Pumpkins and Blessings and Adventurous Eater and Sibshop

October 30 2016:

Playing with pumpkins time 🎃 ….. xoxo

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October 31 2016:

What a beautiful night! The hills and mountain in the distance were magical with a dusting of snow. Plus, there was a huge bat shaped cloud over the mountain. So incredible!!! These two blessings had a great night. 🎃

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November 1 2016:

Thomas made a vegan coleslaw to go with dinner to night. So yum!!! I enjoyed it with sweet potato noodles and he enjoyed his with wild shrimp. So happy he’s an adventurous eater.

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November 5 2016:

Sibshop day for Thomas!!! He really enjoys these and especially today as Don Meyers was facilitating! Thanks Down Syndrome Network of Northern Nevada (DSNNN) and JUSTin HOPE Foundation for hosting!!

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May Your Heart Overflow with Love and Gratitude

October 26 2016:

Every move we make, every simple task we do for ourself is a miracle … if we choose to see it that way.

Clipping one’s nails. Simple enough. Yet, at 15 years old not something Lillian has been able to do at all. Due to fine motor issues and a slight tremor when focusing on fine motor issues she has not been able to do it. (One of my favorite pictures of Lillian from this past September. Doing something else she had not been able to do before … getting air for a great picture!)

A few months ago she said she was ready to try doing this simple task and asked how we should begin. I suggested she practice holding the clippers to her finger and toes and simply practice different positions, bending to her toes, and squeezing the clippers in that position.

She’s been doing that and yesterday she was ready to try it. I instantly felt patience fill my heart as I said, “Let’s do it.” Seriously, this was practically a half day task as she wanted to try and paint her own toenails also.

Although, she was not able to cut any nails this time, she was able to get the clipper underneath the nail as I guided (I didn’t want to chance accidentally nipping the skin). However, she did paint some of her toenails. It was incredibly hard and stressful work for her. Seriously.

May you rejoice today and let yourself feel the blessings of miracles that happen every single minute. And, may your heart overflow with gratitude and love …. for yourself and your fellow humans …. xoxo

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Wise Tortoise by Lillian

8.12.16:

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Another great story from Lillian …  Carry on wise tortoise … xoxo

“Hey, everyone! Welcome back to this week’s bonus edition of Emotions With Animals. The bonus is in honor of water. This week’s edition includes tortoises and freshwater turtles. Let’s begin!

Wise tortoises live longer than average humans. So it makes them seem wise.

Wise people have many experiences. They also meditate.

How To Be Wise:

Know that you are wise from the heart …. ” Go here to read further … https://lilliandarnell.com/2016/08/12/emotions-with-animals-wise-tortoise-shy-turtles/

 

 

Nature Chatted About the Party – Lillian

October 12 2016:

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Make a wish and read Lillian’s latest blog post in the Nature Party Series … “The nature team prepared for the party. Meanwhile, Nature chatted about the party made just for them. They were all excited. “I’m so excited.” said the … ” …. xoxoxo ….

Go here to read more …. https://lilliandarnell.com/…/amazing-nature-party-the-big-d…/

History of Art – The Play by Lillian Darnell

October 4 2016:

Lillian wrote a play this time! Go Lillian!! Check it out! xoxo

“Hey, everyone! This play will help you learn about the history of art. For those who like art will probably be interested in the history of art. You can use this play for school and other educational uses if you want to.

Narrator: Welcome to History of Art! Let the play begin.

(Princess enters from Stage A). …..” Go here to read the rest ….

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(Artwork by Camilla Downs)

 

She Spread Her Wings …. And Flew – Happy 15th Birthday Lillian

September 14 2016:

So this one turns 15 at 11:27 pm tonight … We’ve been celebrating all day as hopefully we’ll be asleep by that time!

… And she spread her wings …. Took a deep breath … And, just like that …. She FLEW!!! xoxo ….

For anyone who has been following all of the amazing accomplishments Lillian has made since this past July, you truly understand my comment above. They are happening so fast I cannot even keep up with posting them here.

See this picture below .. That’s a first … Taken last night on a Team TLC adventure. Jumping in the air bunches and bunches of times while I took 771 pictures of her …

4 pounds of heaven grown into a full blown fairy angel who knows she is to be a writer and helper. She has indeed done it her way … From butt scooting instead of crawling, talking different than others, eating, drinking, walking different than others …. and on and on and on … Blessed, blessed, blessed and so grateful we chose one another to teach and learn. Happy Happy Happy 15th Birthday Lillian Darnell!!!

Today is her day. After physical therapy this morning I took her to pick out sparkly headbands, then for gluten free donuts at Haven on Earth, and then home.

After resting for a few minutes, she opened her gifts, Thomas and I sang her Happy Birthday, and then we ate way too much of the gluten free chocolate cake (with oh so yummy cream cheese frosting) that we made last night.

Then we finished the celebration with a “live” Facebook birthday party!! That was interesting and fun!!!

 

Happy World by Lillian Darnell

July 21 2016:

Lillian got inspired by a drawing she created yesterday …. This is an incredible story and looks like it will be the story of how Mr. Happy Tree came to be.

Lillian drew a tree last summer that we named Mr. Happy Tree and I told her he is going to be a great book character … The 2nd picture is Mr Happy Tree from last summer. Hope you enjoy …

“One day, a bird picked up a seed to eat. A few minutes later, the bird decided that it wasn’t the right seed. The bird threw it back down. That was the beginning of the Happy World.

As the years past, the tree grew until it had several branches and a strong trunk. The strong tree became known as the Happy Tree. The Happy Tree decided to produce a seed. The seed grew with happiness and love. One day, the seed blossomed into a young beautiful tree that didn’t grow much after that point.” Go here to read the rest … https://lilliandarnell.com/2016/07/20/a-happy-world/

Blessings,
Thomas, Lillian and Camilla = Team TLC
See It. Share It. BE IT … Spread Love Everywhere You Go!

Wonderfully exciting news! We’ve completed the first book trailer for Thomas’ upcoming book, Biggest Little Photographer. You can learn more and pre-order here.

Lillian’s Accomplishments and Goosebumps

Lillian & Camilla May 2016 Date Day #6

July 20 2016:

We shared with Lillian’s physical therapist on Wednesday, the 20th, the pictures of her using the stairs and also about one other achievement she met while on this trip. Jillian, her therapist, got goose bumps! This is good stuff!

YES!! There’s another one that was accomplished. It’s a personal and private achievement … Just know, she did it! Took 14 and a half years, yet she did it!!! Wahooooo!! We are happy to share with any other C18 parents (or other special needs parents) … Just comment here or message me. YAY, WAHOO, and Let’s celebrate!! xoxo

I double checked with Lillian’s PT for the accurate names of what she’s been working on with Lillian for the past year … Straight from her: We have been working on integrating Fear Paralysis Reflex, Moro Reflex, Galant Reflex and Tonic Labyrinthine Reflex and Body Mapping. … xoxo

The 2016 Chromosome 18 Conference: Joy in the Journey

Joy in the Journey …. Moments of Loving-Kindness During the 2016 Chromosome 18 Conference ….

Beautiful and Meaningful Bracelet

…. Then there was the mom who gave me this bracelet and said, “Y’all bust your butts to get here every year, and I want you to have this. I love you and your kids. I thought of you as I was making it.” This caused my eyes to sweat …. xoxoxoxo

C18 Trip July 2016 #122

Offered a Place to Stay + Embarrassing Moment for Me

I did not plan the driving part of our trip, except for the route we would take. I had decided that I would just drive until I was tired or about 7 or 8 hours and just get a room wherever we were at that point.

When we reached Las Vegas I thought we might make it to the Phoenix area. So I sent a text to an 18p- Mom friend who lives in the area as she had said to let them know if we are stopping there for the night.

After we left Vegas, I had no reception until we reached Surprise, Arizona which is on the outskirts of Phoenix. As I was inquiring about a room, all of her texts and messages came through on my phone (that had not come through over the past 5 hours).

She and her husband have a standing room at a Scottsdale hotel and offered to let us use it. I was so wasted and absolutely could not make a sound decision at that point as I had been driving since 7:00 am and it was about 9:15 pm.

I didn’t think I could figure out how to get there in the dark and Thomas and Lillian were so tired. It would have been 45 minutes without taking any wrong turns so I decided to take the room where we were.

I am incredibly grateful to them for offering and for texting and talking with me in my delirious state only to have me not take them up on their wonderful offer. I was quite embarrassed with myself … 😉 ….

After we were in our room, we received 2 more offers for a place for us to stay the night (which could be used on our way back through). One in Surprise, Arizona and one in Yarnell, Arizona.

National Parks Employee

There was the National Parks employee at Lake Mead … I saw that it would cost $20 for us to enter the park and drive down to the lake. I also knew we would only last about 15 – 20 minutes since Lillian has a tendency to overheat .. Big time.

Overheating so badly that she throws up for an hour. So, I explained about Lillian and she said .. “You want to go ahead and get her a lifetime pass and you can enter all national parks for free.” …. xoxoxo

Ticket Gifted for Ladies Night

The moment we arrived in San Antonio I had a message from another 18p- Mom that she was looking forward to seeing me and had bought my ticket for ladies night. She didn’t want me to miss out and wanted me to have a night out with the other moms. I had not planned on going due to the costs and had not shared that with anyone. xoxoxo

Duct Tape

Before we left I asked the hotel if they had any duct tape. And what do you know .. they had the engineering/electrical department bring some up to the room! Wonder if they’ve ever had that request? I had to make a little Rosey repair before we headed out. xoxoxo

Hotel Manager Kindness

Before the hotel ran the charge for the entire stay on my debit card, I forgot to tell them that we’d be checking out a day earlier than planned. They also added in $40 a day for incidentals. We were on this trip on a very tight budget, so I needed that extra night reversed and not to be charged the $40 incidentals.

The manager on duty went way out of her way to correct the charge. It took us two days but she got it reversed so we could run the lower amount through and they did not charge me the $40 per day incidentals.

In talking with her about parking and how I had looked online for less expensive parking while there (cost $40/day for the hotel parking), she shared with me how I could park for free for our entire stay .. just steps outside the front door of the hotel. xoxoxo

Painted Rocks

There was the mom who asked about commissioning Thomas to paint 10 rocks for her so that she can give them as “thank you” gifts. Thomas is so excited and he will save most of the money for conference next year. He’s finished the first one .. a shell with pearls on the backside! He wants to create seasonal themes. xoxoxo

Thomas Painted Shell Rock July 2016

Chatting and Veggies

During the ladies night dinner, I had a pounding headache. I rarely get headaches but something I ate at lunch didn’t agree with me. A beautiful and amazing 18p- mom sitting across from me, noticed my distress, and invited me outside onto the patio.

It was extremely loud in the room we were using due to all of our voices echoing and that was doing a number on my head! We stood outside and admired the river and chatted and took pictures. Later she ordered a plate of steamed veggies and shared half with me as everything except the rice had meat in it.

Here’s hoping you find the Joy in Your Journey. It’s there. Trust me. It is.