Magic and Stairs and Cookies and Rainbows

June 12 2016:

I have been working on this post for two days now! Done! It’s a throwback to 2010 and 2011 with updated content. I came across an article the other day that moved me to the core and just knew in my heart I must write this.https://camilladowns.com/…/the-power-and-magic-of-connected…/

Now we can go on a little adventure and then back to create a special poem to accompany a very special painted rock for a beautiful soul way down in the bayou.

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June 15 2016:

She set a goal of going up 2 stairs, without holding onto me, before her physical therapy appointment today. She did it yesterday afternoon! By next Wednesday it will be 4 or 5 steps! Wahoo!!!

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We’re working on the book trailer for Thomas’ upcoming book … “Grand Adventures of the Biggest Little Photographer” … Here’s a fun picture I took of him taking a picture of the mini figure taking a picture.

The book will contain many of the photos he took during the 365 day photo project he decided to do on his own when he was 8 years old. It will also include an introduction of how it began, quotes, and a bit of the story along the way. Coming Fall 2016 – You can pre-order if this sounds like something that interest you or if you know a LEGO enthusiast!!  … xoxo

Thomas Taking Picture of Minifigure Taking a Photo 2014

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June 16 2016:

And just because. We made chocolate almond flour cookies last night at 8:30. Toasted to Team TLC and read our read-aloud-book!!! So YUM!!!

Chocolate Almond Flour Cookies June 16 2016

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Looks like a grand adventure awaits us next month! The Chromosome 18 conference is in San Antonio this year, July 10-13th and we are going to drive. We found out today that an organization that has helped us get there the past two years is not able to help this year. xoxo

Google Maps suggests three different routes. Has anyone out there driven any of these routes, know the road conditions, etc … Need to decide which is the best route. What about campgrounds on any of these routes? Know about any?

Every year Thomas and Lillian both want to contribute to getting us to the conference. They come up with their own ideas and offer their creations through each of their websites. Here are the different ways to support our trip if it feels right to you (and a link to a blog post with more information …https://camilladowns.com/…/2016-chromosome-18-conference-sa…/):

Route suggestions per above
Painted Rocks by Thomas
Leaf at Sunset by Thomas
Nature Adventure Set by Thomas
Mini-figure photo a day prints by Thomas
Pre-order “Grand Adventure of the Biggest Little Photographer” by Thomas
Random Act of Love Cards
Services by Thomas (errands and poop scooping – in Reno area) (email me regarding this one)
Egyptian Eye by Lillian
Rainbow of Emotions by Lillian
Custom Abstract Art by Lillian
Mystique Boutique
Walk With Me
“D iz for Different” book
Custom Poem by Camilla

Google Maps June 2016

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This. Just when this message was needed. I was drinking my water earlier today and this is what I saw.

Received some news today that is not what I expected and kinda leaves me feeling really tired. Yet, I know there is a different way to see this … And this was a reminder. Sharing for anyone else who needs it …. xoxo

Heart Bottom of Glass June 2016

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June 17 2016:

Lillian’s latest blog post and her latest abstract art creation, Rainbow of Emotions. Let her know if you’re interested in having an 8 X 10 print of it. This is just a picture of it. The scanned version will have crisp clarity. May you enjoy her story about Rainbows and Love! xoxo

“Hey, everyone! This story is about rainbows and love. I hope you enjoy!

Once there lived 2 rainbows who didn’t want to separate for the love of nature. Their names were Candy Rainbow and Princess Rainbow. One day, Candy Rainbow was accidentally separated from Princess. What they didn’t know was the Nature fairy had split them in half.

Candy desperately looked for Princess but there was no sign of her. Meanwhile, Princess was where Candy wasn’t. She was anxious to find him but the Nature fairy wouldn’t let her. Candy got up to ask the Nature Fairy. What the fairy said, “No, I haven’t seen her. I didn’t separate you.”

Candy thought the fairy was being suspicious. Princess started suspecting the fairy. After a year past, they accidentally ran into each other. When the fairy found out, she was furious.

The fairy decided to put Princess invisible so she couldn’t be seen when they bumped into each other. Candy tried to explain to the Nature fairy that rainbow magic was more powerful than fairy magic. Since the nature fairy wouldn’t listen, Candy decided to show her what he tried to explain.

So his plan was to use his magic and power to get Princess out of the invisible world. So when Princess saw he was stretching out to use his power, she decided to reach over and touch his stretched arc. Candy felt lighter somehow but he didn’t know how.

Suddenly the invisible spell broke. The fairy was shocked at what happened but the fairy had to vanish. “It was me who helped you, Candy”, said Princess softly. “Thank you, Princess!” and the rainbows’ love was returned.

Princess thought if people saw them, it would be easier to have 1 rainbow be invisible. Princess decided to go invisible but Candy was able to see her. Every once in awhile, Princess appeared behind Candy. That is why some people see double or triple rainbows.”

Lillian's New Abstract Art May 2016

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June 17 2016:

Setting family intentions, making a plan, creating a “happy songs” play list, listening now, deciding on new rituals, and discussing the importance of gratitude.

That’s what Team TLC did this morning. Next up, framing our intentions and rituals and hanging on our wall. We are family and It’s a wonderful world with Three Little Birds singing “Every little thing’s gonna be alright” …. Hakuna Matata xoxo

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This one’s headed to live in Houma, Louisiana!! Have fun down in da bayou!! Rock is hand painted rock with acrylic paint and sealed. Poem created by me and handwritten on recycled materials ready to hang.

Walk With Me

I walk this path with legs
that have walked many miles.
I walk this path with arms
free of heavy burdens from the past.
I walk this path with a mind
that supports and encourages the heart.
I walk this path with a heart
that is pure and ripe with love.
I walk this path with eyes
fresh with new perspectives.
I walk this path with ears
awakened to natures sounds.
I walk this path with a nose
that inhales the sweetness.
I walk this path with mouth and lips
parted to breathe the benevolent essence.
I walk this eternal path home
with all beings as one. ~Camilla Downs 2016

 

Swimming and Shadows and Cool Clouds

April 20 2016:

Lillian finally got to go for a swim! Cloudy …. yet we had the entire pool to ourselves!

  

Windy and wonderful walk with Lillian yesterday after dinner. Chatting, the lake, shadows, and crazy cool clouds. xoxo
  
  

  
  

Blessings,

Team TLC
See It. Share It. BE IT … Spread Love Everywhere You Go!

Did you know Camilla wrote a book? It’s titled “D iz for Different – One Woman’s Journey to Acceptance” and you can read more about it here.

Latest Articles:
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I Found Bad Words

Lillian misquote – What I heard, “I found some bad words yesterday.”

What she really said, “I found where I was yesterday.”

April 22, 2016

Blessings,

Team TLC
See It. Share It. BE IT … Spread Love Everywhere You Go!

Did you know Camilla wrote a book? It’s titled “D iz for Different – One Woman’s Journey to Acceptance” and you can read more about it here.

Latest Articles:
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Intentions and Stairs and Sun Tea

Lillian had a great day at physical therapy yesterday. She said, “yes” to getting on the ladder and went up one step … FOUR times! YAY!!

She also told me that she going to use the stairs at least one time at the Chromosome 18 conference in San Antonio. We’ve been to this hotel before and she already knows what it’s like. There are stairs from the lobby to the 2nd floor meeting rooms and 4 years ago we had to take the elevator every time.

On Sunday she told me that in May or June she will start crossing the foot bridge (on the trail around the lake) without holding onto my arm so that she can practice for doing it along the riverwalk in San Antonio. Also, she wants to walk the entire Damonte Ranch Loop (about 4 or 5 miles) a few more times before going to San Antonio so that she can be prepared to walk as much as we’d like while there.

Then, we had a wonderful session with Alexa, her psychotherapist.

During the appointment I shared about what we’ve been up to these past 2 weeks and how it’s been going. The stories and words I shared brought tears to her eyes and she commented how much it touched her.

I am grateful and blessed that I have chosen the path of facing my own fears, becoming intimate with my emotions, traveling the path of a simpler life, and have learned the art of mindfulness … so that I can allow Thomas and Lillian to learn by example and involving them every step of the way.

It’s certainly not always joyful and I fall flat on my face at times; yet, I get up and keep going as this is the path of the heart and I am compelled to walk it.

Came home and I got tea ready to brew in the sun – rooibos and honeybush! YUM!! Picture of it brewing below.

After lunch we had Lillian’s craniosacral appointment. While there I changed this to a once a month appointment (instead of twice per month) as I just knew after her last session that this was the thing to do. Here’s a picture of Lillian outside the office.

We decided again to wait on swimming and cooking out as there were a few people at the pool and the wind was blowing. It had cooled down quite a bit too.

So we had a breakfast dinner! We LOVE our breakfast dinners!

Thomas chose the family activity last night. He chose one of the mindful activities we’ve done before. One person makes movements and sounds and the other 2 family members have to copy that person. He LOVES this one! We did this for about 20 minutes and had so much FUN!


Blessings,

Team TLC
See It. Share It. BE IT … Spread Love Everywhere You Go!

Did you know Camilla wrote a book? It’s titled “D iz for Different – One Woman’s Journey to Acceptance” and you can read more about it here.

Latest Articles:
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Uncomfortable With The See-Saw

Lillian Misquote of the Day: What I heard … “I was uncomfortable with the see-saw.” What Lillian actually said …. “I was uncomfortable with the sheets off.” (I didn’t now she had a see-saw in her bed!!)
6.15.12

Blessings,

Team TLC
See It. Share It. BE IT … Spread Love Everywhere You Go!

Did you know Camilla wrote a book? It’s titled “D iz for Different – One Woman’s Journey to Acceptance” and you can read more about it here.

Latest Articles:
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Can I Have A Multi-Pass

June 2012:

Most of you know that Lillian has a speech impairment … My day is filled with constantly telling her I don’t know what she’s saying ….

Sometimes I choose to make us both laugh and repeat back what I heard her say …. Tonight what I heard … “Can I have a multi-pass?” What she actually said, “Time has gone fast.” We both got a good ole laugh outta that one!! Told her I was out of multi-passes!! ♥ ♥ ♥

Blessings,

Team TLC
See It. Share It. BE IT … Spread Love Everywhere You Go!

Did you know Camilla wrote a book? It’s titled “D iz for Different – One Woman’s Journey to Acceptance” and you can read more about it here.

Latest Articles:
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Happy Birthday Lillian … Camilla

She began teaching me about acceptance and flexibility before I even met her … She has taught me about courage, expectations, improvising, and embracing uncertaintity … She has taught me by life lessons I choose to teach her …

Because of her and her brother I choose to make my way through cobwebs and clear some crud from my own childhood and youth that no longer serve me … Because of her I am conscious of the decisions and behavior I model … Because of her I thoughtfully choose the words I use with her and in front of her as I know, she and her brother too will one day be adults and I want what they experience in childhood to benefit them …

HAPPY BIRTHDAY to one amazing, beautiful, shining young lady …. Happy 11th Birthday Lillian …. I am grateful and blessed to have you in my life and to be your Mama!! ♥ ♥ ♥

9.14.12

The Big Pool

By: Lillian Darnell

I love pools.

Once I get used to Pools. I like it as long as it has stairs. The pool has water. The pool is square or circle. You can swim and play in the pool. You can splash in the pool. The pool water sparkles in the sun. Everything reflects in the pool water.

May 16 2012

 

Need You To Help

“I need you to help” – Lillian Darnell … I know, what’s so special about that? Lillian said this CLEARLY. Every single word. Said it slowly and pronounced EVERY single word! It is a time to celebrate when Lillian clearly states a complete sentence intelligibly. WooooHoooooo, Happy Dancin, High Fives and Toasts all the way around the World!! “I Need You To Help” – EVERY WORD PRONOUNCED INTELLIGIBLY!! 🙂

3.6.12