The Ideas Are Inside of Us for a Reason – Where Would You Fly

Posted on November 12, 2017 by Camilla

**THROWBACK POST**

October 15 2015:

This sweet little delicate hand. She found this leaf yesterday on our walk around the lake. She brought it all the way home, then released it in the wind. She asked me to take a picture of it. Due to sensory issues I don’t get to hold that sweet little hand in mine, don’t get to snuggle up close to her, and don’t get to smother her with kisses. I’m taking this sweet little hand in mine (in my imagination) and we are about to begin a fun adventure. She and I are going to put our imaginations and hearts together and write our first children’s book. Let’s see what we come up with. The ideas must be inside of us for a reason. Time to release them just like that beautiful leaf. xoxo

**Update** November 5 2017: Want to help? “Where Would You Fly and Other Magical Stories” is in the final stages of editing. Then our angel helper will be adding Lillian’s artwork and transforming into a book format.

It would be an incredible blessing for Team TLC to pre-sell 10-50 copies of the book. It should arrive by end of November 2017 at the latest. Plus you will receive a special gift for pre-purchasing. xoxo

I Love How Crazy I Am

Posted on November 8, 2017 by Camilla

October 17 2017:

Just got home and I am so full of warm fuzzy feelings. I had to make a quick run to the library tonight to return some items in the after hours drop. It would have taken about 15 minutes round trip.

Instead of driving alone, I invited Thomas and Lillian to come along so we could make it into an adventure. It reminded me so much of when they were younger and we made every single trip in the car into an adventure.

We drove to the library and I took a different and longer way home. As I was driving, Thomas asked where to next. I thought, you got that right.

So we took a drive down memory lane and then some. Turned a 15 minute run to the library into an hour long adventure.

I Loved That. I Love It. I love how crazy I am. I love that I bust out in song, in verse, in rhyme simply in conversation with them.

I love how things Thomas and Lillian say cause me to think about songs or movies and I bust out with movie titles or singing crazy songs.

I love it when I cause Lillian to laugh so hard she’s crying. I love how fast I can improvise and I love when we are all in sync with being spontaneous!

This message brought to you by … Love …. We now return you to your normal programming ….. xoxoxoxo

Putting Your Shirt On and Taking Your Shirt Off

Posted on November 7, 2017 by Camilla

**THROWBACK POST**

October 13 2014:

Putting your shirt on, taking your shirt off, putting it on, taking it off. Simple thing really. Yet, Lillian had not been able to do it without help ….. UNTIL last week!! YAY Lillian!! Lillian can now take off a shirt and put on a shirt ALL BY HERSELF!!!! After 13 years, I am relieved of this parental privilege! Wahoooo!! You go Lillian!! xoxo

Lillian and Camilla October 2017 Date Day

Posted on November 6, 2017 by Camilla

October 16 2017:

Lillian Darnell and Camilla October 2017 Date Day. First. French fries for lunch. Garlic fries for Lillian. Truffle fries for me with a cup of soup.

Then to the park to have our dessert of bat cookies and to take in the beautiful fall colors. Check out the gorgeous view where we enjoyed those bats! xoxoxo

Last stop. She got to use the birthday gift card she received from The Romano Duo.

Where Do You Travel When You Sleep

Posted on October 29, 2017 by Camilla

**THROWBACK POST**

October 9 2012:

I find this fascinating so thought I’d share … (FYI: I have Lillian’s permission to share this with y’all.)

A few nights ago Lillian told me she was going to fairy land while she was sleeping. I told her that sounds great and to have fun. Last night before bed she said there was going to be a huge Fairy Ball and she was looking forward to it. With a bit more enthusiasm this time, I chatted with her a minute about it and told her to have a great time again.

This morning she told me the Ball was so much fun and beautiful. Tonight there will be a visit from a very special Princess and a Rainbow Festival. We talked about what Lillian wore last night at the Fairy Ball and how she wore her hair and what she will wear tonight. We covered many details.

She’s going to tell me about the Rainbow Festival in the morning and I’m so looking forward to hearing about it. She then asked me where I’ll be going tonight while I’m sleeping … That stopped me in my tracks …

I thought to myself, What a darn good idea Lillian!! So, I told her where I’d be going and we chatted about that for a few … Where will you make it your intention to travel tonight while you’re asleep??

**October 25 2017 Update** – We choose a geographical location almost every night to which we will travel while sleeping. Last night was Tibet!

I Will Never Ever Ever Ever Forget this Night

Posted on October 26, 2017 by Camilla

**THROWBACK POST**

October 8 2014:

“Last night was a night I’ll never, ever, ever, ever forget!” -Lillian …

I woke them up at 3:30 this morning to have a look at the lunar eclipse. We sat on a blanket and used the Star Walk app to help us see all the cool things happening that we couldn’t see with the naked eye! So awesome! Got them back into bed about 3:50. They instantly drifted back to sleep.

However, I never got back to sleep. Oops! I may run out of steam pretty early today!

How Did You Make That

Posted on October 18, 2017 by Camilla

**THROWBACK POST**

October 4 2014:

A mom with a cute lil blinky hat, a fairy princess, and a fortune teller had a great time at the HDMS chili festival and craft fair! So many creative people with great creations for sale! Loved it!

Thomas was in heaven seeing all the things people make. He was going from table to table asking how they made it. He said he kept getting asked why he was so interested.

Last Craniosacral Session for Lillian and Library Volunteering

Posted on October 9, 2017 by Camilla

September 11 2017:

Lillian’s last craniosacral session since Anthem Blue Cross has decided these sessions are not helping her so they will no longer pay. We so much appreciate Christine! Lillian has been seeing her for 3 years now.

Aren’t we blessed that people who know nothing about chromosome deletions and nothing about the intricacies of pain levels that are sometimes better and sometimes worse are so knowledgable about what’s best for us?

We have not given up. We’ll try starting sessions again in 2018 after she’s had three months without them. Beautiful hibiscus to send us off ….xoxoxo

September 13 2017:

Second time volunteering at the library …. and Lillian’s last day as a fifteen year old! This time we pulled holds for two hours. Found all but three of them. Good job us!!

One Big Step for Independence and One Huge Step for Tenacity

Posted on October 4, 2017 by Camilla

September 15 2017:

Walked Lillian over to the lodge about 30 minutes ago. She packed her lunch, laptop, book, artwork and other items. Working on being solo in a semi-public area ….

She had a big fall on the way over and scraped her knee in a huge way! Pain is always triple for her as would be typically.

She sat in the grass and waited for me to get a napkin and wound spray and then she continued on to the lodge. She’s in pain but still over there. Next up is walking over with all her belongings without me. xoxo

She did awesome! Yet, she’s got a baseball size scrape and bruise on her knee. The fall she took was pretty rough on concrete as she was coming down a slight slope of a grassy hill …

We have indeed come a long way as in the past this would have caused her to throw up from the pain. Oceans of love and hugs to all of you! xoxo

**Update** October 3 2017: Lillian finally left the house for the first time since the fall. We went for a short walk! YAY! Her knee is still sore, yet, we’re almost there.

Happy 16th Birthday to Lillian Plus Camilla and Lillian September 2017 Date Day

Posted on September 27, 2017 by Camilla

September 14 2017:

Happy Happy Happy Sweet 16th Birthday Lillian!! She requested dark chocolate cake with cream cheese frosting sprinkled with dark chocolate. Cake for breakfast! Yum!

Today is the Lillian and Camilla September 2017 Date Day too. Be ready for bunches of pictures, a special blog post dedicated to Lillian, and she held a Facebook live “Birthday Party”.

Sweet, fun, and short “Happy 16th Birthday” video for Lillian Darnell! Just a few Team TLC adventures using Google animated photos. I LOVE YOU Lillian!!

Press the “i” in the upper right hand corner for a link to Wish Lillian “Happy Birthday” …. Or make your wish in the comments here … xoxo