Tag Archives: chromosome 18 abnormality

Why We Attend The Chromosome 18 Conference Every Summer

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January 8 2017:

Top 10 Countdown Continues! The Number SIX 2016 CamillaDowns.com blog post with the most views: “2016 Chromosome 18 Conference – San Antonio” ……. xoxoxoxoxo …….

2016 Chromosome 18 Conference – San Antonio

from the article … “The anticipation of and the attendance at the conference encourage Lillian to set goals and accomplishing them. At last year’s conference she got in the elevator, went downstairs, and waited in the lobby for friends .. all without my assistance or presence.

She used the hand dryer and automatic toilet also. About a week ago she walked across the foot bridge alone, without holding onto my arm. Two days ago she climbed two stairs with holding onto my arm and plans to reach the top of the stairwell before we leave for the conference. All of these are huge accomplishments for her … “

Egyptian Eye and Rainbow of Emotions – Abstract Art by Lillian

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November 27 2016:

Unique abstract art by Lillian …. Collage of her at the kids business fair last month. The “Egyptian Eye” and “Rainbow of Emotions” are her two amazing pieces.

A print of Rainbow of Emotions is on its way to Victoria Australia soon and a print of Egyptian Eye is on its way to Sparks, Nevada! Go Lillian! Please visit here if you’d like a print of your own!

egyptian-eye-4-29-15kids-business-fair-10-8-16-1 kids-business-fair-10-8-16-3rainbow-of-emotions-by-lillian-abstract-art-2015

She Spread Her Wings …. And Flew – Happy 15th Birthday Lillian

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September 14 2016:

So this one turns 15 at 11:27 pm tonight … We’ve been celebrating all day as hopefully we’ll be asleep by that time!

… And she spread her wings …. Took a deep breath … And, just like that …. She FLEW!!! xoxo ….

For anyone who has been following all of the amazing accomplishments Lillian has made since this past July, you truly understand my comment above. They are happening so fast I cannot even keep up with posting them here.

See this picture below .. That’s a first … Taken last night on a Team TLC adventure. Jumping in the air bunches and bunches of times while I took 771 pictures of her …

4 pounds of heaven grown into a full blown fairy angel who knows she is to be a writer and helper. She has indeed done it her way … From butt scooting instead of crawling, talking different than others, eating, drinking, walking different than others …. and on and on and on … Blessed, blessed, blessed and so grateful we chose one another to teach and learn. Happy Happy Happy 15th Birthday Lillian Darnell!!!

Today is her day. After physical therapy this morning I took her to pick out sparkly headbands, then for gluten free donuts at Haven on Earth, and then home.

After resting for a few minutes, she opened her gifts, Thomas and I sang her Happy Birthday, and then we ate way too much of the gluten free chocolate cake (with oh so yummy cream cheese frosting) that we made last night.

Then we finished the celebration with a “live” Facebook birthday party!! That was interesting and fun!!!

 

Can I Have A Multi-Pass

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June 2012:

Most of you know that Lillian has a speech impairment … My day is filled with constantly telling her I don’t know what she’s saying ….

Sometimes I choose to make us both laugh and repeat back what I heard her say …. Tonight what I heard … “Can I have a multi-pass?” What she actually said, “Time has gone fast.” We both got a good ole laugh outta that one!! Told her I was out of multi-passes!! ♥ ♥ ♥

Blessings,

Team TLC
See It. Share It. BE IT … Spread Love Everywhere You Go!

Did you know Camilla wrote a book? It’s titled “D iz for Different – One Woman’s Journey to Acceptance” and you can read more about it here.

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