Camilla interviews Lillian on The Chromosome 18 Registry facebook page on February 18 2018. This is part of the Registry’s self-advocate live broadcast series.
Lillian answers questions about being a part of the C18 Registry and what it’s like living with 18p-. She also talks about her debut book at 16 years old.
Learn more about the book here, https://www.WhereWouldYouFly.com and learn more about The Registry by going here … https://www.Chromosome18.org …
**THROWBACK POST**
December 10 2013:
I am creating a blog post and video this week where I ask for big help. I rarely ask for help so this is interesting! Will let y’all know when it’s ready! Until then, may this bring a smile to your face …
My “compliments” from T & L last night.
Thomas: You make good meatloaf, You make good snowballs and I love you.
Lillian: I like your Christmas socks, I love your meatloaf, I like your way of improvising. I like your gifts, I like how you believe in fairies and I like your food. You’re Great!
Why not make a compliment card for someone you love today? We try to do it once per week! It just feels GOOD!
February 15 2018:
Official Book Launch for Lillian Darnell’s book, “Where Would You Fly” …. Join us! The goal is to get Lillian’s book noticed!
If it feels right for you, we invite you to help by joining for the official book launch, sharing the event, sharing the book website, purchasing a book, or just popping over to say Hi!!
No matter what! We just wanna have fun with this!! xoxo
Please join us for the official book launch of Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” … Let’s help this amazing teen have a best selling book!
During the hours of 5:00 am and 8:00 pm PST purchase the book from Amazon. The more books purchased during this targeted time, the more likely it will reach best selling status. We will post the direct link to the book as soon as we have it.
We will hold periodic live facebook broadcast throughout the day and Lillian will be on our local KOLO 8 news at 4:30 pm. We’ll post the times of the facebook live broadcasts soon.
Thank you and oceans of gratitude to everyone … xoxo
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Help bring awareness to Where Would You Fly!
If you’ve been waiting for the book on Amazon, this is the day to get it! The more purchases on this day the better.
If you already purchased the book from us, this is the day to leave a review on Amazon. Even though you didn’t purchase on Amazon, you can still leave a review.
And, if you don’t want to wait until 2.27 to purchase, you can still get it from us. We have plenty! Plus, you’ll get a signed book that way!
Let’s have some fun on 2.27!! We’ll also have a few live broadcasts throughout they day on 2.27. Feel free to share this event to help spread the word. Thank you!! xoxo
Go here to learn more about the official book launch on February 27th …
https://www.facebook.com/events/180368359358261/
February 4 2018:
I received my copy of Lillian’s beautiful book and have enjoyed browsing through the many delightful stories. I love the immensely witty dialogue and the truly magical storylines, and I swear there is a bright light shining through each and every word. One of my favorites is “A Mindful Mermaid Story.” I think I’ll have to try doing some MM sometime. : ) And, I definitely also love my notebook!
February 4 2018:
61 books ordered and received on January 24th. 3 remaining. WOW! and YAY! Oceans of gratitude! xoxo
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February 5 2018:
As part of Chromosome 18 Registry & Research Society Facebook Live Series, Lillian Darnell, will be interviewed on Sunday, February 18th, at 6:00 pm CST.
She will talk about her hobbies, what it’s like being a part of the C18 family, her biggest dream, what it’s like living with 18p-, and her debut book. Does anyone have a question(s) they would like answered? xoxoxo (Be sure to “like” the C18 facebook page linked above if you’re interested in attending.)
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February 5 2018:
Camilla Downs, guess what came in the mail today?!? Serena is very happy and impressed since I explained how old your kids are and that they are the AUTHORS! She wants to go visit you now 😃! Great job Lillian and Thomas!! 💗☮
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February 5 2018:
Yay!!! Lillian Darnell look what arrived in our Mailbox today xx thanks to your Mum Camilla Downs for posting this to Us. Ella’s favourite chapter so far is The Flying Unicorns create a Rainbow 🌈 as Ella loves Rainbows and unicorns.
For my FB friends that don’t know, Lillian and Ella share something very special. They are Unique human beings who only come around once in every 56,000 births. They are missing the short arm of their 18th Chromosome. We have become friends with Lillian, her Mum Camilla and Brother Thomas. Even though they live in Reno USA we keep in touch most days 💖
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February 6 2018:
February 27th at 4:30 pm PST on KOLO 8 with Sarah Johns for Lillian Darnell to talk about her book!! … xoxo
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February 6 2018:
Camilla look what I found in the mail box : )
So excited and look forward to reading it – so thrilled Lillian xx – Ailsa J., Australia
February 7 2018:
My friend Lillian Darnell just wrote a book and it is awesome. I just finished the book. -Rebecca P.
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February 8 2018:
The wait is over! Lillian Darnell’s debut book, “Where Would You Fly” & Other Magical Stories has arrived! Lillian is 16 years of age & is a published author! Her Mom, Camilla Downs & her brother, Thomas Darnell are also published authors. That makes 3 for Team TLC! Lillian will be featured on KOLO 8 with Sara Johns, Tuesday February 27, 2018 at 4:30 PST. She is an Amazing young lady & wise beyond her years! – Carolyn S, Reno
Thank you so much Carolyn … for all that you BE. Not just this .. for the 6 or 7 years we have known one another and supported one another and become true friends. Oceans of gratitude … I LOVE YOU!!! xoxo
Can you hear me singing,
“WE ARE Family!” I Love Team TLC! Y’all are Shining brightly right where you are! Keep going! Push through! There’s a pot of gold on the other side of that rainbow.
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February 10, 2018:
Thumbs up from Alanna !!!
Finally!! One of the last HUGE tasks finished! Thanks so very much to a sweet and beautiful friend who on the DUE DATE of her little lion created this with the photos I put together. YAY!!!!
I invite you to spend about a minute and a half watching our creation. xoxo
**Artist: Nazar Rybak
Title: Children Fun Times
**THROWBACK POST**
December 9 2013:
The other day Thomas was complaining about having to take the garbage outside. He was still complaining when he asked for my help to tie the bag. I shared with him that there are things I really don’t want to do around the house ..
Like clean the toilet or anything having to do with the stuff that goes into a toilet. Shared that I think to myself, “I’m so grateful we have a toilet to use, a toilet that’s in a house that we get to live in.” I suggested he could say to himself as he’s taking out the trash, “I’m so grateful we have trash to take out. It means we have food to eat.” He said, “I like that! Thanks!”
I truly love the little lessons I get to give myself by having these two in my life! xoxo
**THROWBACK POST**
December 7 2015:
Last night before I read to Lillian and Thomas we did a “laughing” mindfulness session together. This one is really easy. Everyone stands ….. and …. just starts laughing. At first the laughs are forced, yet it’s magical how the laughs become genuine belly laughs that you cannot stop once started.
I mentioned something about this activity distracting one from non-stop thoughts. We sat down to read a chapter in “Stillness Speaks” and just so happens to have been about how we spend most of our time “distracted” by our thoughts. After I had read a page, Thomas asked if I had read this before deciding to have the “laughing” session. I told him that I had not and that usually what we need to hear or see comes into our life when we are open to it. As there was also a section on boredom and Thomas had repeated several times during the day that he was bored.
I was moved to share two sections from the chapter we read with you. I just happened to be in need of this wonderful reminder too!
“If you can recognize, even occasionally, the thoughts that go through your mind as simply thoughts, if you can witness your own mental-emotional reactive patterns as they happen, then that dimension is already emerging in you as awareness in which thoughts and emotions happen – the timeless inner space in which the content of your life unfolds. The stream of thinking has enormous momentum that can easily drag you along with it.” and “When you feel bored, you can satisfy that by reading, texting, using a digital device, etc ….. Or you can stay bored and restless and observe what it feels like to be bored and restless. As you bring awareness to the feeling, there is suddenly some space and stillness around it.” – Stillness Speaks
I so love it when this happens for me, and I especially love it when it happens for our whole family. I am so blessed to have chosen the path to learn and practice mindfulness, meditation, and emotional connection … and to share and facilitate this for others. May this be helpful in some way for YOU, too! xoxo
January 29 2018:
The book is here!!!! Can’t wait to read it. -Rebecca P.
“It is so cool, awesome, good, and exciting” -Rebecca P.
More photos from Rebecca ….
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Scored with a very short line at the post office again!! Wahoo!!! That’s the last of the pre-orders (except for one beauty that gets to fly to Australia)!!! Another one of these is flying to Australia too … Queensland this time! Aussie seems to be a hot spot for magic and fairy tales!!
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January 30 2018:
“Got these lovelies in the mail today; thank you Camilla Downs & Lillian Darnell for sharing your stories and brightening the world!” – Kimberly P.
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January 30 2018:
“I received a very special book today in the mail bought for me by my Dad, Michael Crowder. And it is autographed!! This book was written by Ms. Lillian Darnell who is a member of our Chromosome 18 family!! Can’t wait to read it!!” – Tracy S.
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January 30 2018:
She’s nervous. Yet, excited! Next month, Lillian Darnell will be interviewed on KOLO 8 about her debut book! Go Lillian GO!
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January 31 2018:
Guess who I just dropped off at the post office to fly to The Netherlands? Just WOW! xoxo
She’s 227 pages and has a beautiful cover. Oh, and she’s magical and enchanting on the inside … xoxo
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February 2 2018:
Thank you, Lillian for signing Ally’s book. She was so excited to get it in the mail. Much love to you guys!!!
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February 2 2018:
Lauren M. was so excited to come home after school at find her book in the mail. Thanks Lillian Darnell! We’re excited to get reading!
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February 2 2018:
It was a great day to send “Where Would You Fly” to the Library of Congress!! May she make some magic there! Plus, one to Lennox Head Australia and two to The Netherlands a couple of days ago!! Wahooo!!! Fly, Fly, Fly!!
**To learn more about Where Would You Fly, go here … https://www.LillianDarnell.com/Author
February 1 2018:
Today was volunteer day for Thomas and I. After socializing with the cats, we cut sheets for use in the cat infirmary.
We did the cutting in a conference room and Thomas asked me twice why they had a Geiger counter. I finally asked him to point out what he was talking about. What do you think it was?**
It’s incredibly hard to cut sheets with regular paper cutting scissors. They really need a few pairs of fabric scissors. I feel like I mangled those sheets! Ha!
And look what I found under one of the sheets. I somehow cut a heart shape piece of fabric while mangling, I mean cutting, one of the sheets.
**A typewriter!!! HA!!**
January 31 2018:
Oh so inspiring Alchemist Theatre tonight!! Missed you dearly Jessica Levity Daylover!!! Yet, hallelujah!!! For being Brave!!! Alchemist Theatre presents “Fear”
That closing song did it for me! KAPOW!!! I will survive!! Oh my gosh Carolyn R Smith!!! You serenaded my soul!
Denise Sheehan ….. Beautiful, sweet, and delicious alchemy shamama meditation! How amazing that one of my supporting themes of 2018 was a part of it!! Wahooo!!!
And. To seal the evening. Check out sister moon framed by this amazing, gorgeous, and handsome tree!!!
Thomas and I had inspiring and enlightening conversation during the drive there and back home … About love and kindness and laws and people who commit crimes. Amazing! Can you tell I’m a wee bit pumped! Ha!
Ending song sung by the sizzling Carolyn:
Gloria Gaynor – I Will Survive
“At first, I was afraid, I was petrified
Kept thinking I could never live without you by my side
But then I spent so many nights thinking how you did me wrong
And I grew strong and I learned how to get alongAnd so you’re back from outer space
I just walked in to find you here with that sad look upon your face
I should have changed that stupid lock
I should have made you leave your key
If I’d have known for just one second you’d be back to bother meGo on now go, walk out the door, just turn around now
’cause you’re not welcome anymore
Weren’t you’re the one who tried to hurt me with goodbye?
You think I’d crumble? You think I’d lay down and die?Oh, no, not I, I will survive
Oh as long as I know how to love, I know I’m still alive
I’ve got my life to live, and I’ve got all my love to give
And I’ll survive, I, I , I will surviveIt took all my strength not to fall apart
Trying with all my mind to mend my broken heart
I spent, so many nights feeling sorry for myselfOh, I used to cry but now I hold my head up high
And you see me, somebody new
Not that lonely little person still in love with you
Now you come dropping in expecting me to be free
Now I’m saving all my loving for someone who’s loving meGo on go, walk out the door, turn around now
You’re not welcome anymore
You’re the one, who tried to hurt me with goodbye?
Did you think I’d crumble? Did you think I’d lay down and die?Oh, no, not I, I will survive
Long as I know how to love, I know I’ll stay alive
I’ve got my life to live, and all my love to give
And I’ll survive, I, I , I will survive
Go on go, walk out the door, turn around now
You’re not welcome anymore
You’re the one, who tried to hurt me with goodbye?
Did you think I’d crumble? Did you think I’d lay down and die?Oh, no, not I, I will survive
Long as I know how to love, I know I’ll stay alive
I’ve got my life to live, and all my love to give
And I’ll survive, I, I , I will survive”
I love this song!! It used to be about a broken relationship. Yet, not anymore. It’s about the ego and psyche for me these days. Much love to you! xoxo