Category Archives: News and Events

2023 Chromosome 18 Conference in Columbus, Ohio – Part 3

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July 12 2023

Look at this amazing book and card package in the silent auction! Thank you to the authors who contributed to help support the Chromosome 18 Registry & Research Society.

C18 Sibling Panel: All of these sibs are amazing. However, I am deeply biased towards the one on the far right. Thomas, you bless my heart beyond comprehension. You did an amazing job, articulating your points beautifully, and that’s probably the first time in history that the word innocuous was used on the sibling panel.

Thank you to everyone who came to me afterwards with such lovely words to share about Thomas, and my parenting skills. ❤️❤️❤️ Everyone very much appreciates your authenticity and transparency, Thomas. Kendall Powell is an amazing person, and absolutely shines as the sibling coordinator. Thank you for loving us, Kendall!

Getting everyone ready for group photos. 18p- over here!!! The hardest part of the conference! 😂🤣😂

And photos with the amazing Millers. Love you Matt and Julie. You two did a wonderful job hosting this year. I love me some Miller time!! ❤️❤️❤️

2023 Chromosome 18 Conference in Columbus, Ohio – Part 2

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July 10 2023

Quick walk this morning before helping facilitate the New Family Orientation. Gorgeous weather and grounds.

July 11 2023

Beautiful spot for coffee this morning. I feel like a bit of relaxing this morning.

July 11 2023

Ladies night was so much fun!!! Talking, laughing, and drinking with such beautiful people. I sat back at one point just scanning the room, looking at everyone deep in conversation, laughing, smiling, hugging; and I thought to myself, “This is incredibly beautiful.” ❤️❤️❤️

2023 Chromosome 18 Conference in Columbus, Ohio – Part 1

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July 8 2023

Team TLC is on board, on our way to the C18 conference in Columbus, Ohio. ❤️❤️❤️ Thomas is in front of us. By the way, Reno-Tahoe Airport is a cluster fuck right now.

Beautiful Reno sunrise as we left this morning.

July 9 2023

Just back from my first walk in Columbus. Stunning grounds. And it wasn’t too hot. Bonus!! Not sure these folks have experienced a tattooed woman walk-dancing around the grounds. Now they have!

July 9 2023

Photos from today. These people are so precious and amazing.

I absolutely love the photos of the Giggling Trio – Lillian, Macy, and Lauren. They light up around each other, and it is beautiful to experience. ❤️❤️❤️

Photos taken by Rick of Positive Exposure

Throwback Post: Friends With Advent Calendars, Christmas Lights and Movies at the Library

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**THROWBACK POST**

December 1 2014:

The interesting things that come into your life when you are connected with people all over the world due to deleted genetic material from one’s daughter’s 18th chromosome.

Thomas’s class got assigned Australia for their multicultural report this year. Thomas chose Victoria. He’s finished all his research and is working on the creative piece now of displaying some of what he learned. I mentioned to him that we’ve got more than several C18 friends in Australia. Let’s look and see if any of them live in Victoria and we can see if she would like to send a post card or something. Hot Diggity Dog!

Thanks Deb Goodrick for playing along and sending some goodies to Thomas! Can’t wait for him to put it all together! So blessed by the kindness and enthusiasm of others!

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December 1 2013:

Yes Katharine Newman! It’s a big hit! Especially last night after watching the Nutcracker. Left the projector connected and had fun looking at it really big, putting the giant puzzles together, and making huge snowflakes! Thank YOU! xoxo

YAY me! Got lights up in the front and back! I’m glad I have such a sense of humor. I was cracking myself up with some of less than wise moves I was making. Stringing lights with the plug in on the wrong end, hearing at least 2 of the ceramic bulbs pop as they hit the ground and trying to hammer nails into this crumbly stucco exterior (and seeing the nails fly all over)! We’ll see how long the scotch tape holds up in the back! HA! I have two happy, happy kids too!! Totally worth it! xoxo

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December 1 2012:

I am so lucky!! Got a weather report delivered to me in bed this morning at 6:30 am by Weather Fairy Lillian!! This young lady cannot begin her day without 10-30 minutes of weather observations, AND she must share it with others! Then I treated myself to some yummy vanilla cinnamon tea in front of the fire! There’s nothing like quiet time! Happy December 1st y’all!!

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Lillian ran out of books. Here we are, What would this Team TLC do without libraries?

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Gets me EVERY time. Team TLC Movie Night Adventures for tonight.


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December 1 2011:

Another favorite from Red Rock Canyon.

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So full of gratitude tonight for all the amazing beautiful friends and family in my life. I’m gonna have one of these fancy yummy chocolates I bought tonight, read some and go to sleep full of happiness and peace {and chocolate}, and cherish my last night of me time!

Throwback Post: Library Time With an Abundance of Gratitude

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**THROWBACK POST**

November 30 2014:

Forgot to post our library picture yesterday afternoon! Yep! We’re crazy wild about these things called books. It’s a permanent entry on our calendar every 2 weeks!

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November 30 2013:

Library time … we committed our first random act of kindness too! Wahoo! Let the kindness adventures begin!


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November 30 2012:

Thomas’ gratitude for today:

I’m thankful and grateful to have our house that we live in.

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November 30 2012:

As this month of sharing publicly what I am thankful for comes to an end … I’m signing off with this one …. I am grateful for ME, thankful that I chose to journey within myself to discover my true inner self, my purpose, my passion, and my unique gift … I’m glad y’all are part of this journey … Big Warm Hug!! Here’s a post I wrote about this back in September … https://camilladowns.com/2012/09/28/you/

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Lillian’s gratitude for today:

I am thankful for Christmas coming and for having my iPhone working again.

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November 30 2011:

Today I am thankful for those who are helping make my book, D iz for Different, a reality! I’m finalizing the edits this week and submitting to my lovely editor, Sara! Thank you Sara and thank you Natalie for helping with the book cover. Thank you Paulina for the team TLC photo session. Thank you Daniel for your awesome artwork. Thank you Debe for the connection with Jim Stovall which resulted in a beautiful endorsement. And, thank you to the women of the WOW writer’s club. What we started just over a year ago has become so much more . . . Thank you Kymberlee, Cheri, Glenna, Lisa, Clare, Karyn, Beverly, Emma, Jamie, Susan, Kimberly and Rachel! Thankful, blessed and grateful . . .