Power of Attorney documents also. Then it’s on to opening checking/savings accounts and an ABLE account. Feels so good to be getting these things done. 🥳💜

More Found Treasures

February 2 2020

Ahhhhh …. To have them be in this space where they actually like one another, that would be such a blessing. ❤️❤️❤️

Looking through thumb drives and found photos I had forgotten about – Actually thought they were lost as they were on a computer that died, and I no longer have it. So glad I still have these!