Pernicious Anemia Update – Camilla Downs

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August 27 2022

I cannot believe what I had accepted as my new normal over the past few years. I didn’t feel like I had the time, the energy, or the brain capacity to figure out what my issue was. My personality type is just keep going, no matter what.

To say I feel much better is an understatement. Two weeks ago I received a B12 injection every day for a week, plus a 3 hour long iron infusion (as I also had iron deficiency anemia). I had one shot last week (yesterday) and will have one a week through mid-October, then switching to once a month.

Pre-diagnosis it had gotten to the point that I could barely do anything. I forced myself to do the bare minimum, especially the last 6 months. My hand strength had gotten very weak, my feet hurt, my hands hurt, everything hurt, severe brain fog, I was having difficulty with word recall (couldn’t remember the word for things in conversation), I was out of breath after doing the slightest task, light headed.

Last week I had …

https://camilladowns.com/2022/09/18/latest-news-pernicious-anemia-update/

 

Throwback Post: Movie Night: The Mighty Macs

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**THROWBACK POST**

July 17 2015:

“Anything can happen when we’re committed to our dreams” -Coach Cathy Rush in The Mighty Macs.

Extra Team TLC movie night since we’ll be at conference next Saturday night. This was a fabulous and inspiring movie. My heart is racing and I’m pumped up!!

Lillian says, “Good, inspirational, and she liked the music and how it all came together.”

Thomas says, “Really good and he liked it!”

Throwback Post: Painted Rocks With Three Little Birds and Respite With a Poem

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**THROWBACK POST**

May 6 2016

Thomas painted rocks too! Mr. Strawberry left yesterday and is on his way deep into bayou country in Louisiana! Blessings to the beautiful soul who generously supported Thomas’ creation. She loves his creativity! I love love!! xoxo

It was Thomas’ turn to choose a family activity Last night. So we played charades! So silly, fun, and much laughter.

Today he will be auditioning with some of his buddies for the last community gathering of this school year. They’ll be singing one of my favorite songs … Three Little Birds … I got to have fun helping Thomas make a microphone. One golf ball, scotch tape, the stick from a paint sponge, aluminum foil, and black paint = one microphone!

And this morning I had a magnificent walk! Love this beautiful tree!!

May 6 2015

Oops … or maybe Wahoooo! I had respite lined up tonight so I could go to an event but forgot to buy my ticket. So, yesterday I sent an email canceling and the email did not get received. Usually I follow up to make sure it was received, but … I forgot! Now I’ve got someone here. Was going to go ahead and send her home and thought perhaps I’m supposed to do something for me. Go out to eat? Go to a movie? Hmmmm … Suggestions? xoxo

Here’s where I ended up! YUM!! Took the book I’m reading, A Return to Love, with me and spent a blissful hour reading and eating delicious food! And look at the gorgeous sky when I was done. “Here Comes the Sun” little darling …. xoxo

May 6 2013

Thomas gave me an early Mother’s Day gift tonight … A poem: Skys are Blue, Grass is Green, So are YOU! …. And then he brushed and styled my hair before going to bed. My wish for this young man is that he never loses touch with his uniqueness and originality … ♥

Just back from a refreshing, inspiring and delicious walk in the rain …… Ahhhhhhhhh!! Lovin me some LIFE y’all! ♥

May 6 2010

It just keeps gettin better & better! When Thomas grows up NEXT WEEK he’s going to be a Cowboy!! {Suppose he’ll do this in between being at the Circus doing magic tricks} Love this darn kid to pieces!

Throwback Post: Look Beyond Limitations – D iz for Different

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**THROWBACK POST**

July 18 2012:

Amazon Reviews:

Terri Barfield Craig says, “Camilla and Team TLC’s journey and life lessons, as shared in this book, will inspire you to look beyond limitations and gain new perspectives on what it means and how it feels to be “different”. It will change the way you see life in general. Not only is this book a phenomenal tool and resource for those with special needs children/adults in their lives, but it includes many nuggets of wisdom for the rest of us as well. I highly recommend it!” ….

Thank you tons Terri!!!

To learn more about the book, go here ..

Author

Throwback Post: D iz for Different With Watermelon in Grand Isle

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July 18 2012:

Love this!! Another book picture sighting in Grand Isle, Louisiana …

Debbie Burton says she took some more time to herself and shared a whole piece of Louisiana watermelon with the book!! Man, I sure do miss that watermelon … brings back such warm, fun memories of my childhood … outside all day, going, going, going, going and ALWAYS barefoot …. eating watermelon and spittin the seeds out as you go!

To learn more about the book, go here …

Author

Throwback Post: Refreshing Swim With Interactive Vaulting Camp

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July 18 2014:

Fun and refreshing swim and now off for a dessert date with Lillian! I had forgotten how good it feels being in the water … YUM!


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July 18 2013:

Day 3 of Camp for Thomas (yesterday, 7.17) …. Look at that Team Member T Go!! So much fun for him this week! I think I’m more worn out than he is! HA!

Books arrived!

Throwback Post: Kindness With a Chromosome Lesson While Sharing Gratitude

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**THROWBACK POST**

July 20 2015:

One of my most favorite quotes in a great book we received today!! Sam is a C18 buddy who has 18q-. YAY Monica Tello McDivitt!!! Can’t wait to meet you and Sam face to face next year in San Antonio!!


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Went to Trader Joe’s today to stock up on food for the Chromosome 18 Conference. Since we’re driving this year, we get to take our own food! YAY! Thomas told the cashier about our plans and she wanted to know all about a chromosome 18 conference. Got to give another person a mini chromosome lesson. Always seems to be the cashiers at Trader Joe’s and Whole Foods who ask to know more. So friendly!! Here we are at the 2013 conference farewell dinner. xoxo


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July 20 2011:

I suggested to Thomas and Lillian that we make a poster to thank the organizations and people that made it possible for us to attend the Chromosome 18 Conference. They took the initiative and each wrote a blog post too! They bless me tons and tons! https://lilliandarnell.com/and https://thomasadarnell.com/2014/07/19/conference-thank-yous/

Throwback Post: Tree Cave Adventures and Sunset and Tree Adventures and Creativity

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July 20 2013:

Tree Cave Adventures for Thomas and Camilla at Audrey Harris Park!


Sunset & Tree Adventures for Thomas … I LOVE this old soul in a little person’s body and I LOVE nature!

Thank YOU Thomas and Lillian for doing your own thang for an hour and half this morning so I could sit outside …. drink my coffee, read, ponder and be creative …..