Help Team TLC With Attending the 2017 Chromosome 18 Family Conference

C18 Trip July 2016 #17

We need your help! Last minute fund raising for Team TLC’s attendance at the 2017 Chromosome 18 Family Conference in Naperville, Illinois from July 12th – July 15th.

Fortunately, we have a sponsor who has loaned us money for our airfare, registration, and hotel stay. And we have a wee bit from Thomas and Lillian fundraising since last year’s conference.

We just need to make sure we have enough for incidentals while there … food, transportation to and from the airport, and the special events lined up for siblings and self advocates.

If you are moved to help, here’s a list of our creations and items for sale:

  1. Lillian’s debut book, Where Would You Fly and Other Magickal Stories, debuting by October 2017. Pre-order here … https://lilliandarnell.com/author/
  2. Thomas’ book, Biggest Little Photographer, published in October 2016. Order here …. https://BiggestLittlePhotographer.com
  3. Camilla’s book, D iz for Different – One Woman’s Journey to Acceptance, published in March 2012. Order here …. https://camilladowns.com/books/
  4. Skeleton key wind chime designed by Thomas and created by Camilla ($25 – includes shipping) … **SOLD** Picture here … https://www.facebook.com/photo.php?fbid=10155549637116584&set=a.52927246583.79053.681171583&type=3&theater
  5. Print or digital download of Lillian’s Egyptian Eye or Rainbow of Emotions abstract art …. View and order here … https://lilliandarnell.com/lillians-art/
  6. Hand made notebook by Lillian … Order here … https://lilliandarnell.com/lillians-art/
  7. Custom poem for you or a loved one (by Camilla) … email Camilla at Camilla Downs @ gmail . com ….
  8. Queen size solid wood sleigh bed frame … Make an offer … Picture here … https://www.facebook.com/photo.php?fbid=10155404014936584&set=pb.681171583.-2207520000.1499540619.&type=3&theater
  9. If you are a business owner and want to sponsor us, I’m happy to wear promotional items, get a temporary tattoo, write a blog post, etc. …. email Camilla at Camilla Downs @ gmail . com …
  10. Just want to donate …. Go here … https://www.paypal.me/camilladowns
  11. Prayers, blessings, and good juju!!

If you’re wondering why this is such a big deal for Team TLC and why it means so much for us to be there, go here and here.

With tremendous gratitude and blessings,
Thomas, Lillian, and Camilla
xoxoxo

C18 Trip July 2016 #77
(Team TLC with our friends from Australia!! xoxoxo)

Lillian and Camilla June 2017 Date Day

June 21 2017:

Lillian and Camilla June 2017 Date Day: First stop – dessert. Vanilla cake bar for Lillian, cherry pie for me, plus bonus!!!! The store was celebrating its 9th birthday and we got cake too!!!

Second stop was at the post office so Lillian could mail the first sale of her custom hand made notebooks!

Last stop – Home furnishings store to look at all the stuff I’m so glad we don’t own. And to take fun pictures!

Camilla & Lillian June 2017 Date Day 6.21.17 #10 Camilla & Lillian June 2017 Date Day 6.21.17 #9 Camilla & Lillian June 2017 Date Day 6.21.17 #8 Camilla & Lillian June 2017 Date Day 6.21.17 #7 Camilla & Lillian June 2017 Date Day 6.21.17 #6 Camilla & Lillian June 2017 Date Day 6.21.17 #5 Camilla & Lillian June 2017 Date Day 6.21.17 #4 Camilla & Lillian June 2017 Date Day 6.21.17 #3 Camilla & Lillian June 2017 Date Day 6.21.17 #2 Camilla & Lillian June 2017 Date Day 6.21.17 #1

 

The Pool is Open and Dancing Freedom

May 25 2017:

The pool is open!!! Yay!!! Happy Thomas and Lillian! xoxo

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May 26 2017:

Today is day 12 of the 21 Day Dancing Freedom Challenge. This is a wonderful, inspiring, awakening, and alchemizing experience.

First four days were Earth, next four Water, and today we finished Fire … which included alchemy. Next up is Air and then Ether.

I know this way isn’t the way for everyone. Yet, I feel each person has their own unique style of releasing, connecting, surrendering, accepting, and allowing.

One lesson I continue to learn throughout this journey is to listen to internal nudges, hunches, and inspirations. I have ignored the dancing nudge for years …. Listen and KNOW there is a reason. xoxo

Here’s the Dancing Freedom facebook page. They close the challenge group two days after the challenge begins, yet, I’m sure you can sign up for the next one! xoxoxo https://www.facebook.com/DancingFreedom/

Hand Made Custom Notebooks by Lillian Darnell

May 20 2017:

From Lillian …. (The conference is in Naperville, Illinois this year) …. xoxo

Hey, everyone! Every year around this time, I like to create something to fundraise and help my family attend the annual Chromosome 18 Family conference.

This year I am creating handmade notebooks which can be customized.

Here’s a sample. Let me know if you want one by commenting here or sending an email to my Mom at CamillaDowns @ gmail . com .

Lillian's Doodling Notebook May 2017

She’s already received THREE orders! YAY Lillian!

Celebration of an Ending

April 26 2017:

Done! After six years. Lillian began in 2011 with all three therapies: ST, PT, and OT. ST and OT have long been stopped. Today was the last physical therapy appointment. xoxo

Lillian Done with PT 4.26.17

Chocolate covered gluten free donuts yesterday in celebration of endings, one more layer of freedom, and feeling the storms of life to allow even more freedom. Cheers! 🎉 xoxo

Celebratory Donuts Done with PT for Lilllian 4.26.17

Love and Purple Carpet and Shadows and Reflections

April 24 2017:

Solo walk this afternoon … At least two messages of love and one amazing carpet of itty bitty cute purple flowers. xoxo

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April 25 2017:

Walk with Lillian this afternoon. Shadows, ducklings, egrets, reflections, wind, and sun. Perfect. xoxo

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Windy and Love and Peace and Calm and Endings and Beauty

April 16 2017:

Windy walk with Lillian this afternoon. Wonderful message received right when we started. It all means the same thing ….. Love …. Love …. Love!

Walk with Lillian Vintage Lake Heart Rock 4.16.17 #1 Walk with Lillian Vintage Lake 4.16.17 #2

April 18 2017:

Afternoon walk for me. I am in the depths of a peace and calm that are in divine time and grace. Feeling incredibly grateful for all the years of deep meditation and blessings of nature. And …. look …. babies!!!! I love the little goslings!!

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April 19 2017:

Beautiful blossoming tree greeting us after Lillian’s physical therapy this morning. One Wednesday of PT remains and then we are done!! After about 6 years. Next Wednesday will call for a celebration! xoxo

Blossoming Tree Vintage April 2017

April 22 2017:

A beautiful walk with Lillian this afternoon to admire the beauty of nature. Complete with some amazing rock love.

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Cormorants and Blue Billed Ducks and Black Necked Stilt and Goslings and Killdeer

April 10 2017:

Quick walk this morning with a wee sit to take it all in. The cormorants, blue-billed ducks, and black-necked stilt have all returned!!! YAY!!

Solo Walk Vintage Lake 4.10.17 #3 Solo Walk Vintage Lake 4.10.17 #2 Solo Walk Vintage Lake 4.10.17 #1

April 11 2017:

Lillian and I had a wonderful walk yesterday afternoon.

Beautiful tree that even makes a beautiful shadow! Me and the tree shadow.

And, the first goslings of spring!!! Yay! I’m so excited to see all the wee little babies. The killdeer are back too!!! Love, love, love!!

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April 15 2017:

Walk with Thomas yesterday afternoon. Nature is respite for the soul. xoxo

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