The Flame of Advocacy – Camilla Downs

August 15 2019:

I know I am not alone in hosting in my heart a flame of advocacy for our children, and definitely our children with differences who cannot advocate for themselves.

My motto of “Love is the answer” was put to a true test this morning. In May I followed all directions, completed all paperwork for a service for Lillian; which was approved and we have used for two months now.

I was told a few days ago that since they did not process the paperwork properly (and actually lost the first set of documents I submitted, therefore making it overdue and Lillian not eligible) that Lillian would be put on the wait list.

I patiently waited for a reason for this from our contact person and only received, “nothing can be done”. So I asked for the supervisor’s name and email address. I sent an email yesterday to the supervisor with a time line of all conversations and emails showing that everything had been turned in and I can’t possibly control what someone does with it after it leaves my hands.

I received an email back this morning that blew me off and said that nothing could be done. After receiving this email, you bet there was huge anger rising. I absolutely had to concentrate on taking long deep breaths to create calm. HA!

I emailed back asking for this person’s supervisor and email address. I immediately received two phone calls and two voice mails and an email as the person I emailed thought that I was someone else, so she did not have the same tone and response had she had if she had known I was Lillian’s mom. I was okay with that since I know people make mistakes.

And, in that email where she said she was very sorry for thinking I was someone else, she also said she is asking administration to reconsider since everything was turned in and they lost it or misplaced it. And that we should not bear the cost of their mistake.

Well, thank you Ms. Supervisor. That is precisely what I thought too. I am so relieved you agree with me. I thanked her very much for stepping in and helping to right the situation. We shall see what they say. I may be continuing up the supervisor ladder … If it must be done, I’ll do it.

I am not posting this for sympathy. I am posting for solidarity, for strength, for courage … and just because that’s what I do. I share. Here’s to all who advocate for those who cannot. Whether they be human or animal.

Lillian and Camilla August 2019 Date Day

August 16 2019:

Lillian and Camilla August 2019 Date Day

First stop: Fries and pretty in purple sugar cookie for Lillian. Tahini Broccolini with a Neapolitan cupcake for me. Yum!!

Second stop: Browsing at one of her favorite stores. You should have heard what Bones said to me!!! 😱💀He was just joking, though, and we moved past it.

Last stop: Bartley Ranch – We had planned on Audrey Harris Park but it was closed due to a performance. So, we found this sweet lil spot, read for a bit, and ended with photos and playing with shadows and trees.

Throwback Post: Elnor Key Downs and Estelle Eady Mann

**THROWBACK POST**

May 13 2012:

Happy Mother’s Day to both my Mammaws …. two fiery women …. Elnor Key Downs (photo on the left) and Estelle Eady Mann (photo on the right). Blessed to be their Grand Daughter. Even though they are no longer with us, I still hear the things they used to say to me and their treasured advise!!

Mammaw Downs and Mammaw Mann

Book Musings: Pablo Neruda – Poet of the People

Pablo Neruda – Poet of the People

In this colorfully illustrated book we learned about Pablo Neruda, born in Parral, Chili, in 1904. He won the Nobel Prize for Literature in 1971. He and his poems inspire people to love and to make their voices heard. We enjoyed learning about this wonderful Poet of the People!

Movie Night: Lincoln

August 10 2019:

Team TLC Movie Night – My choice: “Lincoln”

I say, “I mean. I have no words. Well. One. Powerful.”

“A house divided against itself cannot stand.” -Abraham Lincoln

Thomas says, “I like it. The music was good.”

The score for this movie is by John Williams … explains why Thomas liked it!

Lillian sat this one out.

Third Time Has Got To Be The Charm

August 10 2019:

Third time has got to be the charm! The past two summers I have begun packing to get us moved … And, we didn’t move! 😳😂 Just could not find a place for us to move with the growth and housing shortage here. This time, we know where we’re going. I get to see the inside of our new place on Monday.

We aren’t going far … just about 5 minutes from where we are now. Moving to a tad larger place; from this one bedroom/one bath to a two bedroom/two bath.

Thomas and Lillian will finally get to have their own space again! And, hallelujah to two bathrooms! It happens around September 9th – unless we have some sort of miracle and can move into a larger place here. Let the packing begin .. Again!! 😂💜 (photos from 2016)

**Update** The move got bumped to September 16th, due to a delay with NVE turning on the electricity!

Riding a Bicycle Through the Brilliant Golden Hour While the Moon Serenades

August 5 2019:

Golden hour walk with Thomas last night. He rode his bicycle – last photo. Beautiful, peaceful and relaxing.

August 6 2019:

After dinner walk …. Such variety …. Brilliant … 💙💙💙💛💛💛

August 8 2019:

Switched it around tonight. Moonlit walk with Lillian. Beautiful and perfect. 🌙

 

Record Views with a Side of Creamy Macaroni and Cheese

August 4 2019:

Something really cool happened on Friday, 8.2, with the Meeting the Authors website. Record views for a single day had been 100 from when the website launched about 3 months ago. On Friday, views reached 109! Screenshot shows 103. I forgot to take another before going to bed.

August 6 2019:

My new favorite cheese! It’s called Violife and I made creamy macaroni and cheese with the smoked provolone. Can’t wait to try the other flavors.