October 19 2019:
Finished researching this for the most part. Just need to circle back to creating the SDM paperwork with Lillian and paperwork for a Power of Attorney. Hope to do that in between waiting for the book proof. Then on to researching ABLE accounts.
October 18 2019:
Lillian wanted to see Art of the Aloha Shirt exhibit before it ended on Sunday. So, today we made our way to the Wilbur May Center. Lillian is standing next to her favorite. Mine is the Hawaiian postcards. The photo following it is the sketch before it was made. The exhibit was pretty interesting!
August 6 2019:
Lillian is writing her own posts regarding The 2019 Chromosome 18 Conference. Here’s Part 1:
August 11 2019:
Oh my gosh! You have GOT to read this! Had me laughing out loud! And, I didn’t know she had researched the elevators!! HA! She cracks me up!
August 15 2019:
Part 3 of Lillian’s blog post about the conference. She is incredibly dedicated to writing these posts! And, they are very thorough! Hope y’all are enjoying them!
August 18 2019:
Lillian’s recap of the C18 Conference – Part 4!!
August 21 2019:
Lillian is working so hard on these y’all! Thank you to those who are following …. Much love!
September 8 2019:
Part 6 of Lillian’s play by play of the 2019 C18 Conference … Another that made me laugh out loud, more than once … Give yourself the gift of laughter today, go read it!
October 2 2019:
She’s still at it! Always lots of details. Yet, this one is heartwarming and ends HaPpY!! Many photos from the farewell dance party as part of this post! Check it out!
October 10 2019:
She’s winding down! One more after this one. This girl’s got dedication! Part 8 of Lillian’s Conference posts …
October 16 2019:
Last one! She stuck with it and wrote about every single day of the journey to and from the Chromosome 18 Conference!
October 15 2019:
Lillian and Camilla October 2019 Date Day
First: A swim. Ahhhhh …. That was refreshing!!
Second stop: Her favorite place for fries and a one eyed spooky cookie for her. A giant vegan pomegranate gum drop for me.
Third stop: Reading in the car with an amazing view at Audrey Harris Park and then a short walk at Bartley Ranch Park.
Ended the date day with shopping for a few long sleeve shirts for Lillian. Found some! Yay!
October 14 2019:
She survived getting an ID! Extreme anxiety and pissed offness having to go do this (on Lillian’s part). You can tell she was nervous in the second photo and had calmed down by the 1st photo. She does not like these new rules that come with turning 18. We were only there about an hour. Plus, she registered to vote too! Whew! It is done now. 🎉🎉🎉🎉 Next up. Getting fingerprinted for her library volunteering …. More extreme anxiety over that one!
Thank you to the lovely DMV worker who graciously overlooked that I had made the appointment for the 15th. (And did not make me get in the “no appointment” line!) Today is not the 15th! I’m losing my mind!!
**THROWBACK POST**
May 14 2016:
The love of reading is one of the greatest gifts you can give to yourself … Team TLC library day. Yay, yay, yay!!!!!
May 12 2016:
October 4 2019:
She’s a bit overwhelmed with having to sign documents so soon after turning 18. She would like to know who made this rule!!!
It’s taking so long for construction to be finished on the new apartments, she turned 18 while waiting. So …. had to sign the application! Anyone know of a short term place we could rent for the month of November? Our lease here ended the end of August, management let us stay at our old lease rate for September. Had to pay a month to month rate for this month and can’t do that again! 😱 I’m serious if any of my Reno friends have thoughts. Move in just got bumped again to early November at the new place. With their record, I doubt it will be ready.
October 2 2019:
Spotted while volunteering at the library today. Lillian’s favorites are the carriage and peacock. My favorite is the one with the crow. Took the picture of the cat for Thomas. Such cool ideas!
September 25 2019:
It’s time she take over some tasks, well …. mostly, anyway! So here’s a “first”!!
Lillian addressed the envelopes, rode to the post office with me last night, used the self-service kiosk to get stamps, put the stamps on, and pushed the envelopes through the slot! Wahooo!!
September 23 2019:
During the last week of August this was finally resolved. After having to reach out to the supervisor of the supervisors.
Now I’m working on the cover reveal for my book, happening this coming Saturday, finishing my research on Supported Decision Making and preparing documents for this (moving on to research ABLE Accounts – anyone have thoughts on these), working with Thomas to loosely lay out schooling for the next four years, and then back around to Lillian to help her set up her creations in an online store.