Top 10 Digital Diary Entries for 2019

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Top 10 Digital Diary Entries With the Most Views for 2019

  1. Movie Night: Castle in the Sky
  2. Movie Night: Mary and the Witch’s Flower
  3. Asking for Help and Please and Thank YOU – Chromosome 18 Family Conference
  4. Buy Me a Coffee – Thank YOU
  5. Movie Night: The Incredible Hulk
  6. The Wild and Crazy Journey to the 2019 Chromosome 18 Family Conference in Colorado Springs 
  7. Lillian Darnell Senior Graduation Photographs and Online Celebration
  8. When I Know It Is Time for a Lillian Break
  9. Stepping Into Doing for Self
  10. Fundraising for the 2019 Chromosome 18 Conference – Lillian and Breathe In and Breathe Out and Feel It by Camilla Downs

Thomas says, “Have a good year.”

Lillian says, “Happy New Year and Hope you Have a good start to the decade!”

Camilla says, “May we all be loved unconditionally and learn to love one another unconditionally.”

And so it is … xoxo

Throwback Post: Good to Hear from You and Dinner With The Romano Duo

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**THROWBACK POST**

May 28 2015

I’ve mentioned in the past that Lillian likes to email the authors of books she reads to let them know she liked the book. She’s also writing book recommendation posts on her blog and listing every book she reads!

She almost always gets a response, and I was moved by this latest response .. “Hi, Lillian,
So good to hear from you! Your website and posts are amazing! Good for you to read and write and to share your messages with the world.

I have a new book that just came out. It’s called BAYOU MAGIC. Before SUGAR I wrote NINTH WARD.

I love fairies and I love Salt Lake, too. I’ve been to Salt Lake twice.

Happy reading and thank you for contacting me.

Sincerely,
Jewell

Dr. Jewell Parker Rhodes
Founding Artistic Director, Virginia G. Piper Center for Creative Writing
Piper Endowed Chair
Professor of Creative Writing & American Literature
Affiliate, Center for Film, Media and Popular Culture”

May 28 2012:

We eat sooooooooo GOOD when those Romano peeps are here!!!! Yuuuuuuummmmmmmyyyyyyy!!!

 Romano Dinner May 28 2012

The Soothing Medicine of Mother Nature With a Million Questions

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February 16 2020:

Quick drive to Washoe Lake. Thank you Mother Nature for the soothing medicine. My entire body and soul relaxed deeply in your loving embrace.

It was a struggle to get Lillian to leave the house. It was a struggle to get her out of the car. I pray nature helped her, at least a little bit. Deeply grateful this beautiful lake is only about a 15 minute drive away. 🙏♥️♥️♥️🙏

February 20 2020:

Lillian left yesterday afternoon to spend a couple of days with The Romano Duo. A much needed break for both of us. Hope you’re having fun, Lillian!! 🎉🎉🎉

Thomas and I are just back from an hour long walk. Incredibly beautiful and peaceful …. Well, except for the million questions from Thomas.

From the moment he could talk he’s asked one question after another after another. He’s still at it. The questions have gotten harder to answer though!

When he was about 4 or 5 years old, my mom asked me how on Earth I answered all of his questions. I told her I just answered the most recent one. He literally used to ask a string of questions all at once! What a heart warming memory to have popped up! 💜💜💜

Nearly Done with the Lillian Turned 18 Buried in Paperwork Palooza

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February 19 2020:

Another one down, one more to go for the Lillian-turned-18-buried-in-paperwork-palooza. Power of Attorney for financial matters signed and notarized this afternoon. Last one is the Durable Power of Attorney for Health Care Decisions and End of Life Decisions. I need to discuss this one with Lillian more to make sure she understands it all. And, just a fun photo from happier times for us … Book signing for Lillian in June 2019 at Barnes & Noble.

Throwback Post: Operation Digging a Fireplace

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**THROWBACK POST**

May 28 2010:

Took a little break to perform an Operation with Thomas!! Bzzzzzz!!

Operation Game May 10 2010

May 29 2009:

Just wanted to let y’all know that Thomas is in the backyard “diggin a fire place so we can have hot dogs & marshmallows tonight”. When he gets done everyone’s invited over for a camp out!

Camilla’s Armed With a Bingo

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February 15 2020:

Thank you to my book blogger friend Kriti for having me on her fabulous blog. The tables are flipped and I discuss being an avid reader this time … Kriti writes amazing, very thorough book reviews. If you’re a book lover, you may want to head over and check out her blog ..

This month’s #ArmedWithABingo feature is my author friend, Camilla.

How’s reading going this year?

Reading is going great! I’m really enjoying the book reviews and interviews you share, Kriti. I get great book suggestions from you!

Thanks Camilla! 🙂 What made you join #ArmedWithABingo?

#ArmedWithABingo looked and felt different than anything I’d ever seen. I’m drawn to different ways of doing things …. Go here to read the full interview … It’s about a 2 minute read …

#ArmedWithABingo Reading Challenge – Camilla

 

Much Needed Walk With Beautiful Sky Reflections

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February 11 2020

A much needed walk this afternoon. Please continue sending the love, healing energy, and good juju to Lillian (and us) as I try to help her understand something. She’s never been in this space before and we are struggling. Deep gratitude. 🙏♥️♥️♥️🙏

February 14 2020

Wonderful walk around the lake today. Beautiful sky, clouds, and reflections. 💙

February 15 2020:

What a sky this morning?! Thank you Mother Nature … 🙏💙

Lillian and Camilla February 2020 Date Day

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February 13 2020

Lillian and Camilla February 2020 Date Day

First stop was for fries to share, a butterfly cookie for Lillian, and giant vegan ginger cookie for me.

Second stop was a beautiful walk, with a final stop for a bit of window shopping. xoxo

I deeply appreciate all the love being sent Lillian’s (our) way. It may look like all is well in these photos. Yet, the struggle continues. Tomorrow will be one week out from me ruining her life (as she sees it), one week out from me making a decision in the best interest of her mental and physical safety. Things are definitely better than last Friday. Yet, it’s slow going.

Deeply proud of Thomas throughout this entire ordeal. A younger sibling who stepped into the role of an older sibling this past week. As much as I tried not to have the maddening aspect of this, along with the sadness of this situation leak out of my eyes and heart to him, it happened. And he comforted me. Thank you Thomas. I love you.