She Loved by Camilla Downs

May 18 2017:

It’s the 18th of the month. Chromosome #18 brought into our life family we never knew we had and has blessed us beyond the words to even describe. To a beautiful soul ….

Dragon and Angel Wings and Bird Wings Vintage Lake May 2017

Ever There

She loved.
She shined.
She let go.

Ever there with kind words,
with encouraging words,
with loving suggestions,
and, oh yes, hugs and happy dancing.

A smile that beamed brightly.
Greeting with open arms all who
were new to this different path.

The originator
of the “Different is Good” slogan.
She checked in on one
just when one thought she
was all alone.

She lived life
to the fullest,
coming to embrace this
different path.

Deeply she loved
her family.
Openly and freely
sharing her own
ups and downs.

Dear friends
and family the world over, has she,
who are deeply saddened for her
early departure.

She wanted to help all.
She wanted to cheer us all on.
She wanted to hug us all.

Every eighteenth of every month
my face to the sky I will turn,
to see and feel a warmth from above,
surrounding me with the
help, cheer, and hugs she
longed to provide.

Fly free beautiful soul,
Fly free and help, cheer,
support, hug, happy dance,
and LOVE for an eternity.

I love you, Susan Moran.

Camilla & Susan Savanahh Conference

I’m the Queen of the Mountain

**THROWBACK POST**

February 22 2014:

“I’m the queen of the mountain!” – Lillian Darnell

Celebration time! This young lady remembered all on her own today that she needed to get a book for school from the library. I did not remind her at. All! We did not even discuss it today or yesterday.

Also in the past week, she has been doing basic addition and subtraction in her mind!! This girl! This girl who stood on this little hill today and without any prompting from me said, “I’m the queen of the mountain!”

Celebrate those milestones whenever they come …. however long it takes! ♡

Lillian on Hill 2.22.14

I Can Do Anything

November 6 2016:

I was drawn to watch this short 3 minute video just now. Although I have moved on from some of the roles and advocacy from this time in my life, this served as a reminder for me in this moment.

This is the video journey that accompanies the book I wrote and published in 2012, D iz for Different – One Woman’s Journey to Acceptance.

I CAN do anything I decide and choose I’m going to do ….. AND …. so can YOU! And it will be a success as long as we do it from love and with love. LOVE will free us all … xoxo

She Spread Her Wings …. And Flew – Happy 15th Birthday Lillian

September 14 2016:

So this one turns 15 at 11:27 pm tonight … We’ve been celebrating all day as hopefully we’ll be asleep by that time!

… And she spread her wings …. Took a deep breath … And, just like that …. She FLEW!!! xoxo ….

For anyone who has been following all of the amazing accomplishments Lillian has made since this past July, you truly understand my comment above. They are happening so fast I cannot even keep up with posting them here.

See this picture below .. That’s a first … Taken last night on a Team TLC adventure. Jumping in the air bunches and bunches of times while I took 771 pictures of her …

4 pounds of heaven grown into a full blown fairy angel who knows she is to be a writer and helper. She has indeed done it her way … From butt scooting instead of crawling, talking different than others, eating, drinking, walking different than others …. and on and on and on … Blessed, blessed, blessed and so grateful we chose one another to teach and learn. Happy Happy Happy 15th Birthday Lillian Darnell!!!

Today is her day. After physical therapy this morning I took her to pick out sparkly headbands, then for gluten free donuts at Haven on Earth, and then home.

After resting for a few minutes, she opened her gifts, Thomas and I sang her Happy Birthday, and then we ate way too much of the gluten free chocolate cake (with oh so yummy cream cheese frosting) that we made last night.

Then we finished the celebration with a “live” Facebook birthday party!! That was interesting and fun!!!

 

The 2016 Chromosome 18 Conference: Kindness and Pizza and Surprise Encounter

(This is part six of The 2016 C18 Conference Journey. Go here for part one.)

July 14 2016:

The Journey home … San Antonio to Las Cruces, New Mexico!! Had an amazing dinner at this lovely place! We got there at 8:50. They close at 9:00, yet invited us to come on inside and we had THE BEST brick oven cooked 4 cheese pizza EVER!!! …. With an amazing salad and pistachio gelato for me and lemon sorbet for Thomas!! Plus shaved carrots and prosciutto for Lillian since she doesn’t eat pizza or salad! xoxoxo

Look who we ran into!!! The Romano Duo and Team TLC got to cross paths in Las Cruces, New Mexico this morning. Spent about an hour together chatting. Now we head in different directions. xoxo

July 15 2016:

The Journey home …. Las Cruces, New Mexico to really close to the Nevada border. Was going to try to make it to Boulder City today but we spent an hour with The Romano Duo this morning since they were driving right by Las Cruces where we had stayed for the night.

Then, we hit rush hour traffic in Phoenix. The hour with The Romano Duo was totally worth it. Long drive tomorrow, yet we will be in our own beds tomorrow night!! xoxo

The 2016 Chromosome 18 Conference: Riverfront Walk With Lillian

(This is part five of The 2016 C18 Conference Journey. Go here for part one.)

July 13 2016:

Wonderful, warm, and beautiful walk with Lillian yesterday. Blessed that she, too, loves our time in nature. Looking, listening, and discovering. xoxo

The 2016 Chromosome 18 Conference: Stairs Conquered

(This is part four of The 2016 C18 Conference Journey. Go here for part one.)

July 13 2016:

Welcome to a different new … Check out these 3 sets of stairs Lillian conquered!!! You go beautiful you!!!

Lillian has had a fear of stairs since being a toddler. We have always had to use an elevator and if one has not been available; she has held tightly to me with a white knuckle grip with sweaty hands and tons of anxiety.

So exciting!

Reaching for the Stars

Lillian Going Down Stairs July 2016 San Antonio

She’s reaching for the stars … And she will have what she reaches for …. Incredible, wonderful, inspiring blog post that Lillian wrote yesterday … xoxo

“Hey, everyone! This blog post will include 2 stories (1 non fiction and 1 fiction), inspiration, and a fiction interview. Let’s start with the non fiction story.

One day, my body decided I was ready to try the ladder at my therapy place. Slowly but surely, my body had decided to try the stairs. Now I can easily walk up them alone without being scared. Ever since, I’ve been proud to have touched the stars. (If anyone wonders what’s next, it’s escalators).

Let’s move on to the fantasy version of a story. I hope you enjoyed the 1st story!

Once, a young girl named Rainbow had wanted to be able to go down stairs for a long time but her body wasn’t ready to do it. Many years past before her body started to sense that she wanted to achieve the goal. When she was probably 14, her body was able to take the hint fully. So she took her time up until Wednesday when she achieved the goal. She was very excited. She was reaching toward the stars.

Let’s move on to the interview. This is where you will find more details about the first story. Speaking of story, I hope you enjoyed the 2nd story. (If you are wondering, this blog post is inspiration based). …………. The moral is to reach for the stars.”

Go here to read the entire story

The 2016 Chromosome 18 Conference: Deja Vu and The Riverwalk

(This is part two of The 2016 C18 Conference Journey. Go here for part one.)

July 10 2016:

The one who says to me as we’re driving through the amazing rock formations after going through the Boulder Dam area … “I always have deja vu, like I’ve lived this life before. He said it all seems so familiar.” … and when we encountered some difficulties on the trip down … “When you get a rock in your shoe, just shake it out” ….. I deeply love this little human … Thomas Darnell …. xoxo

July 12 2016:

Took a much needed walk this morning. Feeling so out of place here. This was exactly what I needed. Felt like a massage … So relaxing, refreshing, and inspiring. I love nature. xoxo