A Moment of Defeat – Again


December 12 2014:

Lillian with Tiarra Maybe 2010

I had another one of “those moments” Wednesday night … like the moment that caused me to write this blog post and the one before it.

This involved some pretty strong emotions so I’m working on writing another and just read the blog posts from 2010 and 2012 again. Thought I’d share here …

I Wish I Wasn’t An 18p- Girl: Moment of Defeat – Take Two


Where Would You Fly – Interactive Map

A FUN interactive map displaying the answer to “Where Did IT Fly?” …. so far …

This map is so fun! You can zoom in on the pins and scroll around the entire World!! The purple pins have fun images embedded!

Please let us know your city, state, and/or country and we’ll add it to the map! The book has flown to The Netherlands, Australia, England, North Ireland, and to many of the 50 states!

Would you like a book to fly your way? Head over to the website to learn more about, “Where Would You Fly and Other Magical Stories” … Go here.

One Blood Test – One Phone Call – One Moment in Time


December 11 2015:

The Gift of One Article by Camilla 12.11.15 #1 The Gift of One Article by Camilla 12.11.15 #2

What a magical surprise waiting in the mail today! After it took an HOUR to drive to HDMS to get Thomas this afternoon. It usually takes 12 minutes. Then 30 minutes home as we had to bypass the closed portion of the highway.

It was a blessing to have this waiting in the mail …. along with another envelope with some surprise money for Team TLC. Thank you Veronica Wain for mailing hard copies of the journal. This is the third nudge I’ve received today to share this article again which was published this past fall.

Listening to those nudges … Here’s an excerpt and a link to read the full article. May your heart land on just the right passage at just the right moment …

“One blood test, one phone call, one moment in time, drastically changed the direction of my life forever. I know more about genetics, chromosomes, DNA, motor skills, verbal skills, and now emotional and behavioural issues than I ever thought I would need or want to know. ……. I thought I had life pretty much planned at that point and for a while this brief phone call seemed to have caused my life to break apart like a melting iceberg with pieces scattering here and there. Looking back now, all that was brought into my life, all that occurred, all that began, and all that ended were meant to happen for my own growth and enlightenment. An enlightenment I feel spreads far beyond myself and my family as I believe we are all connected.”

My Journey With Intellectual Disability and Relationships – A Short Memoir

I Understood THAT word


December 11 2013:

Pondering something deep …

How can she clearly pronounce cuss words even though she is speech impaired and I can usually only understand half of what she says? ….. I was in the other room and heard Lillian about to have a throw down with the computer ….

Thought to myself .. “I understood THAT word!” Made me giggle. Hope it makes you laugh too!

The Tapestry of Life or Something Like That

February 20 2018:

Mailing this today reminded me of the stories about the tapestry of life … something like how one action leads to another, to another and they are all connected.

Barbara Hranilovich and I met online back in 2007. I asked her to blog for a website I owned at the time. She did and her articles were incredibly informative and just plain good.

I suggested she make the articles into a book as each article was about being an entrepreneur and each was paired with a letter of the alphabet. I’m pretty sure that was already Barb’s line of thinking as months later, after I had abandoned the blog, I received a book in the mail, titled “E is for Entrepreneur”.

Barb had created a book from the articles and I didn’t even know until she mailed me the finished product. Barb had included me in her gratitude list in the book and hand wrote a note that the book would never have happened without me.

However, I did not see the note or my name on the gratitude list as it came when I was packing. It was put into a box and I came across it a year or so later ….. when I was trying to figure out the style of my book.

It was exactly what I needed to receive, see, and find to shine the light on how my book was to be written. Hence, “D iz for Different – One Woman’s Journey to Acceptance”.

And, I didn’t tell Barb about it at all. I simply mailed her a book when it was finished with a similar message that she had written to me.

Side note: Barb loves fairies. Years ago she mailed Lillian a fairy book Barb had illustrated, plus a fairy house we keep hanging on our wall.

Now, today, I mailed her a book of fairy tales written by Lillian Darnell!

And we’ve never met in person …. Beautiful, magical, and wonderful tapestry of life …. xoxo

Where Would You Fly Book to Barb 2.20.18

Today is the Official Book Launch for Where Would You Fly

Lillian Getting First Order of Books Where Would You Fly 1.24.18 #1

Hey there!! Ready to fly? Unfurl those wings and let’s take flight …

If you would like to help spread the word today, TUESDAY, 2.27, the official launch day for Where Would You Fly, here’s how ….. Any time during the day on TUESDAY, no matter the time zone!

I invite you to visit the website, http://www.WhereWouldYouFly.com, and choose whatever speaks to you.

Copy and paste it to your profile along with a personal message from you.

Be sure to include a link to the book on Amazon and this tag below. If you’re short of time, you can skip the above and just do the below …. 😉

Here is the Amazon link and tag for easy copying:

http://a.co/enm96a4 … #WhereWouldYouFly

All in all, just do what you have time for sharing. We will be thankful with whatever you have time to share.

Oceans of love to you and heaps and heaps of gratitude for flying with us …. We are truly blessed by your kindness, support, and love!


Camilla and Lillian

P.S. – If you already purchased a book, today or in the next couple of days, would be perfect timing to leave a review on Amazon too.

Camilla Downs Interviews Lillian Darnell on the Chromosome 18 Registry Facebook Page

Camilla interviews Lillian on The Chromosome 18 Registry facebook page on February 18 2018. This is part of the Registry’s self-advocate live broadcast series.

Lillian answers questions about being a part of the C18 Registry and what it’s like living with 18p-. She also talks about her debut book at 16 years old.

Learn more about the book here, http://www.WhereWouldYouFly.com and learn more about The Registry by going here … http://www.Chromosome18.org

Official Book Launch – Where Would You Fly

February 15 2018:

Lillian Getting First Order of Books Where Would You Fly 1.24.18 #1

Official Book Launch for Lillian Darnell’s book, “Where Would You Fly” …. Join us! The goal is to get Lillian’s book noticed!

If it feels right for you, we invite you to help by joining for the official book launch, sharing the event, sharing the book website, purchasing a book, or just popping over to say Hi!!

No matter what! We just wanna have fun with this!! xoxo

Please join us for the official book launch of Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” … Let’s help this amazing teen have a best selling book!

During the hours of 5:00 am and 8:00 pm PST purchase the book from Amazon. The more books purchased during this targeted time, the more likely it will reach best selling status. We will post the direct link to the book as soon as we have it.

We will hold periodic live facebook broadcast throughout the day and Lillian will be on our local KOLO 8 news at 4:30 pm. We’ll post the times of the facebook live broadcasts soon.

Thank you and oceans of gratitude to everyone … xoxo


Help bring awareness to Where Would You Fly!

If you’ve been waiting for the book on Amazon, this is the day to get it! The more purchases on this day the better.

If you already purchased the book from us, this is the day to leave a review on Amazon. Even though you didn’t purchase on Amazon, you can still leave a review.

And, if you don’t want to wait until 2.27 to purchase, you can still get it from us. We have plenty! Plus, you’ll get a signed book that way!

Let’s have some fun on 2.27!! We’ll also have a few live broadcasts throughout they day on 2.27. Feel free to share this event to help spread the word. Thank you!! xoxo

Go here to learn more about the official book launch on February 27th …



The Books Are Arriving and Chromosome 18 Facebook Page Live Event

February 4 2018:

I received my copy of Lillian’s beautiful book and have enjoyed browsing through the many delightful stories. I love the immensely witty dialogue and the truly magical storylines, and I swear there is a bright light shining through each and every word. One of my favorites is “A Mindful Mermaid Story.” I think I’ll have to try doing some MM sometime. : ) And, I definitely also love my notebook!

Michaela's Where would you fly book 2.4.18 #1 Michaela's Where would you fly book 2.4.18 #2 Michaela's Where would you fly book 2.4.18 #3

February 4 2018:

61 books ordered and received on January 24th. 3 remaining. WOW! and YAY! Oceans of gratitude! xoxo


February 5 2018:

As part of Chromosome 18 Registry & Research Society Facebook Live Series, Lillian Darnell, will be interviewed on Sunday, February 18th, at 6:00 pm CST.

She will talk about her hobbies, what it’s like being a part of the C18 family, her biggest dream, what it’s like living with 18p-, and her debut book. Does anyone have a question(s) they would like answered? xoxoxo (Be sure to “like” the C18 facebook page linked above if you’re interested in attending.)

Facebook Live Broadcast C18 2.5.18


February 5 2018:

Camilla Downs, guess what came in the mail today?!? Serena is very happy and impressed since I explained how old your kids are and that they are the AUTHORS! She wants to go visit you now 😃! Great job Lillian and Thomas!! 💗

Carissa's Books 2.5.18


February 5 2018:

Yay!!! Lillian Darnell look what arrived in our Mailbox today xx thanks to your Mum Camilla Downs for posting this to Us. Ella’s favourite chapter so far is The Flying Unicorns create a Rainbow 🌈 as Ella loves Rainbows and unicorns.

For my FB friends that don’t know, Lillian and Ella share something very special. They are Unique human beings who only come around once in every 56,000 births. They are missing the short arm of their 18th Chromosome. We have become friends with Lillian, her Mum Camilla and Brother Thomas. Even though they live in Reno USA we keep in touch most days 💖

Debbie Goodrick Book 2.5.18


February 6 2018:

February 27th at 4:30 pm PST on KOLO 8 with Sarah Johns for Lillian Darnell to talk about her book!! … xoxo


February 6 2018:

Camilla look what I found in the mail box : )
So excited and look forward to reading it – so thrilled Lillian xx – Ailsa J., Australia

Ailsa in Australia Got Book 2.6.18

February 7 2018:

My friend Lillian Darnell just wrote a book and it is awesome. I just finished the book. -Rebecca P.


February 8 2018:

The wait is over! Lillian Darnell’s debut book, “Where Would You Fly” & Other Magical Stories has arrived! Lillian is 16 years of age & is a published author! Her Mom, Camilla Downs & her brother, Thomas Darnell are also published authors. That makes 3 for Team TLC! Lillian will be featured on KOLO 8 with Sara Johns, Tuesday February 27, 2018 at 4:30 PST. She is an Amazing young lady & wise beyond her years! – Carolyn S, Reno

Carolyn Smith with Book Where Would You Fly 2.8.18

Thank you so much Carolyn … for all that you BE. Not just this .. for the 6 or 7 years we have known one another and supported one another and become true friends. Oceans of gratitude … I LOVE YOU!!! xoxo

Can you hear me singing,
“WE ARE Family!” I Love Team TLC! Y’all are Shining brightly right where you are! Keep going! Push through! There’s a pot of gold on the other side of that rainbow.


February 10, 2018:

Thumbs up from Alanna !!!

Alanna with Where Would You Fly Book 2.10.18