She is Thrilled to Be Making It

December 14 2018:

Gerry, the wonderful lady we met at the Barnes & Noble book signing last month, is super thrilled to be making a quilt using Lillian’s Rainbow of Emotions!

She fell in love with the artwork and kept commenting how great it would look as a quilt. The thought finally occurred to me to ask her if she’d like to make one if we had interest from someone in having one.

Well, this lovely 3 X 3 quilt, once made, will be headed to Houston, Texas to adorn a studio wall!! Yee-Haw!! xoxo

Would you like to have a 3 X 3 quilt to adorn your wall? Comment here or send a message to Camilla Downs @ gmail . com … xoxo

 

It IS Happening – Psychedelic Rainbow of Emotions

November 29 2018:

This IS happening! So cool! Rainbow of Emotions by Lillian Darnell being made into a 3X3 handmade quilt! It’s been enlarged and this Psychedelic Dachshund is what it will look like when complete! Thank you to the beautiful soul whose wall this will be adorning! 🙏🙏🙏💚💚💚

Would you like a Quilted 3 X 3 Psychedelic Rainbow of Emotions? Comment here or email to Camilla Downs @ gmail . com … 

Psychedelic Rainbow of Emotions

November 23 2018:

The wonderful person who made this Psychedelic Dachshund quilt is head over heals for Lillian’s Rainbow of Emotions.

She is itching to quilt a Psychedelic Rainbow of Emotions, about 3X3 in size. Anyone interested in brightening one of your walls with a Psychedelic Rainbow of Emotions? xoxo

Another Fear Walked Into – The Shower

November 17 2018:

She took a shower last night! At 17 years old, she finally leaned into her worries and fears of taking a shower. Yes! A wonderful and new first for Lillian with a bit of help from grandma Patty!


(Photo from September 2016 – Another first of “getting air” for a photo)

Thank goodness that in The Romano Duo’s new place, they’ve got one of those extra large walk in showers. Lots of room to stay away from the wrath of the shower head! HA! YAY Lillian!!

Shared with Lillian’s permission. 🎉🤩😍🎉

Sometimes I See People Staring At Me

November 12 2018:

“Sometimes I see people staring at me. I can see in their eyes that it’s a ‘you’re crazy’ look.” – Lillian …

I asked her if this bothers her? Yes, it does. …. (I told her they must be staring because she is so beautiful … 😍😃)

In the past when I’ve noticed others staring at Lillian, I ask them if I can help them and ask if they have any questions or if they are curious about Lillian. I also let them know it’s unsettling for another to be stared at by someone.

I will be kind. Yet, I am human and I am also Lillian’s mom and protector. I do have my limits. I told Lillian to let me know the next time it happens so that I can “help” the one staring.

People stare at me often too. I have no idea why. I have finally reached a point where I can mostly not be bothered by others actions and words. Yet, I also just don’t give a pluck. 😂🤣😜And, there again, maybe I have lettuce in my teeth or my clothes are on inside out … Hahaha!! xoxo

I posted this on facebook on November 12th and thought I’d share some of my response to friend’s comments ….

I’m sure most people don’t even realize they are doing it. Yet, it digs at one’s heart when one’s offspring is bothered by it enough to say something … more than once. I also told her that she could ask them why they are staring if she felt like it.

I have had a child ask me “What’s wrong with her?”, so since they were a child, I was able to explain it all to them. However, having an adult say that would most likely put me past my limit! I’m so crazy myself, and having a wild imagination, I would have them thinking they need to seek another planet on which to live … xoxo … And, then again, I may just start dancing. That would really freak em out.

Thomas asks me sometimes why I’m staring at him. I’m not. I’m just deep in thought and looking in his direction. I think for the most part this is what is happening. Except for the occasional times when one can sense from the energy of the other; that they are being judgmental or having negative thoughts.

I have to say that my split second initial response is a firm-smart-ass-full-of-profanity’s-tell-them- off comment. Yet, I know this gets society no where having this response. So, I tell them what I think, yet, in the kindest way possible.

I get lost in thought at times and I’m sure it seems as if I’m staring at someone when I’m actually just dazed and confused!! HA!

Thankfully, no one has been rude to her, except for when she used to be in public school. Fortunately, I don’t think it bothers her as much as it could. Perhaps it has helped a bit when she or Thomas tell me I’m weird or crazy and I respond with, “Thank you. Thank you for noticing!” HeeHeeHee!

Where Would You Fly Flew to Barnes & Noble in Reno Nevada

November 10 2018:

Where Would You Fly flew to Barnes & Noble!! 💙🧚🏼‍♂️ 🧚🏼‍♂️ 💚  And Lillian and I joined the fun! 💙🧚🏼‍♂️🧚🏼‍♂️💚

Want your own copy of “Where Would You Fly”? Go here! xoxo

Fairy Dust is in the Air – Get All Three Team TLC Books

November 5 2018:

Fairies and Photography and Acceptance to Zig Zag!!! Sounds like a great trio to me! Lillian’s waving the sparkly, mystic filled wand over them!!

There’s fairy dust in the air for the months of November and December as you can get all three for a magical amount! Let me know …

All three books for $40 + $5 shipping for a total of $45 (regularly $55 for all three).

or

10% off any one book + $3 shipping

$13.50 for D iz for Different – One Woman’s Journey to Acceptance – $16.50 total with shipping

$18.00 for Biggest Little Photographer – $21 total with shipping

$13.50 for Where Would You Fly and Other Magical Stories – $16.50 total with shipping

You can use this PayPal link. Just enter your amount and note which book(s) you would like and your mailing address.

Or

You can also comment here with your email address if you’d like a different payment method.

Decisions As We Approach Lillian Darnell Reaching 18 Years of Age – Nevada

September 30 2018:

Friends with special needs adult children … Lillian is 17 years old now and it’s time to decide about guardianship. I’ll need to decide whether to do a full guardianship, or just financial, or just medical or both or alternatives.

**Nevada friends have shared about Supported Decision making – About to educate myself on that!!** So … input on any and all routes friends have gone is welcome! Lillian is capable of making decisions. Although, she has a difficult time with some decisions; with much anxiety.

Would you mind sharing your thoughts and experiences with this? I’m interested in hearing from all, especially friends in the state of Nevada since state laws can be different.

Did you have your local Regional Center (state organization that provides services for special needs kids) to assist with this by giving you information and/or conducting a psychological evaluation?

Thank you so very much for your input!! xoxo

Lillian is not medically fragile and we hardly ever go to the doctor. She hasn’t been in years. Her difficulties are her ability to articulate her speech, and emotional and mental issues. She does have difficulty making some decisions. She almost always ask for my input; which I give to her. She still has some difficulties after that, yet, I usually will try a bit more to get her to make the decision. If she’s not able to do it, I’ll make the decision for her (which, sometimes will snap her into being firm with her own decision)!