A Moment of Defeat – Again


December 12 2014:

Lillian with Tiarra Maybe 2010

I had another one of “those moments” Wednesday night … like the moment that caused me to write this blog post and the one before it.

This involved some pretty strong emotions so I’m working on writing another and just read the blog posts from 2010 and 2012 again. Thought I’d share here …

I Wish I Wasn’t An 18p- Girl: Moment of Defeat – Take Two


One Blood Test – One Phone Call – One Moment in Time


December 11 2015:

The Gift of One Article by Camilla 12.11.15 #1 The Gift of One Article by Camilla 12.11.15 #2

What a magical surprise waiting in the mail today! After it took an HOUR to drive to HDMS to get Thomas this afternoon. It usually takes 12 minutes. Then 30 minutes home as we had to bypass the closed portion of the highway.

It was a blessing to have this waiting in the mail …. along with another envelope with some surprise money for Team TLC. Thank you Veronica Wain for mailing hard copies of the journal. This is the third nudge I’ve received today to share this article again which was published this past fall.

Listening to those nudges … Here’s an excerpt and a link to read the full article. May your heart land on just the right passage at just the right moment …

“One blood test, one phone call, one moment in time, drastically changed the direction of my life forever. I know more about genetics, chromosomes, DNA, motor skills, verbal skills, and now emotional and behavioural issues than I ever thought I would need or want to know. ……. I thought I had life pretty much planned at that point and for a while this brief phone call seemed to have caused my life to break apart like a melting iceberg with pieces scattering here and there. Looking back now, all that was brought into my life, all that occurred, all that began, and all that ended were meant to happen for my own growth and enlightenment. An enlightenment I feel spreads far beyond myself and my family as I believe we are all connected.”

My Journey With Intellectual Disability and Relationships – A Short Memoir

I Understood THAT word


December 11 2013:

Pondering something deep …

How can she clearly pronounce cuss words even though she is speech impaired and I can usually only understand half of what she says? ….. I was in the other room and heard Lillian about to have a throw down with the computer ….

Thought to myself .. “I understood THAT word!” Made me giggle. Hope it makes you laugh too!

Camilla Downs Interviews Lillian Darnell on the Chromosome 18 Registry Facebook Page

Camilla interviews Lillian on The Chromosome 18 Registry facebook page on February 18 2018. This is part of the Registry’s self-advocate live broadcast series.

Lillian answers questions about being a part of the C18 Registry and what it’s like living with 18p-. She also talks about her debut book at 16 years old.

Learn more about the book here, http://www.WhereWouldYouFly.com and learn more about The Registry by going here … http://www.Chromosome18.org

Official Book Launch – Where Would You Fly

February 15 2018:

Lillian Getting First Order of Books Where Would You Fly 1.24.18 #1

Official Book Launch for Lillian Darnell’s book, “Where Would You Fly” …. Join us! The goal is to get Lillian’s book noticed!

If it feels right for you, we invite you to help by joining for the official book launch, sharing the event, sharing the book website, purchasing a book, or just popping over to say Hi!!

No matter what! We just wanna have fun with this!! xoxo

Please join us for the official book launch of Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” … Let’s help this amazing teen have a best selling book!

During the hours of 5:00 am and 8:00 pm PST purchase the book from Amazon. The more books purchased during this targeted time, the more likely it will reach best selling status. We will post the direct link to the book as soon as we have it.

We will hold periodic live facebook broadcast throughout the day and Lillian will be on our local KOLO 8 news at 4:30 pm. We’ll post the times of the facebook live broadcasts soon.

Thank you and oceans of gratitude to everyone … xoxo


Help bring awareness to Where Would You Fly!

If you’ve been waiting for the book on Amazon, this is the day to get it! The more purchases on this day the better.

If you already purchased the book from us, this is the day to leave a review on Amazon. Even though you didn’t purchase on Amazon, you can still leave a review.

And, if you don’t want to wait until 2.27 to purchase, you can still get it from us. We have plenty! Plus, you’ll get a signed book that way!

Let’s have some fun on 2.27!! We’ll also have a few live broadcasts throughout they day on 2.27. Feel free to share this event to help spread the word. Thank you!! xoxo

Go here to learn more about the official book launch on February 27th …



The Books Are Arriving and Chromosome 18 Facebook Page Live Event

February 4 2018:

I received my copy of Lillian’s beautiful book and have enjoyed browsing through the many delightful stories. I love the immensely witty dialogue and the truly magical storylines, and I swear there is a bright light shining through each and every word. One of my favorites is “A Mindful Mermaid Story.” I think I’ll have to try doing some MM sometime. : ) And, I definitely also love my notebook!

Michaela's Where would you fly book 2.4.18 #1 Michaela's Where would you fly book 2.4.18 #2 Michaela's Where would you fly book 2.4.18 #3

February 4 2018:

61 books ordered and received on January 24th. 3 remaining. WOW! and YAY! Oceans of gratitude! xoxo


February 5 2018:

As part of Chromosome 18 Registry & Research Society Facebook Live Series, Lillian Darnell, will be interviewed on Sunday, February 18th, at 6:00 pm CST.

She will talk about her hobbies, what it’s like being a part of the C18 family, her biggest dream, what it’s like living with 18p-, and her debut book. Does anyone have a question(s) they would like answered? xoxoxo (Be sure to “like” the C18 facebook page linked above if you’re interested in attending.)

Facebook Live Broadcast C18 2.5.18


February 5 2018:

Camilla Downs, guess what came in the mail today?!? Serena is very happy and impressed since I explained how old your kids are and that they are the AUTHORS! She wants to go visit you now 😃! Great job Lillian and Thomas!! 💗

Carissa's Books 2.5.18


February 5 2018:

Yay!!! Lillian Darnell look what arrived in our Mailbox today xx thanks to your Mum Camilla Downs for posting this to Us. Ella’s favourite chapter so far is The Flying Unicorns create a Rainbow 🌈 as Ella loves Rainbows and unicorns.

For my FB friends that don’t know, Lillian and Ella share something very special. They are Unique human beings who only come around once in every 56,000 births. They are missing the short arm of their 18th Chromosome. We have become friends with Lillian, her Mum Camilla and Brother Thomas. Even though they live in Reno USA we keep in touch most days 💖

Debbie Goodrick Book 2.5.18


February 6 2018:

February 27th at 4:30 pm PST on KOLO 8 with Sarah Johns for Lillian Darnell to talk about her book!! … xoxo


February 6 2018:

Camilla look what I found in the mail box : )
So excited and look forward to reading it – so thrilled Lillian xx – Ailsa J., Australia

Ailsa in Australia Got Book 2.6.18

February 7 2018:

My friend Lillian Darnell just wrote a book and it is awesome. I just finished the book. -Rebecca P.


February 8 2018:

The wait is over! Lillian Darnell’s debut book, “Where Would You Fly” & Other Magical Stories has arrived! Lillian is 16 years of age & is a published author! Her Mom, Camilla Downs & her brother, Thomas Darnell are also published authors. That makes 3 for Team TLC! Lillian will be featured on KOLO 8 with Sara Johns, Tuesday February 27, 2018 at 4:30 PST. She is an Amazing young lady & wise beyond her years! – Carolyn S, Reno

Carolyn Smith with Book Where Would You Fly 2.8.18

Thank you so much Carolyn … for all that you BE. Not just this .. for the 6 or 7 years we have known one another and supported one another and become true friends. Oceans of gratitude … I LOVE YOU!!! xoxo

Can you hear me singing,
“WE ARE Family!” I Love Team TLC! Y’all are Shining brightly right where you are! Keep going! Push through! There’s a pot of gold on the other side of that rainbow.


February 10, 2018:

Thumbs up from Alanna !!!

Alanna with Where Would You Fly Book 2.10.18

Where Would You Fly Book Trailer

Finally!! One of the last HUGE tasks finished! Thanks so very much to a sweet and beautiful friend who on the DUE DATE of her little lion created this with the photos I put together. YAY!!!!

I invite you to spend about a minute and a half watching our creation. xoxo

**Artist: Nazar Rybak
Title: Children Fun Times

The Book is There and in Queensland Australia and Lillian on KOLO 8 News and The Netherlands and Louisiana and Library of Congress

January 29 2018:

The book is here!!!! Can’t wait to read it. -Rebecca P.

Rebecca with Where Would You Fly 1.29.18

“It is so cool, awesome, good, and exciting” -Rebecca P.

More photos from Rebecca ….

Rebecca's Where Would You Fly Book 1.29.18 #1 Rebecca's Where Would You Fly Book 1.29.18 #2 Rebecca's Where Would You Fly Book 1.29.18 #3


Scored with a very short line at the post office again!! Wahoo!!! That’s the last of the pre-orders (except for one beauty that gets to fly to Australia)!!! Another one of these is flying to Australia too … Queensland this time! Aussie seems to be a hot spot for magic and fairy tales!!

Post Office Trip Where Would You Fly Book 1.29.18


January 30 2018:

“Got these lovelies in the mail today; thank you Camilla Downs & Lillian Darnell for sharing your stories and brightening the world!” – Kimberly P.

Kimberly Where Would You Fly Books 1.30.18


January 30 2018:

“I received a very special book today in the mail bought for me by my Dad, Michael Crowder. And it is autographed!! This book was written by Ms. Lillian Darnell who is a member of our Chromosome 18 family!! Can’t wait to read it!!” – Tracy S.

Tracy S. Where Would You Fly Book 1.30.18 #1 Tracy S. Where Would You Fly Book 1.30.18 #2


January 30 2018:

She’s nervous. Yet, excited! Next month, Lillian Darnell will be interviewed on KOLO 8 about her debut book! Go Lillian GO!


January 31 2018:

Guess who I just dropped off at the post office to fly to The Netherlands? Just WOW! xoxo

She’s 227 pages and has a beautiful cover. Oh, and she’s magical and enchanting on the inside … xoxo


February 2 2018:

Thank you, Lillian for signing Ally’s book. She was so excited to get it in the mail. Much love to you guys!!!

Ally with Where Would You Fly Book 2.2.18 #1 Ally with Where Would You Fly Book 2.2.18 #2


February 2 2018:

Lauren M. was so excited to come home after school at find her book in the mail. Thanks Lillian Darnell! We’re excited to get reading!

Lauren with Where Would You Fly Book 2.2.18 #1 Lauren with Where Would You Fly Book 2.2.18 #2


February 2 2018:

It was a great day to send “Where Would You Fly” to the Library of Congress!! May she make some magic there! Plus, one to Lennox Head Australia and two to The Netherlands a couple of days ago!! Wahooo!!! Fly, Fly, Fly!!

Library of Congress Where Would You Fly Book 2.2.18

**To learn more about Where Would You Fly, go here … http://www.LillianDarnell.com/Author

Where Would You Fly Update – Big News

February 7 2018:

Two big announcements!! Plus, I ask Lillian: 1) what inspires her writing and 2) what happens for her when she sits down to write a story … I LOVE her answer to this one and think you’ll like it too!! Posted on fairy wings of love to fly your way!! xoxo

If you’d like to learn more about Lillian’s debut book, Where Would You Fly, go here … http://www.LillianDarnell.com/Author … With much gratitude to all who are cheering us on and celebrating with us!