Turning Scrapes and Holes Into Sparkles

**THROWBACK POST**

October 15 2013:

These two awesome little people I know gave me a beautiful gift last night. Thomas and Lillian were playing in the backyard yesterday afternoon when Thomas got a bit too rough pulling her around and she fell. She scraped her foot and tore a hole in her brand new pants that she adores … cause they *sparkle*!!

She was pretty upset with him and he was upset that he did that and upset that he has to be so gentle with her since she falls easily. After I got her calmed down I went outside to check on him. He said he wanted to pay to buy her a new pair of pants. I told him they cost $9 and he said “Awww, that will take all my money.”

He then asked if he could pay for 1/2 of the cost. I told him that sounded fabulous. He went in and apologized to Lillian and told her of his idea. About an hour later they got together in Thomas’ bedroom, happy with one another again, and each wrote and drew something in this card for me. I think the three of us are a perfectly matched trio! xoxo

Card for me from T & L 10.15.13 #1 Card for me from T & L 10.15.13 #2 Card for me from T & L 10.15.13 #3

How It Feels to Be A Sibling to Lillian

**THROWBACK POST**

February 19 2013:

One of our sweet Chromosome 18 friends is doing a research project on Chromosome 18 affected individuals and their family for school and asked us to participate.

Here’s Thomas‘ contribution … being interviewed regarding how it feels to be a sibling to Lillian! Go Courtney MacMasters¬†Go! Courtney is sibling to one of our C18 affected friends!

Why I Involve My Kids in Practicing Mindfulness

**THROWBACK POST**

February 3 2016:

Dear Thomas,

I know how sometimes you long to have a “typical” sibling and “typical” sibling relationship …

https://themighty.com/2014/07/letter-to-the-siblings-of-a-brother-or-sister-with-a-disability/

After a huge Lillian meltdown this morning which caused him to be a wee bit late for school.

I am trying to help him notice when it’s not a good idea to push Lillian. He does try so hard, but just wants to not have to try sometimes. Lillian is making huge progress, yet, we still have those moments. Thomas’ teacher shares often with me how she enjoys his presence in the classroom as he’s so empathetic and compassionate.

I have recently pulled back from intervening when they decide to be unkind with one another. I’ve explained that I have taught them methods to use and I model those methods. It is up to them whether they use them or not.

This morning it escalated, I remained calm and not involved. It escalated and escalated and escalated. There was screaming and door slamming. I remained calm and not involved. I got scratched and pinched, I remained calm. I kept emphasizing that I’d be happy to help her get calm and to let me know when she was ready.

And. Finally, Lillian asked for help in calming down. I walked her through a meditative breathing exercise and we moved on …. I don’t always remain calm. I did this morning and it makes such a huge, huge, huge difference when I do. Mindfulness is an amazing way to live …

Yes, this. I am blessed and grateful that we are a team. I am having the time of my life on this journey with them. The joy, suffering, happiness, peace, love, and all … xoxo

Camilla and Thomas 2.3.16 - Picture from a Dried Up Washoe Lake in Fall 2015