**THROWBACK POST**
April 26 2014:
Last night’s reading …. Cookbooks!!
The place we’re house sitting (The Romano Duo’s house) has some awesome cookbooks. One cookbook was created by the American Women’s Club of Lagos, Nigeria …. titled “Up The Creek Without A Paddle”.
It contains an entire section titled “Living in Lagos (Tips for Newcomers)”. So awesome that Mammaw Mann contributed to this book! ♡
June 12 2018:
Another awesome Lillian story … ” …. If you see a hummingbird, that may be Rebecca or Abby flying by ….. ”
May 24 2018:
Tomorrow morning is the beginning of the Team Member L and Romano Duo adventure! Lillian is riding back to Surprise, Arizona with mom and Frank for a vacation for her!! Which means respite for me!
It’s been nearly 3 years since I’ve had respite from Lillian. I’d be telling an un-truth if I said I wasn’t a tad bit excited. And, I know she is too!! May the force be with The Romano Duo … And all the Angels too!! Photo from September 2015
May 25 2018:
They’re off!!! Let the “almost” respite begin for me ….. As I have Thomas here with me. 😜
Lillian’s gonna have a great time!!! Yay for her to get a vacation!! She gets to spend nearly 2 weeks with The Romano Duo in Surprise, Arizona!! Wahooo!!!
May 27 2018:
Sent an hour and a half after she left on Friday!! Ha!
I am incredibly happy she’s getting this time with The Romano Duo and I’m getting a break.
After nearly three years straight of her needing me, talking to me constantly, and being me walking buddy; I’m bouncing back and forth between thinking I should be doing something, being relieved that I don’t have to do anything for her, feeling sad because she’s not here, and feeling free because she’s not here. Crazy stuff …. Yet, all good stuff!!
May 30 2018:
I’m as excited about this as Lillian. Well, maybe almost as excited. Turns out one of our Chromosome 18 friends, The Bakers, live near Surprise, Arizona!!!!! Katie came over to the Romano Casa and spent a few hours swimming and hanging out with Lillian.
The Bakers were one of the first families we became friends with at our first conference in 2009 in Vegas and every conference thereafter. Katie deemed herself honorary big sister to Lillian. One of the major reasons going to conference is so incredibly important to Lillian. So beautiful!!!xoxo
June 3 2018:
She’s been swimming and watching movies and eating donuts!! Lillian is having a great time with The Romano Duo.
June 10 2018:
She’s back!!!!! And she’s cracking me up! “We stopped at the alien store …… “ Only driving through the Nevada desert!!! And, “Patty and Frank say a lot of cuss words under their breath.” And, telling on herself. “I stayed up all night long while I was there. I stayed up till 2:00 one morning.”
June 3 2018:
Walk with Thomas before dinner. We watched for about fifteen minutes as this momma duck led her wee ducklings through the rocks to the water.
It was difficult to watch and not want to help as they kept sliding down the rocks. They finally made it!!! Safe and sound!! Whew! I circled the ducklings and the momma in blue because they blend with the rocks.
There was quite the cloud show.Rainbow cloud in the second photo. The photo doesn’t show all the colors; yet, it was amazing. Incredibly beautiful!!!
June 4 2018:
After dinner walk tonight with Thomas. Just missed the sunset; yet, still incredibly beautiful! Followed our walk with a starlit swim in the pool. Ahhhhhh!!!! Feeling incredibly blessed and grateful!
June 5 2018:
Shining bright for all to see and feel.
June 5 2018:
Photo bombed by a bee. He thinks these are beautiful too!
**THROWBACK POST**
April 26 2013:
Watchin the sun set with Thomas and Lillian … Blessed, Grateful, Inspired …
**THROWBACK POST**
April 26 2012:
You see it? That tooth right there? Been loose for about NINE months. We’ve been wiggling it for 10-20 minutes every day for the past 3 weeks to get that sucker out! We had an appointment this past Monday to get it pulled; which I cancelled cause it was SOOOO close! It is OUT and Team TLC will be celebrating! Think this calls for a dance party!
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April 26 2012:
Here’s to Thomas having a good week at school AND here’s to ME for finally getting that tooth out of Lillian’s mouth and here’s to Lillian for being so strong and courageous!! Cheers!!!
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” …. their really saying, I Love YOU ….. ” courtesy of Thomas who was singing this song tonight … “What a wonderful World”https://youtu.be/m5TwT69i1lU {We listened to a few different versions after he was singing it and his favorite is Louis Armstrong!) It truly is a WONDERFUL world ….
**THROWBACK POST**
April 26 2010:
Listening to Lillian talk to Thomas on the phone! What a hoot!
He keeps asking her questions & doesn’t understand her answers. He can’t read yet so she can’t send a text message!
I hear him saying the same things I say to her, “Just say yes or no”!! If he were here he would be telling her “Go get your phone/device and tell me”! This would be sad if I didn’t choose to have a sense of humor about it!!
June 5 2018:
Thank you to Hunter at Pixels & Ink! Just back from picking up mounted prints of Lillian’s artwork. They are beautiful and ready to go to their new homes!!! Much gratitude to the beautiful souls supporting Lillian’s fundraising efforts. xoxo
If interested in reading about Lillian’s fundraiser, go here …
Fundraising for the 2018 Chromosome 18 Family Conference – In Summary
**THROWBACK POST**
April 26 2009:
Took Thomas & Lillian to the Kid’s Fair on Saturday! They had so much fun!
Thomas & Lillian at Idlewild Park.
Thomas not so sure about the dude who keeps trying to get him to do a somersault.
He wanted to pick the balls up and throw them!
Most exciting part ~ diggin in the sand!
May 30 2018:
Rainbow of Emotions … Another from Lillian … She is fundraising to help attend the Chromosome 18 Conference next month. This is the 2nd piece she’s offering as a print. The first was The Egyptian Eye.
I’ve decided to sell prints or copies of Rainbow of Emotions once again to fundraise and help my family attend the annual Chromosome 18 conference. The print will be about an 8 X 10 size and mounted on foam board or similar ready to hang.
The Chromosome 18 conference helps me get over my fears and my emotions. It helps me feel brave, courageous, and enjoyable. Here’s an example: Last year in July when my family and I were inside the airport, I was fearful, nervous, tired, and afraid; yet, the view I got from the airplane was amazing and it was all worth it.
The really fun part is that YOU get to choose your own price! The base price is $25 to cover cost of printing, mounting, and shipping (US Only – Our overseas friends can email my mom at Camilla Downs @ gmail.com if you’re interested in purchasing a print).
Use this Paypal link and enter your own amount over the $25 base price. For example, if you want to donate $50 towards my fundraiser, then you would enter $75. Go here.
OR …. If you simply want a photo quality print, the base price is $15 to cover cost of printing and shipping. For example, if you wish to donate $25 to my fundraiser, then you would enter $40. Use this Paypal link. (Please note whether you want “Just the Print” or “Mounted Print”)
Here’s a story inspired by the Rainbow of Emotions:
A Flower’s Curious Emotions
Once long ago, there lived a flower named Rainbow who was always emotional. One day, the flower was very curious about why she was so emotional.
So the flower went to a wise flower named Emotions but liked to be called Lavender instead. When Rainbow got to Lavender’s home, Rainbow asked, “Why am I so emotional, Lavender?”.
Lavender laughed and said, “You are emotional because you are always inside any living thing but I can give you some wisdom if you think it will help”.
“Yes, I think it will help me better understand. I trust you and your wisdom.”, said Rainbow in excitement. So Lavender said, “The princess who owns the sky is sometimes called Rainbow of Emotions and she watches over you. Your emotions are actually inherited from the princess. I hope that wisdom helps.”
Rainbow said, “Thank you! That helps. Now I am very grateful for the princess’ emotions.” So Rainbow walked off happily. So if you ever see a rainbow or feel any emotion, chances are you could be experiencing either Rainbow’s emotions or the princess’ emotions.
That’s the end of the story.
Visit the link below to read further …
Fundraising for the 2018 Chromosome 18 Family Conference – Rainbow of Emotions