Category Archives: News and Events

Throwback Post: Kindness With a Chromosome Lesson While Sharing Gratitude

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July 20 2015:

One of my most favorite quotes in a great book we received today!! Sam is a C18 buddy who has 18q-. YAY Monica Tello McDivitt!!! Can’t wait to meet you and Sam face to face next year in San Antonio!!


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Went to Trader Joe’s today to stock up on food for the Chromosome 18 Conference. Since we’re driving this year, we get to take our own food! YAY! Thomas told the cashier about our plans and she wanted to know all about a chromosome 18 conference. Got to give another person a mini chromosome lesson. Always seems to be the cashiers at Trader Joe’s and Whole Foods who ask to know more. So friendly!! Here we are at the 2013 conference farewell dinner. xoxo


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July 20 2011:

I suggested to Thomas and Lillian that we make a poster to thank the organizations and people that made it possible for us to attend the Chromosome 18 Conference. They took the initiative and each wrote a blog post too! They bless me tons and tons! https://lilliandarnell.com/and https://thomasadarnell.com/2014/07/19/conference-thank-yous/

Throwback Post: Tree Cave Adventures and Sunset and Tree Adventures and Creativity

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July 20 2013:

Tree Cave Adventures for Thomas and Camilla at Audrey Harris Park!


Sunset & Tree Adventures for Thomas … I LOVE this old soul in a little person’s body and I LOVE nature!

Thank YOU Thomas and Lillian for doing your own thang for an hour and half this morning so I could sit outside …. drink my coffee, read, ponder and be creative …..

Throwback Post: Writing Blog Posts With Riding Lessons and Walks

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July 18 2015:

Helping Thomas write a blog post this morning that relates to the letter he mailed himself just over a year ago! So synchronistic how we were house sitting for The Romano Duo in this house when he wrote it and now while we are in this house again; we are moving forward with an idea born that day …. I love LOVE! Life does, indeed, love us all .. xoxo


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July 18 2014:

First day of Summer Riding Lessons! Thomas loved it. Will get better pictures next time as I’ll wear better dirt and arena shoes … Cute little sandals don’t cut it!


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July 18 2012:

Did someone say respite? Yes, I’m a different gal … Having respite at the library … Checkout the beautiful view!!


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Beautiful night for a Team TLC walk!!!


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July 18 2011:

Cars 2 with Thomas!!!

Throwback Post: Team TLC Dinner Conversation

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July 21 2013:

Very interesting, enlightening and heart warming dinner conversation tonight …

Thomas will own a restaurant when he grows up and will give me coupons so I can come eat there. He and Lillian will live next door to one another. He will build himself a 2 story house and will build Lillian a 10 story house (she wants a 100 story house but he told her he can’t do that). I can come visit them any time I want. I can’t wait to see how this story unfolds …..


(Thomas & Lillian 2013)

Installing a New Battery With a Great Breeze

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September 16 2022

I just installed a new battery in Rosey. I’ve never done that before! The car started after I was finished, and I didn’t blow anything up! Yes! 🎉🎉🎉

P.S. Batteries are freaking heavy, and expensive! 🥵😳🥵

September 17 2022

Respite from the wildfire smoke. Open windows, a great breeze. Feels so good. 💙💙💙

Happy 21st Birthday to Lillian – We Made It!!

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September 11 2022

The actual day isn’t until Wednesday, the 14th, but this deserves two celebrations.

Pizza party and donuts with The Romano Duo last night. Pool party, cake, and Facebook live on Wednesday.

Happy early 21st Birthday to you, Lillian! Gurl, we’ve come a long way. Whew!! Can’t wait to see what your 21st year holds in store for you.

Love you, Lillian!

September 14 2022

Happy 21st Birthday to Lillian!!! Facebook live at 4:00 PM PST today. Join us for a birthday chat with Lillian to celebrate this milestone day!

We were going to have a pool party also, but this wildfire smoke had other plans, with it being hazardous air quality.

Facebook Live Celebration:

Throwback Post: Spring Break Walks With a Cheap Movie and Dinner Adventures

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July 21 2014:

Spring break walk with Thomas …. So pretty!


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Four dollar movie for Team TLC! We saw Rio 2 … Good for some laughs and fun tunes, with a great message that Different iz Good and things don’t always have to be done the way they’ve always been done! I was sad to see they don’t have the love chair seats anymore …. oh well, we enjoyed them the few times we got to use them!

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July 21 2012:

Bacon, waffle, French fries and banana chips … It’s what’s for dinner when your almost out of food … Dinner adventures for Team TLC!!

Throwback Post: LEGO Photographer Walking Through Sprinklers With Tomatoes

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July 22 2014:

Thomas accidentally left LEGO photographer man at The Romano Duo Casa! Oh NO! Not to worry as he made his way home this morning. He got to ride with The Romano Duo to Team TLC HappYville as they headed on the way to Laughlin this morning. YAY! He’s home!

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July 22 2013:

Walked through a sprinkler this morning near the end of my awesome and beautiful morning walk. Ahhhhhhh … Felt good!


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July 22 2012:

From Lillian: i like door hangers, they are so fun and colorful. You know what they say, do not give up on what you like (includes homemade door hangers). Bye for now

(From Mom: Lillian is making a door hanger for our room at the C18 conference y’all!)

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July 22 2011:

What a jam packed and fun day!! Educate n Motivate Bootcamp all day with the young adults and Communication at Your Fingertips Presentation at 3:00 all wrapped up with the awesome Shelley Ingram- Hunt and her 250 cell phones collected for Different iz Good . . . Spread the Word and still counting . . .

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“Did you see what fun we had (even though I was sleeping late)? So hopefully I will go to bed at 9:19 and be happy in the morning. Goodnight y’all! So did you like what I demonstrated about my iPhone? Did sitting make you tired. Make sure to like it!!” – Fairy Princess Lillian (We are in Indianapolis for those who live in Reno).

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July 22 2010:

Care package from my Aunt Debbie Burton! Good ole Mississippi tomatoes (or maters as my Mammaw called em)! Yummilicious y’all! Thanks Aunt Debbie!!

Throwback Post: Open My Mind

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July 22 2015:

Gonna Open my Mind this morning and do something I’ve never done before. Time for a reinless riding lesson with Barbara Richmond Chastain at her wonderful property. This is part of the experential ConneXion Workshop I attended with the horses a couple of months ago, facilitated by Barbara. I’ve only been on a horse ONE time. These are pictures from the property. Spreading love … xoxo


Did it!! I’ve only been on a horse one time … In high school. (Don’t you love my socks and shoes!! My boots are in storage so had to wear what I had!!) The only other time I was around a horse, in around 1998, a stalled horse I walked by, bit the holy heck out of my arm! Had a gigantic bruise for weeks! I connected with and befriended some fears this morning and it was beautiful and peaceful. Thanks Barbara Richmond Chastain!! Always enjoy being with you and on your property! So beautiful!!


Thomas went with me this morning and he got to ride Buttercup for a few minutes. He was so happy!! He misses Meg and Buttercup and Mrs. Barbara.